Failsafe 93 September - December 2019

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The Food Intolerance Network provides information and support for people worldwide using a low-chemical elimination diet free of additives, low in salicylates, amines and flavour enhancers (FAILSAFE) for health, behaviour and learning problems.

Focus:

New edition of Friendly Food from RPAH

Prevent violence with diet

Is anorexia due to food intolerance?

More faces of food intolerance: night terrors, growing pains, croup

Research: 25th Australian Total Diet Study (ATDS); Paleo diet?; Sugar and cancer

In brief: Grenadine in your cocktail?; Gluten free?; A2 becomes a global dairy disruptor

Your questions: What about lectins and the nightshade family and Dr Gundry’s paradox books?; I am 71 and sometimes experience urinary incontinence

Success stories: [1533] – [1543]

Failsafe shopping list: Friendly Food offer, HopperHQ (was AllergyTrain), shopping list updates.

Factsheets: over 100 science-based information sheets on symptoms and additives plus video resources. See sunscreens update.

Support community: Failsafers talking to each other.

Cook's corner: Access to thousands of delicious recipes through At the Failsafe Table; Failsafe wasabi

Thanks and admin:

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In this newsletter: the long-awaited updated version of Friendly Food from the Royal Prince Alfred Hospital Allergy Unit is now available and we discuss the changes.

There are articles on anorexia as a symptom of food intolerance; also night terrors, growing pains, croup, and violence.

New reader stories cover a range of symptoms starting with a 4 year old boy who went from “lots of aggression, hitting, screaming for apparently no reason, could not sit still for more than a few mins, defiant and destructive” to “calm, listens, is kind, thoughtful, and so so happy” within 2 weeks on the elimination diet - story [1541].

There are some eczema pics-worth-1000-words: “she is almost eczema free since the last photo with minor itch here and there whenever I started introducing her to higher sals food” - story [1543].

As a former migraine sufferer myself I relate to the migraine stories, especially  “I’m following the strict diet and am almost completely migraine free[1538] and “for the first time in 20 years I no longer get daily headaches 👏🏻 “ [1537].

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The Courage Award goes to Sarah’s story with the before-and-after photos above showing how she has lost 60 kg since this time last year (“have literally halved my weight”) by doing the RPAH elimination diet because it dealt with her migraines, stomach ulcers, asthma and sleeping issues: “I didn't drop 60kgs just changing the food I was eating, I have worked very hard with daily exercise and learning portion control … but I wouldn't be able to exercise as I do if I wasn't feeling well …”  - story [1536].

And a recipe for delicious failsafe wasabi that takes 10 minutes.

 - Sue Dengate
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New edition of Friendly Food from RPAH

The long awaited 2019 fully revised edition of RPAH’s Friendly Food is now out and available in our shop.

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When we did the RPA elimination diet with our family in 1993, we used the original version of Friendly Food that was published 28 years ago!  There was a major revision in 2004 with lots of changes so I was interested to see what else may have changed this time.

The introduction

You can read the introduction for free on the RPAH website . There are new sections on cultivating your microbiome and the emerging problem of meat allergies due to tick bites.

The Food chemical charts

The biggest changes are in the food charts. These have been expanded to include many more foods. The page layout is much better and easier to read than previous editions, and there are helpful comments in boxes. For example:

“Boiling and baking (200 degrees C) significantly reduces the salicylate content of vegetables and fruit” – page 23 ( I didn’t know that! – and Howard is still searching for scientific evidence)

Some good news …

  • I wasn’t expecting new additions to the low or moderate columns, so I was pleased to find some - e.g. a whole heap of moderate sal vegies (celeriac, cassava, edamame, hairy melon, kohlrabi, spaghetti squash, squash, taro, winter melon, yam);  kefir (presumably only if fresh); and there are more seafoods.

…. some bad  news

  • some of the foods that we have eaten for years – given that we can tolerate low, moderate  and occasional high sals – are now not okay. For example, tamarillos that were listed as Moderate sals when we started, updated to High in 2004, are now considered Very High (sals-amines). That rang a bell with us – we ate some yesterday and uncharacteristically both of us had difficulty falling asleep last night. So I’m sorry we can’t eat them anymore, but it‘s useful to know the cause of our problems.  Similarly, white chocolate is listed as High (amines) though I’d always regarded it as a safe alternative to regular chocolate.

… some interesting news

  • For people who are moving towards more vegetarian foods, firm tofu has been moved from moderate to low; Quorn products if unflavoured are High (amines-glutamates) but Very High (sals-amines-glutamates) if flavoured.  Likewise, unfortunately, commercial hummus and falafel are Very High (sals-amines).  

… and some confusing news

  • In the meat and seafood sections, “chicken nuggets” appear to have been moved from Very High to Moderate (sals-amines-glutamates); “fish fingers and nuggets“ are High (amines) and “nuggets” are listed in with processed meat products such as salami, jerky etc as Very High (sals-amines-glutamates.) Similarly, in the fruit chart, blueberries appear both in the High (sals) and Very High (sals-amines) columns. We have asked for clarification.

The recipes

Like the charts, the recipes are clearly presented and a quick look through showed me some that I’d like to try – such as Coffee slushy.  Another plus is that each recipe has a nutrient analysis.

Why we recommend this book

Over the years, we have seen that even one mistake – like us with the tamarillos – can negate the benefits of the diet if repeated too often. So it’s good to have clearly presented up-to-date charts to show exactly what you are dealing with.

This book doesn’t have information about how to do the diet and challenges but I regard both Friendly food and the RPAH Elimination Diet Handbook as very useful references if you are following the diet in the long term.  The more you know, the more likely you are to succeed. See special offers in the Food Intolerance Network shop for Friendly Food with big discounts on my books. Friendly Food is also available more cheaply (no postage) at Target and BigW.

Prevent violence with diet

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Staff at four New South Wales juvenile justice centres walked off the job recently to fight for their safety after two violent attacks on officers in two days, including the 21-hour riot at the Frank Baxter juvenile justice centre where six inmates were taken to hospital.

I'm betting no-one will consider diet, yet scientific trials since the 1970s have shown that violent, aggressive, destructive and angry behaviours in children and adults can be managed by diet - and our readers agree.

"Our 12 yr old son  ...experienced over 15 school suspensions between year 1 and 2 due to periods of uncontrolled violence. Since we found the Failsafe diet 7 years ago, our lives have turned around ..." - Natasha [1273]

It started in the U.S. in the 1960s, when highly processed food became widespread, when pediatrician and allergist Dr Ben Feingold reported behavioural effects of the new additives in these foods. In 1979, he published an article about dietary management of juvenile delinquency with 3 successful case studies using the Feingold diet.  Barbara Reed, a probation officer, had an extraordinary success rate of 85% with parolees using diet. See video (1:40 min) https://www.youtube.com/watch?v=Mm0XvU5rOOs 

In the USA during the 1980s, there were numerous open trials of diet. A review of 813 juvenile correctional facilities found that up to 50% of antisocial acts could be prevented, simply by changing what inmates ate.

A UK police study with chronic juvenile offenders showed "uncontrolled, violent, anti-social" behaviour followed by "controlled, cooperative and sociable" behaviour when diet was changed. See video  (4:56 min) https://www.youtube.com/watch?v=N_03MkTtpnQ

In Australia, several school trials have confirmed these findings. See for example video (3:07 min) https://www.youtube.com/watch?v=K9KhjVLKRDo&feature=youtu.be

Violence is a critical problem for our society but the effects of diet are ignored despite sound research.

Read detailed and fully referenced blog

Is anorexia due to food intolerance?

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Until now, anorexia was thought to be psychological but new research suggests that anorexia is at least partly a metabolic disorder.

From our point of view, anorexia-associated symptoms like obsessive-compulsive disorder (OCD), depression, anxiety and hyperactivity are well-known symptoms of food intolerance. For years, our readers have been telling us that their eating disorders - including anorexia, bulimia and binge eating, often associated with depression, OCD or ADHD (hyperactivity) - are due to food intolerance, and go away when they avoid the foods to which they have an intolerance.

Read the detailed and fully referenced blog

More faces of food intolerance: night terrors, growing pains, croup

Diet for night terrors and other sleep disturbances

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The mother of a two-year-old wrote: "Can the diet help with night terrors?"

The answer is YES, absolutely. Readers and science report that diet helps where other approaches do not - and not just for children!

Our son has had a history of sleep problems since birth ... following the RPAH Elimination diet ... John now settles calmly to sleep within 15-30minutes, sleeps through the night ... and no longer suffers with night terrors - Ursula from story [1341]

Read detailed blog

Growing pains and diet
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Doctors say they do not know what causes growing pains, but they do know that growing pains

  • are not caused by growing
  • are equally common among boys and girls
  • may run in families
  • aren’t a sign of something more serious
  • are painful, but they’re temporary; they’re usually gone by the teen years

FROM  https://health.clevelandclinic.org/what-causes-growing-pains-in-your-childs-arms-or-legs/ 

In our experience (25 years of supporting families doing the RPAH elimination diet) growing pains are a symptom of food intolerance.

Read blog

Diet for croup

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Health authorities warn there has been a rise in the childhood condition croup this past winter. Failsafers tell us that their children’s croup goes away when they go failsafe.  As is usual with food intolerance, everyone is different, so for severe cases it is best to do the 3-week dietitian-supervised RPAH elimination diet with challenges to find out exactly whether foods are triggers.

Read blog

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25th Australian Total Diet Study (ATDS)

Good news for failsafers: the foods which had the highest number of agricultural chemicals detected are generally not eaten by failsafers and are peeled if eaten: Bok choi (16 different agricultural chemicals detected), apples and capsicum (11), cucumber and strawberries (10), grapes, nectarine, sultanas and raw tomatoes (9 ), green beans and white bread (6), and savoury biscuits, multigrain bread, various breakfast cereals and hamburgers (5). The latest ATDS showed safe levels of pesticides and heavy metals in our foods, including safe low levels of inorganic lead in rice. https://www.foodstandards.gov.au/publications/Documents/25thAustralianTotalDietStudy.pdf

Paleo diet?

People who follow the paleo diet have twice the amount of a key blood biomarker linked closely to heart disease, the world's first major study examining the impact of the diet on gut bacteria has found https://www.sciencedaily.com/releases/2019/07/190722105935.htm

Sugar and cancer

The consumption of sugary drinks and ‘100%’ fruit juices was positively associated with the risk of overall cancer and breast cancer in recent research. Obesity was the mechanism suggested, but another thought is that most commercial soft and fruit drinks contain the preservative benzoate (210-213) as a source of the known carcinogen benzene. Benzene is produced from the reaction of the preservative with added or natural Vitamin C (ascorbic acid, 300-303). In 2006, many lawsuits were launched overseas and product recalls ordered when benzene levels were publicized. FSANZ apparently allowed the Australian Beverages Council to set a level of 5 parts per billion of benzene (ppb) as safe, even though the Australian limit for drinking water is 1 ppb.  This ‘appropriate action’ resulted in benzene levels below 5 ppb by 2011, when monitoring stopped. The WHO limit on benzene in drinking water is 10 ppb. The levels of benzene found overseas in soft drinks were 25-50 ppb (USA 15/2/06), >60ppb (South America 20/2/06), up to 28ppb (UK 31/3/06), up to 88 ppb (Korea 18/4/06). https://www.bmj.com/content/366/bmj.l2408 and http://www.foodstandards.gov.au/consumer/chemicals/benzene/Pages/default.aspx
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Grenadine in your cocktail?

This non-alcoholic bar syrup has a deep red color and used to be made from pomegranates. But watch out these days. In Australia they mostly use raspberry cordial with sugar, citric acid, flavour, preservatives (Sodium Benzoate 211, Sodium Metabisulphite 223), and colours (Carmoisine 122). US manufacturers now use high fructose corn syrup, water, citric acid, sodium citrate, sodium benzoate, FD&C Red #40 (Allura red 129), natural and artificial flavours and FD&C Blue #1 (Brilliant blue 133) AVOID

Gluten free?

Here is an excellent USA infographic to help you. See also our Food Intolerance Network factsheet Dairy, wheat gluten – do I need to avoid? because it is important nutritionally not to avoid gluten unnecessarily – thanks to Hristina

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A2 becomes a global dairy disruptor

Our Network first highlighted the advantages of A2 milk over 20 years ago. Now A2 is becoming mainstream and whole dairy industries are changing over to it. The essence of the science is that A1 beta-casein (present in most Western cows) releases, on digestion, a fragment called BCM7. The effects are multiple, depending on specific vulnerabilities in different people. But we know that it will always slow down the passage of food going through the intestinal system which set the scene for digestive discomfort. We also know that BCM7 is inflammatory and that can set up all sorts of reactions in susceptible people, both in the intestines and beyond.

Professor Robert Cade from Florida – perhaps most famous as the inventor of Gatorade – established some 20 years ago that BCM7 was a respiratory depressant strongly implicated in sudden infant death syndrome in vulnerable babies. Professor Kost from Moscow showed that babies unable to quickly metabolise BCM7 were at risk of developmental delay. And for some 20 years there have been major concerns leading from Professor Elliott’s work in New Zealand that BCM7 can be a childhood trigger for Type 1 diabetes.  There is also evidence that BCM7 can cause arterial inflammation. All of this is published in top-level journals.  More at https://keithwoodford.wordpress.com/2018/10/23/a2-becomes-a-global-dairy-disruptor/ and Food Intolerance Network factsheet on A2 milk

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Q: What about lectins and the nightshade family and Dr Gundry’s paradox books?

A: You can get the facts about this fad (and cheer all the way) by watching Dr Michael Greger https://nutritionfacts.org/video/dr-gundrys-the-plant-paradox-is-wrong/. More at https://www.nutritionaction.com/daily/what-to-eat/are-beans-and-whole-grains-making-us-sick/ and learn to beware of doctors ill-trained in nutrition selling expensive supplements.

Dr Greger does talk about how wonderful tomato juice is – so maybe you need to avoid tomatoes and tomato juice but NOT the entire nightshade family e.g. potatoes are low in sals, amines and glutamates. Science is necessary.

Q: I am 71 and sometimes experience urinary incontinence. It is not a consistent problem and I believe it may be related to food additives. Have you ever heard of this, and if so, can you suggest where I might find information about possible culprits? I have thought bread was a problem for some years - I can eat bread happily whenever I have been in Germany with my husband's family, but here I often have problems - May

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A: I have not only heard of food-related urinary incontinence, but seen it with my own eyes. When I was doing my study on the effects of bread preservative on children's behaviour, one of the children who had been toilet trained for years turned into a human fountain in front of me while on the preserved bread challenge. There are numerous reports from our readers of food-related urinary incontinence or bedwetting in adults, children and even a dog. Read full blog
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You can scroll through the full text of all stories: for every story we report, there are probably another 10 that cover similar issues. And these are just the ones we get to hear about. Names have been changed to protect privacy.

Success story collections: organised by symptom or by additive keywords are proving the most popular downloads from the website. They'll be added to as time permits.

People tell us that stories are so useful and positive!

[1543] Eczema probably caused by salicylates (August 2019)

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Total of 10 months into eliminations including 3 months after terminating the childcare centre. Currently tolerating mod salicylates. I was so sceptical going into this diet because she is already has lactose intolerance (full dairy elimination 6 months), fructose intolerance and egg/nuts/alcohol allergy. Until I was at my wit’s end and had to stop relying on potent topical corticosteroid to ease symptoms - her rash returned whenever I stopped using it. I went cold turkey to do strict elimination from RPAH book. When I had confidence I started doing challenges beginning with amines as I had that gut feeling that she is alright with amine. Then I challenged mod sals 2 months ago. We moved interstate so it was hard to find a dietitian. It's so worth it seeing her sleep through the night and we get back our quality sleep. I was able to make the people who don't believe in me, believe that elimination helps – Emma

10 weeks later: she is almost eczema free since the last photo with minor itch here and there whenever I started introducing her to higher sals food. Settles soon after I revert back to mod sals - E.

[1542] Failsafe as a child and now as an adult (August 2019)

Story to share... thought it may help some (especially those with young kids)...

I was put on the RPAH diet in about 1983, at 6 or 7 years old... after 4-5 years of the worst case of eczema (Started after antibiotics at age 2) the docs had seen.

NOTHING was working, so a “totally crazy” approach was taken - this diet.

Up until this point, people would ask my mum if I was dying. Despite having a very healthy appetite, with the head to toe eczema and extreme skinniness, I did actually look like I was dying.

My version of the diet was incredibly strict - for what felt like a lifetime. My diet consisted of lamb, pears, lettuce and rice. I reacted to water, which was specially treated as well.

Within weeks, I looked like a different person and began putting on weight.

I stayed on the diet for a few years - pretty strictly, but with more and more things added over time. I seem to recall the eczema was mostly gone by the time I was 10.

By age 12, I was basically ‘normal’ (although I’d developed a distinctly un-childlike preference for hyper healthy food).

The hardest part was being teased at school for my weird lunches. In the mid 80s, no one in a Tasmanian school was eating rice cakes with Nuttelex and maple syrup...

This diet probably saved my life. I have no idea how my mum stuck to it for so long, but I’m so thankful she did.

Now...

I’m considering the diet again - at 43 - for some symptoms that have appeared. I’ve spent the past few decades eating well - but eating anything I want, and I’ve realized I’m just too food sensitive to do that. Also, my two kids seem to have the same tendency for eczema and intolerances that I did.

So - if you can stick with it, it’s worth it! - Amanda

[1541] “I cried tears of joy because he was a different child” (August 2019)

Just wanted to post about our journey on this diet. Have had my 4yo boy on the strict elimination diet for nearly two weeks now. I cried tears of joy last night as in the last few days (since deciding to also cut out gluten) he is a different child.

Last Friday screening tests through a psychologist (done by both myself and his day care) showed ADHD tendencies. His behaviour was so exhausting and stressful. Lots of aggression, hitting, screaming for apparently no reason, could not sit still for more than a few mins, defiant and destructive, no parenting strategy seemed to work although every now and then we would see glimpses of an affectionate, sweet boy, but always just for a few hours before our demon child would rear his ugly head again. But now he is calm, listens, is kind, thoughtful, and so so happy.

If he has some upset we are able to use parenting strategies to get him back in a good place, whereas before everything was always escalating. I hope this lasts and I’m not getting over excited too quickly. But this feels like a serious game changer for my family, I feel like I have my boy back ❤ I am keen to also see how this goes over time and if we reduce dairy or make the switch to A2 if we will see further improvements.

Update 2 weeks later: We have just done the salicylate challenge and noticed behaviour changes, nightmares every night, waking up early and grumpy, lots of silly behaviour as well as defiance. Back to failsafe diet today and tonight he was so much easier and happier and co-operative. Looking forward to finding out what the other challenges hold! - Vivienne

[1540] 200: Some adult reactions to sorbate preservatives (August 2019)

Sorbates made me so horribly moody. I felt depressed - Maria

It affects my sleep pattern if I have it a few days in a row,  but it is very delayed - Teresa

I had an immediate reaction  to challenge (more oral allergy type reaction - it burns my throat and I swear the spots in my hands have come from sorbates. I've just felt a bit rotten and wondered if it impacted me more than I realised, or whether it was just coincidence – Linda

See Food Intolerance Network factsheet on sorbates 200-203

[1539] Migraine not hormonal but “actually had a food intolerance “ (August 2019)

I got my first migraine at 12 years old. Dr told me it would be hormonal and “get used to having them every month along with my period”.

It went on (more then once a month and getting worse over time) until I was 29. I was having a migraine last 6 days of pain followed by that “hang over” feeling for another 5 days and straight back into another migraine. They were worse every time and to the point it felt like I was having a stroke. My whole right side went limp; I couldn’t open my right eye.

I had MRI and lots of tests all came back fine. During this time I met with a dietitian for PCOS and insulin resistance. Mentioned to her about my migraines and she said “90% of her clients that were told it was hormonal actually had a food intolerance”.

I did the RPAH elimination diet and wouldn’t you believe I reacted within 3 minutes of having amines – Cathy

[1538] Three migraine and diet reports (August 2019)

I have had awful migraines since four years old. I am 54 now. Probably every Friday I was in the sick bay at school. I had medication meant for adults! As I got older they continued but interestingly less once I left home. In my early thirties after my second child was born I had a migraine start with vision disturbance and that migraine didn’t go for four years. Everyday for four years, multiple drugs, multiple doctors, chronic fatigue set in, muscle and joint pain, hospital trips. Then a friend who had been to RPAH allergy clinic said to me, “all your favourite foods are high chemical foods..”. So, I started the elimination diet, went to RPAH and lo and behold, I am pretty much migraine free. If I am not strict I might get a headache or joint pain, palpitations and other symptoms. I react to everything, some things more than others. I might also have some treats fairly regularly now but I won’t ever knowingly have nitrates, nitrites, sulphites, glutamates or benzoates – Liz

I had a migraine every day for four weeks in a row and had cut back to part time work and reduced my commitments. Once I discovered the strict elimination diet, after the first three days I had the first 24hrs headache free in as long as I could remember and it was AMAZING. Now I’m following the strict diet and am almost completely migraine free. I’m going to do challenges to hone in to what is causing them: I used to just get migraines from sulfites and PMS but I seem to have gotten more sensitive since starting menopause. The diet sure has made life work again. It seems to have evened out my moods too. I was recently diagnosed bipolar and everything was going haywire with the hormones but now the up moods have settled a lot. I still have low moods but I’m managing much better I think. Also I had horrible hot flushes all the time and they’ve completely gone which is super cool – Nanci

Migraines were the main symptom that led to me going failsafe. I had them monthly for years, up to 2 weeks straight at a time, and nothing the doctors tried helped even a little bit. I have been FS for 12months now and migraine free for 12months. I have gotten headachy a few times over the last 12months, each time as reaction to eating the wrong thing – Ashley

See Food Intolerance Network factsheet on headaches and migraines

[1537] Responses to story 1536 (August 2019)

Among all the heartfelt congratulations some other responses:

I’m not surprised by the weight loss...when u cut out the food that’s hurting u, u lose the weight ...simple – Beck

I went failsafe too from daily headaches that more often than not lead to migraines. I lost 15kg and most of mine was from inflammation. I deflated like a puffer fish. And for the first time in 20 years I no longer get daily headaches – Sue

I too had migraines for decades and even daily for three years. It amazes me that neurologists don’t consider food – Marian

I lost a lot of weight going failsafe too. Did not expect it. I think my body was in the habit of demanding more food to 'buffer' against the things that caused problems. Even now, when I feel tummy trouble coming on, I can still reduce symptoms by eating some plain bread/chips. Would never have guessed this was a thing until after I lost weight – Pauline

I am also migraine free thanks to failsafe. Amines and 160b are the culprits for me. Thanks for sharing your story - Jude

I've found I've lost the extra weight I've gained over the years, since being failsafe. The reason for me is that one of my symptoms is increased appetite, often with sugar cravings. Without these symptoms, it's easier for me to regulate my diet to a suitable level - Rosemary

That's so brilliant! The diet totally changed our lives too - Pat

Such a positive story! What a fantastic outcome for you. I hope your experience inspires others to give the diet a try if they suspect food intolerances. I also found the diet life-changing - Sarah

See Food Intolerance Factsheet on weight loss

[1536] “I wouldn't have stuck out the food changes if it hadn't changed my life in such a positive way” (August 2019) COURAGE AWARD

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I usually share meal ideas, but wanted to share a little on how going failsafe has benefited my life. This time last year, as you can see in the pics I was severely overweight. I was sick all the time, migraines that doctors couldn't find the solution for (every month for probably 10 years, sometimes just a couple of days at a time but a lot of the time they would last 2 weeks straight), IBS symptoms, asthma so bad I was on the nebulizer every half hour to an hour, frequent stomach ulcer attacks, over the last 20 odd years I would be up 20+ times a night to constantly pee and always just feeling blah. I had accepted all these things as just who I was, and actually didn't even realise how sick and tired I was, until I wasn't sick and tired anymore.

The other pics are of me today, 60kgs weight loss (have literally halved my weight), no longer use the nebulizer in fact I haven't even needed a single puff of ventolin since going failsafe or the constant courses of steroids, off all medication for stomach ulcers and migraines. I sleep through the night most nights (Well as good as you can sleep through with a toddler in the bed), I no longer need to race to the toilet often and the greatest part of all migraine free 😜. I can actually count on 1 hand how many little headaches I have had in the last year and each one was as a result of eating the wrong thing. Now obviously the physical change is what everyone notices in me, and always asks how I lost the weight. Whilst I don't recommend failsafe as a weight loss solution, it has definitely played a big part in my overall journey. I didn't drop 60kgs just changing the food I was eating, I have worked very hard with daily exercise and learning portion control and getting into the habit of eating smaller portions but more frequently (I would usually only eat one meal a day but then eat a lot of munchies at night), I now eat 6 times a day, 3 meals plus 3 snacks. I wouldn't be able to exercise as I do if I wasn't feeling well or tired all the time. I wouldn't have stuck out the food changes if it hadn't changed my life in such a positive way.

A huge thanks you to Sue Dengate, who has literally changed my life. Thank you to each and everyone in the facebook group, the support, advice and ideas I get on here have been incredible, I don't know how many times I have been in the supermarket and been able to ask a question and get a response so quickly.

I hope my story can encourage others as others have encouraged me, and I will continue to share our meals to help others as I have been helped over the year seeing what others create – Sarah

[1535] "grabbed a knife and started stabbing the sofa" (August 2019)

Colours, flavours and preservatives make my son go nuts but his worst reaction ever was to some blue pain medication after he had his tonsils out - he grabbed a knife and started stabbing the sofa - Breanna

[1534] Can diet help with night terrors? (July 2019)

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Absolutely diet can help! My daughter had dreadful night terrors. I eliminated amines and bingo! No more horrifying nights 😊 - Sue

I regularly suffer from nightmares and night terrors when not eating failsafe. My screaming scares the pants off my partner. At least I don't snore, though...- Sarah

Night terrors are the reason we tried failsafe for my then 20mo. She went from 3-5/week (absolutely horrendous time for us we had been living like that since she was 8 mo) to none unless she eats non failsafe. Sals and amines cause it for her - Josie

My story is in the blog...stopped within a week after being dreadful and frequent. But... biggest trigger was antioxidants, and as she got older the reaction became sleepwalking instead – Tracy

Above in response to blog on Night Terrors

[1533] Diet for eczema (June 2019)

I have been through the RPA 10 years ago & a dietitian helped me through the diet (for eczema). This was very successful. I have salicylate, glutamate, nitrate & sulphite intolerances & have done pretty well for a long time. I don't try to deviate too much from my moderate salicylates. It's not worth it!

I only wish I knew what I know now when I was much younger -  it would have saved years of suffering.

You guys are amazing & I only wish more people would listen when I tell them about the diet. Unfortunately, most people would rather pop pills than find out the real problem - Kerry

See also Food Intolerance Network factsheet on Eczema

Don’t forget, you can search for stories/symptoms or scroll through all current stories 

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NOTE the failsafe shopping lists on www.fedup.com.au are being progressively updated to reflect the changes above. If using the shopping lists, check for a September 2019 date at the bottom of the list!

The completely revised and updated Friendly Food from RPAH is now available at $35.00 including post and GST from the Food Intolerance Network store

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SPECIAL OFFER because it costs no more to post these:

  • Friendly Food (at cost) $35.00 incl postage & GST
  • add Fed Up for only $18.00 (32% discount)
  • add Failsafe Cookbook for only $27.00 (22% discount)
  • add Fed Up and Failsafe Cookbook for only $45.00 (25% discount)
  • add DVD Fed Up with Children's Behaviour for only $14.00 (45% discount)
  • add 'The Set' (Fed Up, Failsafe Cookbook & DVD) for only $60.00 (25% discount)

hopperHQ

AllergyTrain is now called HopperHQ: this is a popular and helpful online and retail store with a large range of failsafe products. It is run by dietitian Jenny Trezise who has both personal and professional experience with food allergies and intolerances. AllergyTrain felt that Hopper, being a trusted brand of allergy friendly, natural colours and food decorations, better showcased all the different things they do.  “We have not changed the essence of what we do in catering for allergies and intolerances, but we wanted to let everyone know, that we also cater for many others including people who have Coeliac Disease, those on a Vegan diet, and people who just want to make healthier food choices”.  Check out their failsafe range https://hopperhq.com.au/collections/rpah-strict-elimination-diet

Anzac biscuits
Carobana Carob buttons
Casalare Tempura Flour
Dr Schar gluten free pizza bases
Epsom Salts
Eskal Pretzel sticks
Freeze dried pear
Hopper bulk 1.5kg carob powder
Hopper pear flavoured lollipops
Hopper Pear Jam, Sauce and Chutney
Hopper Redcrush 100's and 1000's
Hopper waffles
Hopper white 100's and 1000's
Hopper white musk sticks
Muffin mix Well and Good in the old formulation before they added curcumin
New range of Ecostore Fragrance free shampoo and conditioner, handwash, body wash, laundry and
Orgran buckwheat pancake mix
Orgran wholemeal bread mix
Pascall white marshmallows
Plain toothpaste
Pure maple syrup 1litre
QV naked antiperspirant deodorant
Sunsense kids 50ml roll out suncream
Sweet William White chocolate buttons

Melrose has discontinued their shampoo and conditioner range – thanks Jenny

New Coles gf pastry not failsafe neither is gluten4U, they look like they are using the same dairy free margarine.

**WARNING** Coles breads – in some stores it is reported that Coles have stopped making in-house white sliced bread (and probably other types) and the replacement has vinegar (amines, not failsafe). But some are still failsafe. Read the label carefully – thanks Laura                                                                                                                                                                                                                                                                                                           heading8factsheets

Factsheets provide science-based access to information on added and natural chemicals, on symptoms and support. See full list of over 100 factsheets and remember that you can use the search function to search all factsheets (Information>Factsheets>Search all factsheets)

Sunscreens UPDATE September 2019. The US body that regulates sunscreen has just declared that 12 of the 16 popular active ingredients might not actually be safe. Only 2 ingredients can actually be considered safe and effective: zinc oxide and titanium dioxide. The sunscreens recommended remain failsafe. Avoid any that have chemical UV filters.

Don't forget that there is great collection of short videos to help answer your questions and understand food intolerance.

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Thanks for your continuing support of each other!

A video-graphic introduction to food intolerance from one of our Network members (2 mins): Food intolerances, what are they? Thanks to Steph Aromataris www.stepharomataris.com

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Diet not working as well as you'd hoped? One tiny mistake can make a huge difference. For fine-tuning, see the Checklist of common mistakes. Readers tell us this list is very useful. You can also ask for our Salicylate, Amine and Glutamate mistakes sheets This email address is being protected from spambots. You need JavaScript enabled to view it..

Online support: Sue Dengate facebook group (now over 15,000 members, open forum meaning the public can see your posts). If you want to use an email support group, join at This email address is being protected from spambots. You need JavaScript enabled to view it.. All other Yahoo groups have been closed because facebook has become the support choice of members.

Closed failsafe group https://www.facebook.com/groups/352777968116759/ with over 5,000 members (the public cannot see your posts)
USA facebook group https://www.facebook.com/groups/284241571702972/
NZ facebook group https://www.facebook.com/groups/1011400158967643/ (membership preference given to those living in New Zealand)
UK facebook group https://www.facebook.com/groups/380347182034474/ again accessible

twitter-bird-blue-on-whitetweet as @failsafers (note the plural). See all tweets https://twitter.com/failsafers

Food Intolerance Network hit 11 million visitors in April 2018. Interest in food intolerance and in eating food without additives continues to grow.

Local contacts: can generally answer some questions about failsafe eating - many have brochures and a copy of the DVD to lend out. They can also advise on supportive dietitians locally.

Dietitians: for failsafe-friendly dietitians, see the regularly updated
http://fedup.com.au/information/support/dietitians There is no longer any need to email This email address is being protected from spambots. You need JavaScript enabled to view it. for this list.

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DVD "Fed Up with Children’s Behaviour” has subtitles in six languages. (In PAL format only, not available with subtitles in NTSC format. But NTSC format DVDs are at a reduced price of only $14.50 including postage through the shop on www.fedup.com.au). As a reward for reading this newsletter so thoroughly, the first two people to email This email address is being protected from spambots. You need JavaScript enabled to view it. with their mailing address will receive a copy of our DVD free!

brochureflags flagFinland

Brochures
: are available in many languages
in a printer-friendly format (thanks to Failsafe members for translating!). Email This email address is being protected from spambots. You need JavaScript enabled to view it. if you can help with other languages. Brochure in Chinese. Latest brochure in Finnish.

Newsletters:
All Failsafe Newsletters can be searched and printed. There is a wealth of research, issue discussion, recipes, personal reports and recipes now available in one place. But some of the links are out of date and you must always check current products rather than relying on historical information.

Success story collections: These are the most popular downloads from the website,
organised by symptom and by additive. The latest collection is on violence and aggression (54 pages)
 

The Food Intolerance Network strongly supports the peer-reviewed publication of evidence regarding the effects of salicylates on health, behaviour and learning and acknowledges that more research needs to be published, particularly using dietary salicylates. However the very foundation of science is observation and these observations over many years show an astonishing and convincing range of real symptoms. We hope that they may assist in stimulating further research publication.

Reintroduction guidelines: for people who are extra sensitive, the new RPAH reintroduction guidelines recommend much smaller servings of salicylate and amine containing foods than previously, see reader comment below. Available on request from
This email address is being protected from spambots. You need JavaScript enabled to view it.

Thank you so much for the new RPAH reintroduction recommendations. I now understand why when I tried to ascertain my tolerance levels and did as my dietician recommended (try 1/2 a cup of salicylates) that my symptoms returned very quickly. ½ a cup is 100 times ¼ of a teaspoon, and given my scent problems I’m probably highly sensitive. Now I can try again. - failsafer, NZ

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Failsafe wasabi (real wasabi is very high in salicylates)

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Trying to come up with a marinade or something to add to meat fried rice etc made this failsafe type of ‘wasabi’ with a real bite. Tastes awesome with philly cheese on buckwheat cracker and takes all of 10 minutes – thanks Teresa

1 peeled and diced swede
2 chopped shallots
1 garlic glove cut up
a few chives
1 tsp golden syrup
1 tsp citric acid
salt to taste

In microwave jug cook swede, shallots and garlic until tender. Drain, add to other ingredients and blend. Cool and serve. Keeps well in fridge.

See a great list of recipes at http://www.fedup.com.au/recipes/blog

Every failsafer should get the regular newsletter from The Failsafe Table - it is fantastic

Failsafetable

There's a recipe index of ANY Failsafe recipes on ANY blog. So far there are more than 1,000 recipes with great photos and ideas all categorised to make it easy to search  http://pinterest.com/failsafetable/ 

Failsafe Thermomix group with recipes and a place to ask questions etc https://www.facebook.com/groups/139914166142279/

I bought a Thermomix a couple of months ago, and absolutely love it. These machines are totally awesome, so pure and clean, and I truly believe that if we’d had a Thermomix years ago when our son was at his worst, it would have saved us a lot of heartache, as well as time and money - Susan.

And the very useful weekly meal plan website https://mealsplans.wordpress.com/

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Privacy statement about emails and reports: Your email addresses and stories are never shared with anyone without your express permission. Names in stories are often changed to better protect the privacy of those providing them but the original emails are held in a secure location to provide evidence that these are real reports and that express permission to share them has been granted.

The FAILSAFE Newsletter is available free by email. Just email This email address is being protected from spambots. You need JavaScript enabled to view it.. Unsubscribe by sending a blank message to This email address is being protected from spambots. You need JavaScript enabled to view it. or use the unsubscribe button if your newsletter comes from MailChimp.

Sue Dengate’s books and DVD and the failsafe magnifying card and sulphite test strips are available through the shop on www.fedup.com.au

Special offer for USA and Canada: Random House has taken over distribution of Sue's books in the USA and Canada, but our current warehouse in upstate New York continues to offer special prices until all gone: Go to http://www.bookch.com and search for "Sue Dengate"

24 copies Fed Up Revised and updated at $US12.50
10 copies Failsafe Cookbook Updated at $US22.00
11 copies Fed Up With Children' Behaviour (NTSC format) - DVD at $US14.50

Fed Up and the Failsafe Cookbook are now available as an ebook: www.amazon.com for Kindle, www.dymocks.com.au in ePub version suitable for Tablet PCs, PCs, Macs, Laptops, www.ebooks.com in ePub for digital and iPhone/iPad.

Sue Dengate’s personal story as an ebook only $3.99: Fed Up with Food Intolerance - a personal story 

"Of all your books, your ebook Fed Up with Food Intolerance is my favourite ­ I just couldn’t put it down" - from Fed Up Roadshow 2015

Look inside

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This is the story that helped thousands of parents and adults understand this baffling disorder.

Buy direct at https://store16061019.ecwid.com/
Download a sample for Kindle (.mobi) or for other ereaders (.epub).
Also available through Amazon for Kindle

Disclaimer: the information given is not intended as medical advice. Always consult with your doctor for possible underlying illness. Before beginning dietary investigation, consult a dietician with an interest in food intolerance. Information is drawn from the scientific literature, web research, group members and personal enquiry; while all care is taken, information is not warranted as accurate and the Food Intolerance Network and Sue Dengate cannot be held liable for any errors or omissions.

© Sue Dengate 2019 (text) PO Box 718 WOOLGOOLGA NSW 2456, Australia but material can be reproduced with acknowledgement. Thanks to the many members who have written, phoned and contributed to this newsletter and particularly to Teresa and Tracy for their help with facebook and story collections. Further reading and viewing: Fed Up and The Failsafe Cookbook by Sue Dengate (Random House Australia), Fed Up with Children’s Behaviour (DVD) by Sue Dengate