FOOD INTOLERANCE NETWORK FACTSHEET

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PLEASE DON’T FEED MY CHILD

Chris’s mother had finally discovered that her son’s behaviour was related to what he ate, but found she couldn’t keep Chris on his new diet without support at school. So she decided to write a plea for help.

“I was a bit scared to put it in the school newsletter as it was fairly honest and I did feel exposed,” she said. She was surprised by the results. So many parents congratulated her on the change in Chris, or reported when he was cheating, or shared stories of their own children’s diet problems with her, that she decided the risk of telling the story was outweighed by the benefits and has given permission for her story to be quoted here in the hope that it will help others. This is what Chris’s mother wrote for her school newsletter:

“You probably all know Christopher W (in Ms G’s class). He tends to be a child that you can’t miss and who is very in your face. He also tends to evoke strong emotional reactions – people either love him or hate him. There isn’t much room for middle ground with Chris.

 When Chris was born he was a big, boofy boy. For the first six month of his life he was a placid, calm, happy child. At six months, he changed to being very, very active, fidgety and demanding. Looking back at that time, three things changed – he started long daycare, solids and formula. I also remember very clearly that his face changed as big dark circles and creases formed under his eyes. He was labelled ‘naughty, disruptive, hyperactive and violent’ by daycare when he was only 10 months old. He was walking at that stage and continued to escape from the childproof room, or to snatch toys from non-mobile babies.

Since that time he has been variously diagnosed by health professionals as having Tourette’s Syndrome, the hyperactive type of ADHD, Oppositional Defiant Disorder and others. Whatever the term, the symptoms are the same, including unmanageable behaviour, poor impulse control, loud voice, vocal tics, word and phrase repetition and lack of empathy.

Coupled with the behaviour has also been a range of other medical problems including croup, asthma, headaches and stomach aches, unexplained temperatures and eczema. Chris also suffers from glue ear and for the last four years has had grommets inserted every winter to enable him to hear clearly. (As I know now, these are all indicative of food intolerance.)

Last year I took Christopher to a paediatrician, looking for a solution to his constant illness rather than his behaviour. The doctor took one look at him – he was making duck noises and running in circles around the waiting room – and diagnosed food intolerances.

We went home with a complex list of foods to avoid. Although his health improved, his behaviour seemed to become worse, as it always has in summer. Just before Christmas, I found the Royal Prince Alfred Hospital’s elimination diet for food intolerance. This diet was stricter but far more logical than the one we were using. It worked by identifying the chemicals that people react to, then the foods that contain them. Interestingly, the research showed that most people with food intolerance react to the salicylates in fruit. I had been loading Chris up with cherries and nectarines in term 4. No wonder his teacher was ready to send him to Alcatraz late last year.

I switched the family to the RPA exclusion diet during the holidays. Gradually, as we removed foods from the diet and found acceptable replacements, Christopher’s behaviour improved. Living with him became easier, there were less sibling fights, and when he did misbehave it was easy to use normal parenting techniques to modify behaviour – something that had never worked before.

By the end of the summer holidays, I finally had a calm, reasonable, sensitive child, who was able to play at other children’s places without causing mayhem, would look at people when talking, and would allow other people to talk without interrupting. Amazingly, Chris was keen to stick to the diet, having realised how good he felt.

First day back at school and I had lots of positive comments about how calm or grown-up Christopher seemed. A good start to the year. However, as I write this, I am back to having a child who runs around making chicken noises, uses a loud voice, is prone to crying and is violent and aggressive. What happened? He got to school and started to cheat. He ate chocolate cake, m&m’s, muesli bars and lollies. For him, even the smallest amount results in a reaction. It is like being on a trip – he can’t control his behaviour, and trying to discipline him has no effect.

So what do I need, or more importantly, what does Christopher need? He needs the support of the school community to assist him to stay on his diet – he needs recognition for the fact that he does suffer from food intolerances – he desperately wants to feel in control of his life, and he likes feeling calm and relaxed, so please, please, please don’t feed my child, or encourage him to cheat. It will now take at least a week, probably longer, for him to come ‘down’ from this latest reaction.

I also want to let the community know that as part of this elimination diet, he will be going through controlled challenges this year where he will be tested for the effects of various food chemicals. This will mean that he will have periods where he does react and his behaviour will deteriorate again.

There are a number of children in our community who suffer from food intolerances and allergies – each child has different requirements and reactions, but all of them need our support.”

UPDATE ONE YEAR LATER : Last year I wrote this article in the school newsletter called 'Please don't feed my child!' It paid off, as parents are still approaching me to talk about it. I feel that my son and I are now being so well supported within the school community, it is amazing. I really wasn't sure what reaction I would get from the article, but it has certainly brought the issue to the fore and has got a lot of people thinking. - by email, NSW

 

Introduction to food intolerance

www.fedup.com.au

The information given is not intended as medical advice. Always consult with your doctor for underlying illness. Before beginning dietary investigation, consult a dietician with an interest in food intolerance. You can see our list of experienced and supportive dietitians http://fedup.com.au/information/support/dietitians 

© Sue Dengate update 3 November 2004

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