How long have you had MS?

I was diagnosed with MS 13 years ago. In retrospect, I think food intolerances have been with me since childhood: I endured terrible growing pains and had my adenoids taken out at 8 years of age because I supposedly talked through my nose. After years of bowel pains and then my MS diagnosis at 15, I finally decided to eliminate dairy foods four years later and noticed a dramatic improvement in my health.

How does MS affect you?

The MS symptoms I experience day to day are mostly sensory symptoms plus fatigue. The sensory changes mostly relate to feelings of cold particularly in my legs (not cold to touch but I perceive them to feel like ice blocks). This sensation changes from being really noticeable (both my legs feel cold 8 on a scale of 1-10) to not much at all (limited to the smallest spot on one leg but hardly noticeable - 2 out of 10). Early last year I went 100% failsafe after a period of not being so strict and after 4 weeks my cold sensations had reduced dramatically to about 1- 2 out of 10.

I have discussed my experiences with my allergist and he said other people with MS he has treated have had positive changes in their symptoms when following the RPAH elimination diet. I certainly notice a difference in sensation and fatigue when being failsafe. It has taken me years to finally accept this because I, like so many, kept thinking how can a meat and potatoes type diet be good for me? (Comment from Sue: it is possible to do a failsafe very low fat vegan diet)

Have you ever tried the standard MS diet?

All research into MS says to eat heaps of fruit and vegies, follow a low saturated fat diet and supplement with fish oils. After years of eating a mostly vegetarian diet, popping heaps of evening primrose oil and fish oil, I can now say that being failsafe is helping me the most. In fact, I follow failsafe eating principles but make sure my diet is low in saturated fat.

Do you have any opinions on Professor Jelinek's recommendations about sunshine?

I have read Professor Jelinek's book and think there is definitely something in the research about sun, vitamin D and calming an overactive immune system. It is quite interesting that over the last 13 years since my MS diagnosis every relapse I have had occurred in winter or very soon after! I certainly feel more energised in summer and even a few rays streaming through our lounge window see me on the floor soaking up the sunshine in winter.

Any hints for others?

I have noticed that taking bicarb soda in water makes quite a difference to food intolerance symptoms, particularly with facial flushing and itchy skin which is one of my more obvious reactions to salicylates, amines and MSG. How or why failsafe works is a mystery to me but I am happy to benefit from the impact it is making on my day to day health.