[1601] Chronic migraines and Hemicrania Continua – facebook responses (May 2021)

I have recently been diagnosed with chronic migraines and a rare neurological condition called Hemicrania Continua (constant fluctuating pain on one side of my head for the rest of my life). I came across failsafe many years ago for my then 4 year old child, whom is now 17 and doing well! 😀

I am interested in hearing from migraine sufferers or if anyone else may have HC also?  I am reactive to histamines, I also react to preservatives and additives, dairy, and possibly gluten, I have IBS, anxiety and PTSD. I see a neurologist and am on preventative meds and also medication for my migraines if I get a bad one – Shelley

Response from Lisa - I've been a migraine sufferer for over 30 years. I ended up in the allergist’s office in 2018. After working out my allergens they put me on the RPAH diet. The only times I've had a migraine since has been when I've eaten high chemical foods or chemical exposures. I react to the smell of fragrance, plastics, smoke etc which can cause pain and I wear a Vogmask for that as well as make my home safe. I have damage to the trigeminal nerve on the right side of my head. It used to be bad after the initial trauma but the pain isn't continuous and now I get it approx 48 hours before rain arrives. Basically I'm a walking weather barometer. I can do mod sals in small portions and I can eat chickpea and buckwheat but in small amounts. Vegan doesn't work for me - too many veggies would overflow my bucket back to migraine territory.

Response from Peta - It didn’t help with my migraines, I avoid amines anyway if I can but the salicylates don’t seem to make a difference.

Response from Michelle - Removing all scents from our house fixed almost all mine... I've only had a couple of milder ones in the last couple of years which is fantastic.

Response from Vanessa - I have had severe migraines and other symptoms. I follow failsafe plus I can’t have dairy, wheat or gluten. I see a neurologist and am on meds. I don’t have migraines unless I eat the wrong thing or are under high stress - I have other weird neurological symptoms that my doctor said could be an unusual form of migraine or something else - I put a huge effort into my wellbeing in general via exercise, meditation, mental health exercises and other things. I have a Masters degree in Public Health so have used that knowledge to develop a program for myself. I am now going really really well as long as I stay in my limits, working 3 days per week plus I have three children and have never felt better. This is a far cry from 2 years ago when I couldn’t work at all due to severity of migraines and other symptoms.

See factsheet on headaches and migraines