Since we discovered salicylates, my daughter doesn't need preventative medication anymore although I have made a few slip ups with her diet. Every time she has a reaction I look at what she has eaten and it is always salicylates. For example, she had a reaction to rissoles in the early stages of the diet before I had your books to help me. My dietitian said, 'Did you put pepper in the rissoles?" I hadn't realised pepper was high in salicylates and used it automatically. Last year I bought some "Kids Bananas" from Coles because my daughter never ate more than half of the usual big Cavendish bananas. Two days later her eczema had flared up and then she got asthma. By this time she had eaten three of these bananas. They must have been sugar bananas which are high in salicylates but I didn't know that at the time. During that attack she had to go back on her preventer medication as well as Ventolin but she hasn't needed it since. - failsafer, Qld

I was lucky enough to see you speak in Launceston in September. My husband and I have been at a loss regarding our three-year-old son's frequent nosebleeds, lack of sleep, temper outbursts and all of the other problems associated with a 'normal' toddler's wellbeing. When reading in depth Fed Up With Asthma we now realise this was probably caused by Singulair Tablets. When our new doctor took him off these he sleeps!!!! and a lot of the other symptoms have subsided. We have an appointment with a failsafe dietitian next month and have been failsafing the pantry over the last 6 weeks. The temper tantrums have been halved with the severity at least a quarter of what they used to be. Thank you for being the one person to listen to a mother in need. - Toni, Tas

I have always been prone to skin irritations since I was a little girl. During my mid teens in the 60s I contracted quite bad dermatitis on the backs of my hands. This manifested itself on the palms of my hands too, at times, and no-one seemed to be able to discover the cause of the irritation, the resulting blisters and weeping skin. Skin specialists recommended various creams and potions including tar ointments, pure lanolin, various other forms of similar creams and ultimately full strength cortisone ointment which seemed to be the only thing that reduced the itch and the inflammation. I continued to use the cortisone ointment on my hands from that time until only a few years back when I decided to speak to a dermatologist here in Canberra. During the period of those years my hands fluctuated in the severity of irritation, sometimes really bad, and at other times less severe.

The dermatologist did a skin patch test in which I had to leave various substances on my skin for a week without touching or removing the patches. During that week I returned to the dermatologist on the Wednesday and the Friday to check the reactions. On the Wednesday there were two substances that had caused a slight pink spot on my skin. However, by the Friday these two had increased in redness and another one had begun to cause inflammation of the skin.

The three offending chemicals turned out to be:

Formaldehyde - used in large amounts in many plastic industries, building materials, eg paints, glues, varnishes, some pesticides. It is also found in small amounts in cosmetics, eg creams, shampoos, make-up, nailpolish, new fabrics and clothes, high quality paper, house-hold cleaners, disinfectants and in smoke from cigarettes or fires.

Quaternium-15 found in creams, lotions, shampoos, and other cosmetics and skin care products.

Colophony - found in adhesives, sealants, shoe wax, lacquers, gums, varnishes, pine oil cleaners, cosmetics, wart remedies, skiwax, dental floss, modelling clay, paints, resins, athletic rubs, and many industrial products. High quality gloss paper may be coated with colophony.

Well! We came to the conclusion that my chronic dermatitis of the hands (at this stage, and certainly consistently since my late teens) was caused by contact with resin steering wheels. The irritation was particularly obvious during the hot summer months.

During the week following my diagnosis I wore cotton gloves when driving. I have had no recurrence of the problem since then (approximately 7 years now). My car has a pure sheepskin steering wheel cover - my husband can't stand the feel of it, yet I can't stand to drive the car without it. I must admit I was amazed to discover the cause after all those years! - by email, Canberra

Six months ago I changed my son's school as I got sick of bashing my head against a brick wall. Since then, my son has caught up to his own age group and is no longer considered to have any major learning problems. He just has to realise now he is very capable and intelligent, not dumb as he was told at his old school. This new school ensures he is kept away from anything that could trigger him off and that he has his own lunch that is not touched by anyone else. They even send him to another classroom if the teacher needs to use flyspray. The difference has been incredible. - reader, Qld

I read your book because it was recommended by my son's counsellor. Although Mitchell is a bright boy, often selected for gifted programs at school, his behaviour was atrocious (severe temper, disruptive, tearful, moody, silly noises etc).

Since starting failsafe two months ago, he has had a huge turnaround. He is very proud of his new self and is just starting to believe in his own potential - potential we, as his parents, always knew he had.

Last week, Mitchell played his first basketball game as his new self. Usually he would vague off in the middle of the game and would never listen to instructions from his coach. He always wanted to play, but had little attention span. Mitchell was amazed at his ability with his new self (as was Dad). At the end of his training session he came off the court and said 'Wow, Dad, that was FUN!'

Thank you for 'Fed Up' I wish I'd found it sooner! - Michelle by email

Thank you for your four very informative books. They are wonderful and a great support along with the failsafe email groups and newsletters.

We went failsafe for our son when he was born five years ago and both children have been sort of failsafe since then. However, increasing errors and too many salicylates over the last two years (due to lack of support when we moved) resulted in increasing periods of out-of-control, aggressive and defiant behaviour in our son. For the last three months I joined the boys on thediet and we have been strictly failsafe, after finding your website and other books (I only had Fed Up previously). Life has been wonderful - except for catering socially.

I have gained lots already from 'my failsafe bible' (your cookbook). Thank you for your thousands of great useable ideas, we drink a mug of soup a day like suggested in one of your books to keep up our vitamin intake and have all been healthier as well as 'better behaved' people since being strictly failsafe.

If you would like a European contact, or more specifically Sweden ... I am happy to help out. It's great having regular contact and updates, and the email groups to pose questions and ideas to. - Faye (our failsafe contact in Sweden)

I cannot thank you enough for your support and have been very vocal with child care centres and friends about the amazing results you can get with failsafe when you do it PROPERLY. - Michelle, Victoria

My six-year-old daughter has been on the ketogenic diet for three and half years now for uncontrolled epilepsy. In that time I weaned her off of three anti-convulsants and six months after the last wean she became seizure-free. She has now been seizure-free for 2 years and 3 months. Also in that time as well as being on the keto diet, she has been failsafe and dairy free. I re-introduced dairy into her diet about three months ago and she is tolerating it really well. She is now off the keto diet but remains failsafe. I'm certain without the ketogenic diet in conjunction with the failsafe diet my daughter would still be having seizures. - by email, NSW

I have recently discovered an intolerance to food preservatives and MSG which result in bad insomnia. Since I realized what was causing my problem I have mostly had really good nights' sleep but occasionally I get caught out and eat something with preservative or MSG without realising. It was probably easier for me to identify the connection between preservatives and insomnia than for most people as we live on a farm and butcher our own meat, hence sausages and mince with little else added, and additionally my husband has a cholesterol problem so I am very careful with our diet. - Karen O'Connor, Victoria.

My recent attack of ribo rash lead me to your web site. A casserole in which Dad nearly poisoned me with two beef Massel stock cubes and turned me psycho and swollen led me to Safeway. I was furious that the old package from which Dad's cubes came did not list 631 and 627 as they do on the new packaging. - reader, Melbourne

I wanted to let you know about our wonderful experience recently. Imagine my surprise (horror) when my husband organised a trip for our family of five to England and France for eight weeks. Horror, yes, because how do you stay failsafe?

My very first step was to call Qantas and request special meals for our son. I was originally told I could request dairy-free and gluten-free but when I mentioned salicylates, preservatives, colours etc the poor lady got very quiet and asked me to spell salicylates. She told me she would 'pass the request on but couldn't guarantee they could meet it'. They rang me back a day or two later saying they had spoken to their dietician and he would be able to cater for us. Imagine my amazement when almost perfect meals were delivered on all Qantas flights. I say almost because they did include a banana and I know amines would have been a problem but my son got heaps of food that was good for him! We were overjoyed. We couldn't say the same for the British Airways leg of our trip and we certainly struggled to stay failsafe in Singapore and Disneyland in Paris. The rest of our trip we self-catered and survived. The only nasty incident he managed in the whole trip (apart from a few hissy fits) was when he ran down a slipway and slipped (funnily enough) into the freezing cold harbour at Padstow. This was a truly amazing trip. I have written to Qantas to thank them for everything. It was certainly worth one little phone call. - Rhonda (our Lismore contact)

I would like to share a recent discovery which happened because of your checklist. Three years ago I started the RPAH elimination diet, with chronic urticaria, asthma and depression, weighing in at nearly 100kgs and only 26 years old. I had to change to live. Immediately I stopped smoking and drinking and discovered after 2 days of elimination I was suffering dairy intolerance and now stay right away from all dairy products. Within 12 months I had lost 30kgs and never felt better in my life. After six months of dairy-free life, I got married - I recommend love also as a wonderful healer. I took up yoga and greatly increased my exercise. There were a few niggling things, particularly the blocked and running nose, always having my sleeve or back pocket loaded with tissues, ready for the inevitable moment. I had always suffered this morning and evening ritual of a running nose so 'just lived with it'.

Having relaxed my eating and decreased my exercise, I regained a dress size or two over the last 12 months and recently decided enough was enough. I was becoming uncomfortable and depressed again and couldn't fit into my gorgeous new clothes. I could see I was starting to walk down that old path which led to unhappiness. I now hold the knowledge and power to change. There is no need to get sucked into old habits from the past. It was time to return to chemical free
life which I recalled with so much joy ... After a week of full elimination, the runny nose persisted. I read and re-read through your checklist of common mistakes and decided to try plain toothpaste which I never did three years ago as my dietician at the time said, 'oh you don't have to give up toothpaste if you don't want to - everything else though' and I never really considered it caused me such suffering.

Well well well. A truly amazing change has occurred for me. No more nose blowing at breakfast time or when I'm settling into bed at night. The tap has officially been turned off! My teeth actually feel cleaner than when using regular toothpaste and with a chemical free diet I never have a problem with bad breath which needs to be covered up with peppermint. - reader, Sydney

My partner is a teacher and always talks to his kids about the undesirable nature of what is generally in lunchboxes. He has had some interesting instances of saying to a child, 'If you eat that now you will be crazy this afternoon'. His predictions have come true and other children in the classroom have actually pointed it out. - by email, Qld

My mother was advised to have all her teeth out because her fillings might be causing her migraines. She doesn't get migraines any more, but I'm not convinced that fillings were the cause. She is eating a lot less salicylates because she avoids tomatoes (the skins get stuck in her false teeth), strawberries (seeds likewise) and apples (too difficult to bite). - by email

What you say in your book 'Fed Up with Asthma' about food intolerances making the airways sensitive to triggers like viruses is what happened to my daughter. She is intolerant to salicylates, although it took a long time for me to find out. When she was two years old, I had noticed that her eczema seemed to flare up a day or two after eating spaghetti. I mentioned this to a dietitian I was seeing for other health problems. She said that it could be salicylates, so I stopped giving my daughter spaghetti and tomatoes, but she still had eczema. Then when she turned three, she started getting asthma. The doctor always said that the asthma was triggered by a virus but there were times where she would get asthma without having a virus first.

At the Child Care/Kindy Christmas Party, the only thing they had to drink was cordial. My daughter had never had any fruit juice or cordial to drink up to this time, only water or milk, but we gave her half a cup of cordial to drink because she was thirsty and we hadn't brought any drinks with us. That night she had asthma. About a month later her father gave her a Winnie the Pooh Raspberry fruit drink and she also had asthma that night. When I told the doctor about this, she said did I think it was the colour? but didn't do anything, just told me about treatment.

My daughter was now getting asthma every month and needing stronger medication so I went back to the dietitian who prescribed vitamin supplements and took her off dairy foods. My daughter continued to get asthma and her eczema got worse, and this is how I found out about salicylates. The dietitian had told me to mix the powdered supplements in fruit juice and one of the child care centre workers mentioned that oranges can be a problem. It finally 'clicked'. I had been mixing the vitamins in orange juice. I got the dietitian to send me a list of all the foods that were salicylates so I could avoid them. After a few weeks my daughter's skin started clearing up and she has never had asthma again, even when she had a bad flu this winter. Dairy products give her the odd ear infection, less than once a year, but they don't affect her asthma.- reader, Brisbane

A friend of a friend with two young children visited a dietitian who put them on what I can only describe as a Clayton's failsafe diet ... not quite fully failsafe. For example, the dietitian told her that it was perfectly ok for her children to eat McDonalds/Red Rooster chips...

She was introduced to my wife and got into a conversation about real failsafe diets. After 4 days on the real diet, she rang my wife crying with happiness. Her son had settled down to what she considered a 'normal child' to be. His aggression was gone, his tendencies to distraction had disappeared and his sleep had increased by two hours a night. In his first speech therapy session since starting on the real diet, he suddenly managed to recognise 40 words (from picture cards) as well as all primary and secondary colours, where his previous best attempt at word recognition was 8 words. The speech therapist was so amazed that she has already started researching failsafe dieting. The dietitian who put her on the Clayton's diet has now started looking seriously at the failsafe diet instead. It's been two weeks now and our friend is seeing the pediatrician who put her son on Ritalin this week to see about getting him off it completely. She's 100% sure that he doesn't need it at all any more. And remember the sister? She was a chronic asthmatic, but she hasn't needed a puffer since a few days after starting the diet. - from an email discussion group, with permission

After reading your book Fed Up, at last I can put a name to my 10 year old ADHD son's bad behaviour: oppositional defiance. I know that he reacts to preservatives and have tried to avoid obvious food colours but this is not enough to make a difference so I am going to try the failsafe diet.- by email

It seems that everywhere I go I hear of people who have attended one of your talks on food intolerance. It really helps people to understand what I am contending with. Just thought that you would appreciate knowing how your work is making life a little easier in my world! Thank you! - failsafer, by email

We've been trying the diet for four months without a lot of clarity probably because we were not strict enough. With your book and information we hope to get further. - reader, South Australia

Right from the minute she was born my daughter Laura was a nightmare. She screamed and screamed and screamed some more. I went around the twist. I had two children under two and it was hard to be up all night with this child and then carry her around all day. The minute I sat her down she would start screaming. I spoke to clinic sisters, doctors, friends and all gave me various degrees of advice. I kept saying that Laura is reacting to my breastmilk but was laughed at and told that that wasn't possible. I now know that I was right and the bread that I was consuming was giving this poor child a huge bellyache.

Life for the first 13 months was, and I won't lie, pure hell. People started treating me like I had PND but it was just this difficult behaviour in the baby. It had not eased with introducing solids and I by now had changed a million pooey nappies. Still everybody told me this was OK

At 13 months, I weaned Laura and she became a little better at sleeping but we still got a poo every nappy and her temperament was a little better. I continued with trying to cope and did the best I could all the while feeling that something was wrong. By 16 months I was getting worried about the nappies as they were causing her terrible pain in nappy rash. As we had moved towns I consulted a new group of clinic sisters and doctors. I had one clinic sister take notice and suggested that I get an appointment with a stomach and bowel doctor. I went to the local GP and was laughed at that this was so extreme and that it was fast transient time of food. This same doctor was consulted again at 18 months and he said that it was toddler diarrhoea. OK. When Laura's new sister was christened when Laura was 20 months we finally discovered what we think is wrong. We went to my husband's family farm and stayed for two and a half weeks. In that time all meals were cooked. No toast, no bread, no sandwiches, no diarrhoea, no nappy rash, sleeping through the night. I went from a child who had 10 runny burning nappies a day to 1 flushable nappy in a matter of days. Laura was cured.

I have since seen the GP who suggested I stay away from bread but gave me no help in finding out why bread was a problem. I went to the clinic sister and asked but to no avail. Then my sister heard about RPA's allergy unit and I was on the phone to them. Wow!!! Within minutes I had my answers. They explained the link between 282 and stomach upsets and runny nappies. They sent me the suggested shopping list and then made me an appointment. I felt like a huge weight had been lifted off my shoulders and now Laura is going great guns. My little girl is happy and sleeping through the night and has yet to react on her diet (day 25). I am lucky because I only did 10 days on no wheat no diary and no soy and have already challenged milk and wheat flour. So far so good.

This is Laura's story and I am so lucky but it is infuriating that nobody listened to me. Doctors were quick to dismiss this problem but our food was affecting her and I was giving it to her thinking I was doing well by feeding her healthy bread. Thank goodness for people like you. My son's preschool teacher recently went to Canberra for your talk and made me aware of your books and website. Thank you thank you thank you. We are now having an afternoon tea information session on food at the preschool and will include all we know about food and the nasties that can be in it. Now we can educate other parents and try and help our community. - Rose, ACT

I have successfully used bi-carb to curb reactions in my 2-year-old. I just add about 1/2 cup of bi-carb to the bath water. I have also given her 1/4 teaspoon of it in water, and that worked really well. - Renee, failsafebaby group

We started the failsafe diet in May 2002 after advice from a friend and it has had many interesting 'side effects', all of them good. We have had the usual wonderful behavioural changes in all members of the family and I don't know if any one else has reported this but if I stay 100% failsafe my acne rosacea goes (the scars don't but makeup covers them). I have taken many drugs for over the last 15 years for this condition and now I find that all forms of dairy give me pimples and cysts while flavour enhancers start up the vein ridden, red and sore rosacea. I am 34 now and don't want to look hideous in public any longer.- Viv, ACT

I have an aspirin intolerance and it took me ages to work out that my chronic mouth ulcers were being caused by beta hydroxy acid in my face cream because it is easily absorbed through the skin.- by email

Our son was bouncing off the walls for days after two doses of Dettol within 3 days (one from preschool, one from Nanny). Of course when I told nanny and the teacher, they both did well to humour me and to contain their disbelief. My sister - a pharmacist - sent me the chemical breakdown and the pharmacists' notes, it read like this:

Ingredients: Active: CHLOROXYLENOL (chlorinated antiseptic) Inactive: ISOPROPYL ALCOHOL (antiseptic) ETHANOL (handwash contains tartrazine). Contra-indications: not recommended to bath infants up to nine months because of the inability of the infant to detoxify chloroxylenol and benzalkonium chloride. Precautions: Can cause skin irritations.

In the individual breakdown of each of the ingredients, there were also references to medical journal cases of poisoning (i.e 'severe Dettol poisoning'); this warning about Isopropyl alcohol 'the lethal dose by mouth is reported to be 250ml, however toxic symptoms may be produced by as little as 20ml'; this one ' Inhalation of isopropyl alcohol vapour has been known to induce coma' and this is my favourite 'Application of Isopropyl alcohol to the skin may cause dryness and irritation; suitable precautions should be taken to prevent absorption through the skin'.

My sister also gave me a word of advice in dealing with those doubting Thomases who think that absorption through the skin is a load of rubbish. Nicotine and hormone replacement patches work! - Kelli from the discussion group

During the holidays we had been watching American settler re-enactments on TV and my eldest daughter said 'we could do that easily'. So we decided to do our own pioneer re-enactment in the week before school went back.

As we live on a family farm, we still had a lot of pioneer stuff about so perhaps we were able to go about it in greater detail than most.

A day's program was: get up at 6.30 am, collect wood and start a fire outside to cook on. Cart water from the rainwater tap to a basin in the bathroom for washing hands and self (with Velvet soap only). Another bucket of water for tea and cooking was carried into the house. While the kids fed the chooks and geese, I cooked scones in a camp oven and boiled the billy. Once the scones were cooked, I dropped eggs in the camp oven to cook in the remaining heat. We used homemade butter and golden syrup on the scones and salt on eggs, because pioneers didn't use flavourings such as pepper, herbs or tomato sauce. After breakfast we washed up with Velvet soap (rinsing well), first dishes, then face and hands. Teeth were brushed with an index finger dipped in seasalt.

During the day we hand-sewed bread flour bags with cotton from the tops of rolled oat sacks into place mats and embroidered them. We spent one whole day washing clothes and sheets with Velvet soap and Lux flakes in a copper heated by a fire outside, hand wrung and hung on a rope line between trees.

We also baked biscuits in the camp oven from a family recipe given to my Grandmother. She would be 110 now if she was still alive.

Mrs. Cattle Biscuits: 8oz SR flour, 1 egg, 4oz sugar, 3oz butter. Mix all ingredients and shape into small balls, put onto tray and bake in a moderate oven for 10 to 15 minutes. For variations, mix in coconut or put an almond or a drop of jam on top or add cocoa to the mixture. This mix was also pressed in trays and covered with golden syrup and crumble mix on top and cut into slices before cool.

For lunch and tea we ate fresh chops or chicken (dressed that day) with Laucke bread baked in the camp oven and vegetables which were growing in the garden at that time (silver beet, parsley, carrots, potatoes, shallots) or poached eggs on toast. I cooked the chicken in golden syrup and water then after the cooked chicken had been removed from the pot, we cooked golden syrup dumplings in the water. They had a fantastic flavour.

We removed all plastics from the kids' rooms (such as Barbie and bits), leaving them with only a chair, desk, beds, four books, paints (not acrylic dry blocks), pencils and a skipping rope. Their clothes were two sets of simple dresses and jumpers made from cotton or wool, leading to a complaint that they were 'dumb things to wear carting water on cold mornings, Mum, give me jeans.'

We ate at night by candlelight and played old board games. We played my daughter's Suzuki violin CD over and over as the pioneers only had one record. We gave the kids a torch for going to bed as they had not lived with candles and we felt it was not safe.

The result was amazing. The kids became more agreeable and instructions didn't have to be repeated until shouted to get a response, which had happened frustratingly too often before our Pioneer Week.

My youngest became less grumpy and the eldest less fragile and teary. Both stopped being picky eaters and ate with relish. The eldest's singing which was usually flat became tuneful because her hearing improved. They anticipated and showed more thought about what they were doing instead of being 'Tigger with Rabbit worries'. Life became gentler at home. The background frustration and noise decreased a lot and they took on new things faster. This change persisted for a while after school started then reverted as we reverted to our original diet.

I was diagnosed with salicylate/amine/additive intolerance 20 years ago, so I have never had a diet full of additives or the rest. But as the kids were getting older, I was bowing down to peer and social pressures, arguing in my head that their bodies were bigger so could handle additives better. I was wrong. We are now doing the elimination diet after two weeks of a take-away, additive binge, to make sure of all our symptoms. The kids are loving it and it is easier than the pioneer week because we use modern conveniences such as electricity and running water. A modified Pioneer Week would be a fun introduction to the elimination diet which sounds ominous and is not the current retro trend. - Rosy Hill, South Australia

A bad case of Glandular Fever triggered my CFS, which resulted in two miserable years of bouncing from one medical practitioner to another trying western medicine and other alternatives such as acupuncture. The responses were often unsympathetic and showed a complete lack of understanding about the condition.

It was through a recommendation from the CFS society in Melbourne that I saw a failsafe allergist.

It took nearly three months on a very strict elimination diet before I felt my old self again and the glands in my neck no longer felt like golf balls. It wasn't long after the three months that I was back working in the outdoors. With hindsight the recovery was remarkable after spending so long with little to no energy.

The nature of my work made it very difficult for me to effectively reintroduce all foods so I am still unsure of all the chemicals that affect me. However, MSG is a shocker!! as are most preservatives. When I start feeling the CFS symptoms coming back I put myself back on failsafe.

Despite a careful diet I still need more sleep than most people (9 - 10 hours a night) to function effectively. I rarely drink alcohol, this makes the CFS symptoms worse and I seem to be very sensitive to strong smells such as deodorant and perfume. I definitely feel better when living outdoors.

Without a doubt, going failsafe saved me from years of depression and frustration. I never take my good health for granted after being so deprived of the lifestyle I love. - Amanda, Melbourne

Further to Karen finding out recently that white Panadol tablets contain a preservative, I have done some investigating and was horrified to find that the brand at the hospital that I work at, Febridol paracetamol, has sulphite preservative in it. This could be a problem for asthmatics admitted to the hospital! Many other brands I looked at also contained sorbates and benzoates as preservatives. Herron tablets are colour free, gluten free and preservative free (see Failsafe Shopping List and Medications factsheet) - from the failsafe group

Our latest mistake was when our son was given a "special treat" of a glass of orange juice by his well meaning grandparents. Aaaaaargh. I have noticed since then his speech has gotten worse, but improves once we give him some bicarb soda (mixed with golden syrup) as an antidote. We noticed his speech worsened when we did the salicylate challenge. The speech problems come into play when he is hyper, which is days 1-2 post salicylate and slowly improves from there. - by email

I am in the failsafebasic and failsafe2 email support groups. Joining was certainly the best thing I ever did because I know I am not the only one struggling with my daughter. She has improved immensely since we started the diet. When I looked over her old diet (Dr Feingold's), I realise that it is really only halfway there, which explains why sometimes she reacted and sometimes she didn't. - failsafe mother from Sydney

I am a chronic migraine sufferer. MSG is one of the big ones for me (triggers migraines and rash) and almost every major food company feels a need to use this in their products - Maggi is the main offender with others, eg Trident, not lagging too far behind. Why are these in our food if they are harmful? - John, by email

We started our salicylate challenge on a Sunday. By Monday afternoon, my son was climbing the furniture more than normal and told me he felt silly. He was very giggly. On Tuesday afternoon he was again climbing the furniture and not responding to me when I talked to him. He was very happy and giggly again and it was actually kind of nice. His writing has improved so much lately, I was astounded when we sat down to do his homework and he started writing badly again. About 75% of his letters were backwards and he couldn't work out how to spell easy words. This is what really shocked me and what will make me avoid salicylates. When he got dressed he even put his clothes on backwards! - failsafer, by email

Last year I wrote an article in the school newsletter called 'Please don't feed my child!' It paid off, as parents are still approaching me to talk about it. I feel that my son and I are now being so well supported within the school community, it is amazing. I really wasn't sure what reaction I would get from the article, but it has certainly brought the issue to the fore and has got a lot of people thinking. - by email, NSW

My son was diagnosed with borderline ADHD and we have him on a colour and preservative free diet. It has made such a difference. It is nice to have other people comment on his behaviour in a positive way now. Before he couldn't sit still in church for the first part of the service before going out for Sunday School but now he happily sits still. - Jennie, NSW

We want people to know that we feel sorry for anyone who tries to do the failsafe diet without the Failsafe Cookbook. - group of mothers from the Brisbane Kettle Club at a recent failsafe talk

My son is going well, although it was a bit rocky for a while until the vanilla ran out. He had been helping himself to lashings of vanilla essence in his cereal, drinks etc. Once the vanilla ran out he was back to being wonderful - such a little thing and such a big impact - a very big difference between the two allowable drops, and his great sloshes!! - by email, NSW

When I was around 4 years old I had quite severe behavioural problems, so my mum went from doctor to doctor looking for a possible solution. Eventually one doctor suggested the Feingold diet. I started the elimination diet in 1986, and my parents found an immediate improvement. One day my grandparents gave me red cordial which pretty much confirmed the effects of food additives. My parents and I found that I reacted to salicylates, and lots of artificial colours and flavours.

I went from a kid who everyone said would grow up to be a juvenile delinquent, to a better behaved kid who is now 21, studying for an Information Technology Bachelors degree. I also finished a 12-month employment contract not long ago and started a new job.

I'm surprised that it's only recently that people have been talking about the link between food and behaviour. - Danny, student

We discovered failsafe over a year ago when my son Liam was four. Ironically, because of the failsafe internet support group he was diagnosed with Asperger's Syndrome a while later. He used to hate loud sounds and either shut down, cringing in a corner with his hands over his ears, or more often, he rose above it with the most aggressive behaviour and loudest noise he could muster. One time I had the blender on for one minute and he screamed and threw a chair across the room, quietening down as soon as I turned it off. This has dramatically reduced now. It was not instantaneous with the introduction of diet but somewhere in the course of last year it improved. I have found that this is the improvement which most intrigues other parents of autistic kids. Liam still doesn't like loud noises such as fire alarms but he is content to hold his hands over his ears.

For Liam, the diet has been like unfogging his brain and allowing him to catch up where he is delayed, mainly socially and in his emotions. But the most interesting thing was watching his drawing develop. When he first started Kindy, he drew like a two year, all scribbles. After he started the diet, his drawing just took off and in a matter of months we watched him improve to above his age level. Literally every week there were new dimensions. It was so exciting and a very visible reminder of how the diet now allowed him to develop.

Liam is gluten, dairy and egg free as well as failsafe and he has soy only once every four days. I could not say he is perfect, but he is light years ahead of where we were. - Caroline (finb and Failsafe discussion group)

I am a mother of three kids - 8, 6 and 3 years of age. This year has been so stressful at school for the older two boys; they have been in constant trouble for misbehaviour in the classroom and schoolyard. Until last week, teachers and I just didn't know what to try next.

Last weekend I was desperate. I pulled your books (and Friendly Foods) off the shelf, started cutting out additives and bought Woolies unpreserved bread.

The difference has been remarkable - at home and at school. Teachers and the deputy principal are most impressed at the difference a change in diet has made in less than one week. I intend going the whole way to 'failsafe' foods, then challenging suspect offenders one by one. Thanks for your help and wonderful work, life as a mother is worth living again! - Barb, Qld (This email address is being protected from spambots. You need JavaScript enabled to view it.)

I am 58 years old and came across your website by accident. I was dumbfounded when I saw the pictures of the effects of food additives 635. This was what I had for nearly 3 years!

I could not believe it. My symptoms too started in the early hours of the morning with dreadful itching. By the time I got up my thighs were black and bruised from scratching. Over time this went and welts came all over my body. I looked like I had been beaten. I also had rashes that were itchy and painful. The only part that was not affected was my face and head.

So many doctors and tests, so many creams and tablets - and nothing would stop it. I had tests that showed I was allergic to things I had never had, like horsehair and oysters. To top it off I started to get fungal infections in my fingernails. I had bouts of crying and wanted to die.

Eventually I was told it could be emotional or change of life. Then in June 2002 I started have rigors (uncontrollable shaking). I ended up in hospital, where I had every test under the sun including biopsies. My body was swelling up and I had blood tests every couple of hours. My temperature would not come down. I was seen by the elite of dermatologists and a professor of infectious diseases who told me that 'sometimes the body will not reveal its secrets'. They called what I had 'hypersensitive vasculitis' or a toxic shock from an unknown source. They said that I was at death`s door. Then my temperature went down and I was discharged.

It never occurred to me that it could be the food I was eating, as I hadn't changed anything. I would have meat pies or sausage rolls at least once a week and sometimes pizza. Eventually I cut out processed foods and now make my own sausages rolls. I still do not know which one started off this torment but I have thrown out everything in my pantry with 635/621 and my symptoms have gone away.

At the very least, these food additives should be listed in bold lettering or a different colour. - Maree, by email

Thank you for bringing this horrible food additive 635 to the attention of the media. Until the program on ACA, I had no idea that other people were suffering like me.

My problems started in July 2002, when I ate roast chicken that caused a dramatic rash to appear all over my body. I was sure the roast chicken was the cause as I had noticed on two previous occasions severe thirst and disorientation after consuming roast chicken bought from a Woolworths supermarket. On the third occasion I had the same symptoms plus the rash. The rash was so severe that I needed oral cortisone. Woolworths informed me that 635 was the sole flavour enhancer in the chicken. I saw an allergist about a month later who dismissed my view, saying that it was more likely to be a non-specific reaction that would eventually die down and disappear.

I didn't subscribe to that diagnosis and decided to stay away from roast chicken for my health's sake. I began to notice that it was affected by other commercially produced foods, including a salad dressing that contained 631. The rash usually starts on my upper thighs around my backside and travels down my legs. It also appears on my back and shoulders. At its worst when it first appeared it was also on my face and torso. The welts were large, covering a wide area, very hot and maddeningly itchy.

The most disturbing aspect of this situation is that 635 is being used in takeaway foods and restaurants. The consumer has no way of knowing that 635 is present in the food. I am beginning to avoid all commercially prepared food. Can you believe it? Imagine if I became anaphylactic to this substance. I recently attended a wedding reception and cautiously ate the three-course meal provided, avoiding the gravy on the meat, only to find the rash reappearing by the time I got home. Another disturbing symptom that has only accompanied the rash twice (the second time was early last Sunday morning after the reception) is a very strong feeling of ‘knotting’ in my oesophagus. It is similar to the feeling of eating a lot of food too quickly and having to wait for it to travel down. It comes in waves, like contractions, and I wonder whether it is the peristalsis of my oesophagus firing unnecessarily. It has woken me from sleep on both occasions and I find that it responds to taking an antihistamine.

I now religiously read the ingredients provided on packaged foods and have stopped eating Asian and Indian takeaway and takeaway pizza - Anna, NSW, 35 years of age.

I am writing to thank you for all the help your book 'Fed up with Asthma' has given my family. My daughter is two and a half years old, and was diagnosed with asthma when she was 10 months old. She was hospitalized with croup and later we were told she has asthma. She was put on a steroid puffer and I was told she would need this for most of her childhood.

I knew that food additives were not safe and I tried not to buy anything with 'numbers' on the back of the packs, which proved to be difficult. Still this didn't seem to help, I also put her on goats milk and took her off all other dairy products.

I took her to an asthma pediatrician, three months ago. He gave her an allergy skin prick test which came back totally negative. She was allergic to nothing! The doctor assumed that food was not a cause of her asthma. I was told that the cold winter nights were triggering her asthma, to go home and put her back on her steroid puffer.

This winter she seemed to get worse. As the cold nights set in, her coughing increased to the point that I was up every 20 minutes comforting her. I was desperately trying to keep her off the steroid puffer and I was about to give in, when I saw your book.

My daughter has now been on the failsafe diet for three weeks with amazing results. By the end of the first day she coughed only once, same the second day and the next two days nothing.

I've only made one mistake, when I gave her crackers which probably contained BHA (320) as a preservative in oil. At the time I thought they were failsafe so my daughter had quite a lot as a snack. That night she was back to coughing every two minutes and using her ventolin puffer. After 24 hours she was okay again and back on the failsafe diet.

I realise that we still need to discover other sensitivities but for now she can breath easy with no barking cough and we can both have a good nights sleep. If it hadn't been for your dedication to this cause I don't where we would be today. Thank you. - Joanne, Perth Western Australia

I have worked out that my son's bad behaviour is all due to added MSG. He is OK on cheese and other natural MSG products - but give him a KFC chicken nugget packet and their chicken salt chips with the so called "secret herbs and spices" and you can see the reaction within 30 to 60 minutes. I'm not surprised as I get very similar reactions with MSG although my reaction is different to my son's behavioural reactions. I have Irritable Bowel and my reaction to MSG is to have a bad IBS attack. Sometimes I get an almost "high on drugs" feeling where my skin starts to crawl. - reader, email

I have 3 sons aged 7½, 5 and 2. The two older boys are very 'active' and display the type of behaviour that is evident in the emails from the other parents found on your website. Needless to say, I'm always on the go and have had a lot of trouble with my 5 year old who has just started school this year. Since I have found out about your website, I have changed the bread the boys eat and am trying to cut out all unsafe additives in their diet. Their behaviour has improved as a result of it. Thank You!! - reader, NSW

A couple of days after initially eating a meal my partner and I made using a recipe mix containing flavour enhancer 635, I broke out in a rash over my neck and upper torso. This quickly spread to the rest of my body the following day. The itch is unbearable, especially around my neck area, arms and breasts. The doctor didn't seem to believe that it could have been this enhancer, even after I showed her an article published in the Melbourne Sunday Herald Sun on 9 March 2003 entitled "Allergy hell in food additive".

It looks to me that there are many people who are intolerant to this additive and I believe it should be banned. This is the first time I have ever had a rash of this magnitude develop and I am not impressed. - reader, by email

I have never suffered any kind of food allergy in my life (43 years) and then about ten weeks ago I found myself suffering from an extremely intense and constant itch of my hands and arms. After two days of this I found I had come out in hives, starting on my upper chest, abdomen and back. It then spread to my arms and my legs and from then on each day might be different combinations of location of the hives, but always somewhere. They were worse at night causing intense itch and lack of sleep, I can't begin to tell you how unbearable the itch was and how it affected my everyday living and my ability to work. On several occasions my lips have been swollen and I find on occasion that although my upper lip doesn't look particularly swollen, it feels 'thick' and like I have been to the dentist. Once my eyelids puffed up too. Through studying the foods that I had eaten I became almost 100% certain that it was 635 causing my problem. For almost two weeks I avoided all foods containing this additive and was finally able to come off the antihistamines I had been forced to live on. I then ate a seasoned lamb steak bought from my local butcher and the next night the hives were back. Guess what? On contacting the butcher concerned, he was able to tell me that the seasoning used on those steaks contained 635.

I wish this product had never been put on the market. I'm sure it is what, to put it frankly, has caused me absolute hell almost continuously for over two months.

- Debbie, by email

My mother has "mature onset" asthma. We know she is super sensitive to sulphur in medications etc. but she remains in denial about changing her diet. - by email

Great News!! I have just finished week two of the elimination part of the diet and have found that I have gone from using my Ventolin at least once a day to not at all. I am still taking my preventative medicine tho and I still carry my Ventolin with me wherever I go. I have dined out a couple of times with friends but I have researched and am equipped for any situation! I love natural oysters so that is what I eat when I dine out with friends!! (with G&Ts). I am really looking forward to finding out which foods affect my asthma. - reader NT (so far, the salicylate and amine challenges have not affected her asthma, we'll keep you posted)

My second daughter (aged 7½), has always been the most 'difficult' one of my three children. Over the years we have had to put up with regular tantrums, defiance, rudeness and out of proportion reactions when things didn't go her own way. She also often complained of tummy aches and had little energy.

In early 2002 I read Sue Dengate's book 'Fed Up'. What I read described my daughter exactly. I discovered there is a name for her behaviour - oppositional defiance - and that it can be caused by intolerance to artificial or natural food chemicals. Our family decided to do an elimination diet using 'The Failsafe Cookbook' for guidance. We discovered that our daughter reacts severely to certain food colours and preservatives found in some breads and other food products. She also has an intolerance to natural food chemicals called salicylates.

The change in our diet has been enough to make a huge difference in our daughter's behaviour. She is now a happy, co-operative member of our family. She has a lot more energy and no longer overreacts when things don't go her way.

Asthma has also been a problem in our family. "Fed Up with Asthma" has given me the best information regarding asthma triggers and medications that I have ever read. Amazingly, in the six months since that we have been eating failsafe foods, no one in our family has suffered an asthma attack. - Alice, NT

I am the mother of an eleven year old asthmatic whose asthma is very well-controlled by avoiding certain food products. I have been caught unawares twice this month with flours containing sulphur dioxide. Both times the sulphur dioxide was not listed on the packet as it was under the necessary dosage to be listed, but within 12 hours of ingesting the product, my very well controlled asthmatic daughter started to wheeze and needed medication. Both times I rang the company who assured me the product did not contain sulphites, but when I pushed the company for more information it was revealed that in the processing, sulphites are added at the flour processing stage. Both times the products were labelled as 100% pure products.

This ingredient SHOULD BE LISTED, no matter how much is contained in the product. My daughter is obviously very sensitive. Traces of peanuts, eggs and dairy are now listed on food packages due to anaphylactic reactions of some children, why not for sulphur dioxide when it can also cause life threatening reactions? - Susan, NSW

I bought a basted turkey roll which we'd never never had before, and cooked it in the foil according to the manufacturers instructions. Near the end of the cooking time, I checked it and got some of the baste on my fingers. I gave my finger a lick after I put the turkey back in the oven. Within 10 - 15 minutes I had two hives on my right foot. I thought something must have bitten me. It wasn't until I started to eat the meal (I didn't even get all the way through it) that I realised they weren't bites. Within 15 minutes I had hives all over my body, my temperature was raised and I was very itchy.

I took Claratyne. The hives didn't get worse but they didn't go away. I saw the doctor the next day. He prescribed cortisone cream. I slathered my body with it every day but it took over a week for the hives to go away. At the time, I looked at the ingredients list on the turkey packaging but there were so many numbers and long words that I thought the culprit could have been anything. - by email

For the past 2 years and 4 months I have suffered unbelievably with the most horrific itchy rash and skin problems. I rated my rash as being chronic. It has been the most excruciating thing that I have ever experienced in my 65 years of life. I have been to so many doctors that I have lost count of them. Sadly no one has been able to help me, not even one of Adelaide's leading dermatologists.

Through the Current Affair program I have been able to work out that it is the additive 635 that has been my problem all this time. The pictures you have on your web site are exactly what I was like, plus on the days that I had really bad reactions - which was nearly every day - my whole face was puffy with fluid, burning
hot and extremely itchy, with prickling sensations and constant flaking skin, just like dandruff. I also suffered very swollen lips and badly swollen eyes with sacks of fluid under my eyes for a couple of days each time this occurred. My whole body was so inflamed that my skin was a constant clammy state 24 hours a day.

My hands have been extremely sore with splits all over them and like a fungus growth under all my finger nails, all of my fingers have had big gaping splits on them, some days it has been almost impossible to work because they have been so painful, my skin just seemed to split apart at any time.

At times it has been unbearable. It has cost me thousands of dollars in medical bills, lotions, tablets and bandages over the past two years plus.

I had no idea at all that it could be something that I have eaten all my life. As I do not eat a lot of red meat, chicken is my main meat source. Sometimes I would have it for two meals a day. Not for one moment did I ever think that it could be the chicken that I was eating that was causing such a serious rash.

I always purchased my cooked chickens from the same shop, so I asked them what they put on their chickens before they are cooked. They handed me a can of the product and there it was: 635. For the past nine days I have not eaten any chicken at all and the rash has disappeared completely. Although I am still having some itchy sensations during the day, I am happy to say that I have had two full nights sleep for the first time in over two years.

How can customers know that this dreadful product is being used on rotisseried chickens when there are no signs displayed in the shops stating that it has been used or no warning on the foil bags that they are put in when purchased?

I just hope that this can be brought out in the open for everyone to be aware of. I am certainly spreading the word to all that I meet, especially everyone who has seen me go through the past 28 months of agony. They are stunned. Everyone asks, 'how can the government possibly allow things like this to be used???'- Yvette, Adelaide.

I'm 50 years old. Although an eczema sufferer most of my early life, in the past 12 months I have on different occasions developed a rash worse than anything I have ever experienced with eczema.

I have been to dermatologists and allergists and found that I was severely allergic to the dust mite. In the past couple of months I changed all my bedding etc and have been free of rash.

On Saturday night I cooked apricot chicken. The welts on my body started to appear again on Sunday night. I finished the chicken for dinner on Monday evening not associating it with the rash. Last night I woke tearing my body to pieces. There were huge welts all over my torso, arms and upper legs. I was in a terrible state. It was two in the morning and I was sitting in my lounge room sobbing and distressed. I thought I had found the problem with the dust mite. This was however was something far worse.

I went into the kitchen and checked what I had eaten. I had read the article previously on food enhancer 635. I checked the Continental French onion soup packet that I had used in the casserole. There was no mention of 635. I was totally distressed and at my wit's end. I went back to the soup packet and checked again and saw 'flavour enhancer (ribonucleotides)'. I had kept the article on 635. I rushed to my purse and took out the article. There was the chemical name for
635 - the same as on the soup packet.

At least I now feel a little relieved to know what has been causing these periodic chronic outbursts of welts. I can try and avoid these foods.

The allergist I went to only a couple of months ago knew nothing of 635 until I told him of the article in The Herald Sun. He had tested me for everything else but not for 635. I am astounded that they are unaware of this problem. I have been going to doctors for the past 18 months, whenever I flared up. No-one could give me an answer.

This is nothing short of criminal that the Food and Health departments will not ban this additive. To tear yourself to pieces, with huge welts on your body is the most demoralising thing I have ever experienced. Obviously this had caused problems for me previously and had gone undetected. Not only do I now have to wait for the welts to die down, I have scratched up my skin so badly it will take weeks for that to heal. Surely big business should not come first over the health and well being of Australians. - Sue, Vic

I am a Canadian resident visiting Melbourne and writing to you because I believe I must have this reaction to flavour 635. A week ago I got a nasty itch on the side of my breast and by the next morning I awoke with it having spread and by the next day it had covered my chest, back and now my neck, ears, face and it is slowly making its way to my arms and legs. At first I thought it was the new laundry detergent, so I change it and rewashed everything I brought to Australia with me. It seemed to be slowing down until this morning when I awoke with far more on my face as the older ones got bigger and drier.

My boyfriend saw the bit on TV about 635 and realised it was in the instant noodles we ate just last night. This means I've got it all over again for another two weeks. I cannot believe this. I have never had anything like it except chicken pox! Now I'm sad because I am leaving in two weeks and not going to see my boyfriend for many months and I have to end my stay looking like a leper and feeling like I fell in a bag of fleas.

It makes me just as angry as the other people I've heard on this site because something like this should be immediately taken off the market. It hurts people, how can that allowed???? Good luck to all others out there with the itchy and scratchy syndrome ... - Claire, Canada

My daughter is nearly two. Ten days ago, she woke with a rash all over her torso. By that evening it had spread all over her body, including face, hands and feet, and she had developed a fever. At the local hospital, the doctor advised us she had a virus and it was not contagious. He suggested we give her Panadol four hourly to reduce her temperature and give Claratyne for the itch. During the next five days we gave her Claratyne but it did nothing to stop the itch. Her temperature remained up and we eventually gave up on the Panadol. We noticed that the rash seemed to improve during the day but flare up again in the evenings in certain trouble spots such as her back and around her nappy.

On day 5, after her evening bath, she went berserk when we tried to dress her. She was scratching madly and screaming non-stop – it took two of us to hold her down and get a nappy on her. After an hour of distress, she fell asleep but had a terrible night. She moaned in her sleep, and woke at 2.30am and screamed for half an hour, trying to pull her clothes and nappy off.

The next morning I took her to our GP. He was perplexed. He was trying to find some sign of infection to explain why her temperature was still up. He advised we switch to using Phenergan to try to control the itch. I gave her three doses of Phenergan that day, and yet the itching continued. That evening we had a repeat of the screaming and scratching frenzy. We ended up calling an ambulance. By the time the paramedics arrived, Freya had stopped screaming and was quiet.
One paramedic raised the issue of this possibly being an allergic reaction but was wondering if it was something to do with clothes detergent. The hospital staff had nothing more to offer.

The following morning we took Freya to see an allergy specialist. He advised us the rash was urticaria, and his belief was that she did initially have a virus and her body had an allergic reaction in response. He advised it could take up to two weeks for the rash to clear up completely. He said the only other explanation would be a food allergy, and that if there was no improvement over the weekend we should make changes to her diet.

On the weekend I saw the Herald-Sun article. When I mentioned it to the allergy specialist, but he discounted flavour enhancer 635 as a possible cause for Freya’s reaction!!! He said food additives do not produce a long lasting reaction like this … Well, I am not taking any chances. Now aware that 635 can cause the exact symptoms I have seen my daughter suffer during the past few days, I have reflected on her diet. The day before Freya’s rash first appeared, she ate something she had never eaten before: flavoured chips.- Tara, Melbourne