Freedom Foods Ultra Rice Maple Crunch was recommended for our 3 year-old as part of a dairy free/gluten free diet. Because he's on Autism spectrum he can be quite fussy with food, but he loved it so much, he ate three bowls for lunch (I was so excited, as he's been hard to feed).

It is clearly marked as Gluten-Free, Wheat-Free, Nut-free (great) and also clearly states that it contains nothing artificial. Silly me, I didn't read the label and see that it was Maple FLAVOURED syrup, not the pure stuff. What followed was a total regression in his behaviour: 2 hours of hell. Behaviours that hadn't manifested themselves for the past month suddenly reappeared including, stripping off his clothes (4 times in 30 minutes), drawing on walls, climbing up bookshelves/kitchen benches. Before diet modification this behaviour would have been done separately ( ie we'd have a day or week of stripping off, then maybe a day of drawing on walls, with some climbing thrown in another day) so it was very rare for all these behaviours to appear all together, and in such a short period of time.

Once I realized there was a reaction, I read the box properly (yes, I know I should have done it beforehand), and noticed that it included Butterscotch as an ingredient (under the heading Nature Identical). It's a mistake I won't be making again - Maria by email. (Freedom Foods responded that they are working to replace this flavour with a nature-identical flavour within 6 months, which might be failsafe)

I am single mother with 4 kids and am finding it very hard to find free information on an additive free diet for my 3 yr old that I was told was hyperactive by a paediatrician. You would think after paying the doctor more than $250 dollars he would give you more information than 'eliminate additives', but everyone is after money. What about the kids that are suffering from these problems and the family problems they are creating, why is it no one in today's society can do anything to help without wanting to be paid an arm and a leg for it. Sorry to go on but I am finding it very hard and frustrating to get information that can help. PS Thank you for your Failsafe Booklet. – by email, Melissa

I thought you may be interested in the list of ingredients to be found in the Tony Ferguson "healthy and nourishing" weight loss product. Everyone who has lost kilos purports to be vital, energetic and generally full of the joys of Spring.

It didn't occur to me to scan the ingredients (which I do in ALL food products before buying) as I naively thought when he said "healthy and nutritious" that it was true. It was only when I kept becoming hugely bloated with griping abdominal pains, plus an extremely internally inflamed and painful leg (out of the blue), that I decided to check the ingredients and found - shock horror - Flavour Enhancer 621 (MSG of course!). When I had the leg checked out by my doctor, she said the internal inflammation could have indeed been an allergic response to something - Victoria, NZ

I started using Tony Ferguson (weight loss meal replacement) shakes last year and managed to lose 10 kg. Three months later I started using the soups as well. Around that time I developed a painful and desperately itchy rash mainly on my leg and sometimes it would spread to other parts of my body. My doctor gave me steroid cream and I didn't realise the cause of the rash until I heard you speak. When I looked at the packets, the soups I had been eating all contained flavour enhancers you talked about (621, 627, 631, 635). When I stopped eating them the rash went away. - Marian, NSW

I didn't realise that my two year old's frequent tantrums, inconsolable crying and inability to listen to instructions were due to food until our local supermarket ran out of Zach's favourite flavoured rice cakes. He used to eat those ricecakes every day for morning tea. When the ricecakes went off the shelf and he wasn't eating them, you'd tell him to stop and he would stop, you'd say no and he'd accept it- he wouldn't have a meltdown or a tantrum. He was also vomiting five nights out of seven and we didn't know why but when we cut out salicylates and glutamates, that stopped too. The culprits for Zach turned out to be flavour enhancers (621, 627, 631, 635) and fruit such as grapes and strawberries. - Kim, NSW

Last night I made a beef casserole which I now realise was probably very high in salicylates. There were no additives but I used a base of one tablespoon of tomato paste and about a tablespoon of fresh herbs from my garden and about 100mls of red wine, cornflour and just carrots and celery with gravy beef. Of this casserole my son would have had about two tablespoons (with some basmati rice). I wasn't sure if this quantity would be is sufficient to cause a behavioural reaction but within about one hour my food sensitive son was headbutting my husband and just couldn't calm down. My youngest son who ate the same quantity had zero reaction. – Courtney, by email

In around Oct last year, my 8 year old son, who is usually dry at night, started wetting his bed. He wet it every night for over 2 months. During this same time, his twin sister – who has never been dry at night, went from wetting her bed once a night to wetting at least twice a night. Even their 3 year old brother, who was occasionally dry, stopped having any dry nights.

The first think I started to think about was what had changed in our diet, since it was something affecting all 3 of them. I was Googling away when I happened to come across your Food Intolerance Network site and the link between Calcium Propionate and bedwetting. I found a "what's in your bread" website (since we were in the car on a journey up to Scotland, and not at home) and discovered that the "healthy", Warburtons Seeded Batch Loaf which we had switched to about 2 months before contains 282. I have not used it, or any of the bagels or wraps (all with 282) we used to buy again and my son has not wet his bed once since then – apart from last Monday night. The children went back to school this week and go to an after school club on Mondays where they get sandwiches for a snack. I called the manager to find out what kind of bread they use – and sure enough, it is a long-life bread with 282. I explained all the dangers of this particular preservative to her and she was most willing to switch to a safer brand in future! – Michelle, UK

We are introducing challenges but I'm not sure how to do it properly. We tried grapes last week and all seemed fine, then we tried a small handful of raisins this week and he's gone loopy again. Now I don't know what to try next and have lost confidence because I'd rather he didn't go off the failsafe, because he's so obnoxious, but I know he wants to widen his diet ... update one week later ... The RPAH salicylate challenge showed he reacts to salicylates! - we were sailing along at first but then hit a wall where his behaviour went downhill rapidly. – Denise by email

I am new to food intolerance but I have had my 4 yo son to the doctors in the past (and just been fobbed off) for pains in his legs, tummy aches, stuffy nose and mouth-breathing. He grinds his teeth at night, over-reacts to situations with anger or tears, does not seem to sleep much and complains about loud noises.

... One month later ... We have been to a dietician from the list you sent. It was great advice as it really smooths the way when having to deal with doctors and other govt. agencies - they are now very accommodating. We are into day five and I have already noticed the voice volume decrease and far less fighting between the two children. So thank you to you and everyone who contributes info, it saves so much time and mistakes. - Anna, NZ

 

 I just wanted to say thanks for your book. It's a really positive and helpful tool - by the details of the stories ...  My dad always say "your mother was ahead of her time" as she had me on the feingold diet when I was about 2-13. So I have always been very conscious of colours, flavours, additives etc with what I feed my kids, I can pick it when my 7 yo son has had anything that's affecting him. We tried an almost vegan (we were starving so I added eggs and fish) diet for 2 weeks, and the only thing I could work out is berries make him nuts … And pizza, even homemade (I now know high high salicylates). All other crap has already been eliminated, so we have decided to try the rpah diet. It's been just over a week, and we are not seeing a great deal of change .... 5 DAYS LATER ... The further I got into your book, the more questions were answered! And I've definitely learnt heaps! I have decided to persevere with the diet. Oh my goodness, the vast majority of whining seems to have disappeared, and too what appeared to be grumpy hypoglycemia! Next on my list is concentration at school ...  I did decide to remove dairy which I feel may have added to the positive result. His handwriting is comparatively much better already (and attitude along with doing it).  I now actually looking forward to school to see we can see real progress!   - Kath, by email

We have just started the diet today and my normal pain in the bum whingy 7 year old boy is already improved in half a day! I know its early days, but so far so good! ... Update one month later .... My son is doing well, doesn't seem to have reacted to anything however preservatives eliminated from his diet made a huge huge difference.

My daughter only did the diet as did I to help her brother. She has had a major reaction to salicylates, had major ear troubles when they were reintroduced. Funny as she is asthmatic and has had frequent colds and flu and major ear troubles for a long time - salicylates may have been the problem all along. - Sharon, by email

I have been working on failsafe eating with my four year old daughter who has extreme behavioral issues - tantrums, oppositional, aggression, etc. We completed the elimination phase, and have been doing some trials. Her behavior improved greatly during the elimination phase, however, on each of the trials the old behaviors have returned. She seems to be extremely sensitive. There are very few food left on my list that are okay for her. Her diet consists mainly of rice, rice milk, chicken, white potatoes, green beans, pears ... She goes to preschool and I pack her snacks and meals for her. It is difficult to do it on such a limited diet. Since we are in the US, the products that are on your failsafe list are not available to us. Our sanity is more important than a varied diet for her - but right now I feel frustrated. I have your book, "Fed Up" and that is what helped me get started with the elimination diet but I don't know how to find a dietician that would support the failsafe diet. Many dieticians here in the US don't believe in foods affecting behavior. (We recommended joining the failsafeUSA group)

Update three months later ... My daughter is like a different person on this diet - thank you so much for all you have done to share your information. She is a much happier person, and our lives no longer revolve around tantrums. Not to mention that her skin has improved a great deal and she is no longer constantly itchy. I have also been able to add more safe items to her diet. I am glad that you have been able to spread the word in schools in Australia and wish that the same thing could be done here. – Elise USA, by email

I emailed you some time ago about my chronic migraines. After having been to GPs, specialists, naturopaths, etc, I went to a dietitian. She gave me the booklet produced by the Royal Prince Alfred Allergy unit. I also purchased your book, "Fed Up". This letter is to give you an update because it has good success.

Until recently I had no relief from those persistent migraines and was getting really desperate - again! Yet I knew there was something I was eating that did not like me - or rather my system did not like it. I was concerned my protein intake was a bit low, and not being into lentils, and because they are listed in the booklet as low in amines and salicylates, I decided to try some red lentils boiled, and had a nice helping one afternoon for lunch. That night - 12.15am - I experienced a most horrific headache in my brain like the blood vessels wanted to burst! Knowing that the migraine medication works on blood vessels I had an imigran which helped settle the reaction somewhat. If it had got any worse I would've phoned for an ambulance because it was a bit frightening.

Later that week when I had recovered from the after-effects of what I knew to be the lentils, I went looking on the internet. Anyway to cut a long story short, to my amazement, the low or restricted tyramine diet for persons on MAOI drugs lists lentils and soy as high in tyramine*. Many years ago, my doctor prescribed a MAOI for a few months to help me over a bit of a rough patch, and I was told to not have "cheese, vegemite and broad beans". Anyway, being a lover of cheeses at the time, and being deprived of one of my favourite foods for some weeks, I thought, "hey! surely a little half-inch cube wouldn't hurt....". Well I'll tell you now that it did hurt!!! That evening I had the most horrific and frightening experience in the brain that truly felt like every blood vessel in the brain was going to explode with blood all over the ceiling. I was so ill and frightened. The experience I had after the lentils was the exact type I had with the cheese while taking the MAOI.

Now I was onto something ... I went through the foods that I had been consuming regularly over these past years and saw that the full cream powdered milk contains emulsifier from soy!!! The only time I ever ate soy beans was about 15 years ago, and I was violently ill after eating them. Didn't think much about it at the time, just didn't like the soy flavour and even now the smell of things like soy turn me off. I have the same reaction to chick peas. After reading the soy stories on your website (in particular [314] and [702] - what they have said - discovered by personal experience - I can confirm by my own experience.) It certainly helps to unravel the mystery of my on-going migraines. And I am not surprised that my migraines were aggravated when I had Sustagen or Ensure as supplements - they contain soy derivatives. I even checked out baby food formulas and they too contain soy.

The multi-vitamin/mineral supplement I have been taking also contains soy - the vitamin E is derived from soy. The company was really understanding when I explained the situation, and very kindly refunded me the money. The soy was not listed as an ingredient, because the vitamin was derived form it.

Since stopping having powdered milk (I used it to bolster up my normal milk, most of the time) I have not had a migraine headache from foods.

I am aware that I still am prone to migraines from environmental factors - odours, (funnily enough the odours that trigger an instant migraine are those foods high in amines, like strong tomatoes, spicy foods, femented foods etc), stormy weather, sensory overload (flashing lights, etc).

This is a great find for me. To experience a head that does not wake up every morning in "migraine mode", and have confidence in eating foods that are low in amines, I can be a lot more relaxed about eating. It has given me so much relief - almost unbelievable!!! - Patricia, NSW (* RPAH researchers do not agree that legumes are high in amines and nor do the majority of amine sensitive failsafers. All legumes are listed as low in amines except broad beans which are very high; however lentils and other legumes do contain other natural chemicals that could cause problems e.g. purines which can be associated with gout – Sue)

My daughter Rose is 7 years old. Since she was about 18 months old, we had problems with her waking every night with nightmares. Although her behaviour was not exceptionally good, it was not an issue at the time. When Rose started 4 year old kinder we started to notice that her eczema was getting quite bad and that it was not responding to any remedies that we tried. We saw doctors who just said that she might grow out of it. When Rose started school, there was a huge turning point. Her behaviour I would say was ADHD behaviour – tantrums, itching all over her body, stomach pains, still having nightmares, oppositional defiance and the list goes on, and the worst of all, severe anxiety with me leaving her. Rose's anxiety was so bad that she had to be physically removed from me when I left her at school, even punching and kicking at the teachers. Rose would not leave me at all, even on weekends.

With trying to counteract the behaviour part, I stopped all additives and preservatives. Rose's behaviour became so much better. We noticed that her sleep, and feelings of anxiety did not improve.

After reading your book, I made an appointment with a dietician and started on the Elimination Diet. Everything started to improve with Rose, in leaps and bounds, except the anxiety. With many trials, I have now established that Rose is very sensitive to SALICYLATES.

I now have a daughter who is very confident, well mannered, has no problems sleeping, no eczema, nor does she have anxiety.

I can only say that without your help, I had no idea where to turn. The professional field let me down big time.

We have been doing this for about 12 months and I am a true advocate of Failsafe. I want to introduce this to our school. When my daughter was in Prep we had a lot to do with the Principal, as Rose spent a lot of time in her office, as they believed she was being naughty. Last year I was determined to prove them wrong by showing them that food did contribute to children's behaviour. I did often say that it was the food Rose was eating, but I know they did not believe me. I can now truly say that Rose's behaviour was as a result of the food, its additives and preservatives, as she is a different student. Well mannered, high achiever, leader material. Thank you. - Sharon, Vic

Thought I'd let you know about a small win I've had here in this town. I was disappointed to learn when we moved here 18 months ago that all the products of the one small bakery contained preservatives. I just brought my bread from the supermarket or made it myself but at the beginning of this year on a total whim I decided to telephone the bakery. As luck would have it one of the owners answered (it is a family run business and has been for generations and the father, who is close to retirement, answered the phone). I explained my concerns about preservatives and asked if he happened to have any plans to remove them from their products. To be honest I expected to get a thanks for calling and never hear back from them but he took my details and asked me a few questions and went straight to his computer apparently and googled preservatives and children. As you would know he found a lot of information and called me back a couple of days later to say they would be removing all preservatives from their products as of that day. He told me he had no idea of the effects of preservatives.

The best thing is that all three of the schools here buy their bread from that bakery to support local business, so now all the schools are getting preservative-free bread for the kiddies. One less thing for my kids to be singled out as different as before I was taking in their own bread for lunch orders - Korina by email.

I thought I'd share with you a recent experience I had with my son, when overnight my gorgeous, fun loving, cheeky little man turned into an absolute monster, having tantrums left right and centre. Not his usual 2 year old tantrums but full-on aggressive, angry and really scary tantrums, it was like the devil had taken him over. He was really irritable, he couldn't sit still and wasn't listening to anything I said, he was throwing things all the time and just being grumpy, angry and outright horrible. After a few days of this I started to think that is was something more than the usual 'milestone' / wonderweek stuff, it was really disturbing, not to mention very difficult to deal with. Anyway to cut a long story short I started to think if he was eating anything that he didn't normally eat that might have caused him to behave like this. I remember that I had just changed the brand and type of cracker that he eats for his snack. On closer investigation of the ingredients of this biscuit and a bit of google work (thanks to the Fed Up website) we found it had vegetable oil with antioxidant 319 in it, which can cause irritability, learning difficulties and children's behavioural problems! Bingo! That had to be it; it was the only thing that we could think of that was new in his life that could make him change so dramatically, so quickly. So those biscuits (Ritz sticks for your information) went straight in the bin and my lovely little boy returned, just like that - his nice behaviour returned as quickly as the horrible behaviour arrived. I couldn't quite believe that something so small could have such a big impact. It was amazing and very disturbing.

Anyway after this experience I became intrigued in food additives and frantically began reading and researching and quite frankly I couldn't quite believe what I was reading. I have always been pretty careful with the food I feed my kids and try to have minimal or no processed food in the house but I am disturbed to find that these antioxidant additives (and other nasty additives) are added to things that you would think would be pretty harmless and healthy, like crackers, bread, yoghurt and butter/margarine.

I've never really been keen on being obsessed with reading food labels but this experience was so powerful that for the sake of the health and wellbeing of our family we have now gone additive free and it is hard to describe just how much it has changed our lives. Generally speaking things are better all round, we're less irritable, there's less niggling and nagging, and less frustration and shouting, our household is so much calmer and happier. Also I have noticed that both of my boys skin has improved dramatically, they have always suffered from eczema, not badly but enough for it to noticeable, three weeks into being additive free it has almost cleared up completely, it certainly can't be a coincidence!!!

Even though it was a terrible week to live through in a way I am so happy that we had the 319 experience so that our eyes were opened up to the world of additives and just how powerful they can be. A big thank you to Sue and all her passionate helpers for making this information available and for all your hard work in spreading the word, you really have changed our lives (for the better!) – Anna from SA by email.

'Thanks for all the work you've done on food additives and the effects they have on people. Without it, I would never have tracked down the weird heart palpitations and early morning panic attacks I have after eating ribonucleotides - Lynne by email.

Your books, dvd, etc were recommended by a local pediatrician after we spent a night in hospital with our 3 year old who was suffering from a migraine - no migraines since we eliminated oranges and chocolate. We also do our best to eliminate, where possible all the numbers, especially the flavour enhancers. - Michael, NSW

Thanks ever so much for giving me back the joy of having two children – I had lost it for a while I'm afraid due to my 5 year old's horrendous behaviour. He has been failsafe for a month now and it's been great. – Denise, by email

Thank you for your fantastic books, they have "cured" me after 40 years of chronic pain. Yay! 40 years sounds like I am old, but I am only just 46 so you can imagine how wonderful and life changing this is for me :) It turns out that for me "dairy" (not lactose) causes constipation and salicylates cause stomach pain and severe bloating and distention. So I am avoiding all dairy and minimising salicylates. - Chris, by email

I know a 78 yr old who has suffered terribly with chronic sinus for more than 40 years and since eliminating dairy is much, much better. Keep in mind his trusted doctor prescribed seven courses of antibiotics leading up to this and when the good doctor was informed that my friend was going to eliminate some foods his reply was 'yes, that's a good idea' !! - Michael by email.

We attended your talk a few months back and it has changed our lives. We have a six year old son who suffers from Aspergers and ADHD and since going additive-free his behaviour is much improved, his social skills are coming along in leaps and bounds and his fits of rage are completely gone.- Heather by email.

Two years ago I was having behavioural issues with my 4 year old girl and took out the artificial colours, flavours and preservatives on your list which solved most of our issues but about every two weeks we would see a flare up and holidays were particularly painful. About 6 weeks ago we began the Royal Prince Alfred Hospital Elimination Diet - I fully expected that she would react to salicylates and amines etc but here was the outcome......

Weeks 1 & 2 of a low salicylate diet - we have a beautiful happy child, she is in kindy and her teachers reported that they saw a drastic change in her - the happiest she has been all year, not getting frustrated with her friends, wants to help and participate, is laughing and happy.

Weeks 3,4 & 5 saw us add in high salicylates and then amines and then glutamates - no reaction still a beautiful child.....

Week 6 - added a soy challenge - 2 tablespoons of soy sauce Saturday night and a small handful of choc chips on Sunday morning in muffins (soy lecithin), by lunchtime she was having tantrums over ridiculous things, she was sulky, teary and generally unhappy. We also saw this same reaction half way through week 3 and 4 at her sisters birthday as I unknowingly used white chocolate in her birthday cake (soy lecithin)....

So the outcome was she has to have a diet that doesn't contain artificial colours/flavours or preservatives, soy or soy derivatives. I can't believe that for the last two years soy has been the culprit all along - the poor kid!! The occasional treat of chocolate and plain Arnotts biscuits were just topping her up so that we saw it at weird times, holidays worse as usually they get more treats on holidays! Our dietician was really shocked that a protein could cause that reaction - Tiffany by email

I have started your diet with one of my children who has had numerous problems and after one week of just cutting back (not the full elimination diet) I had his teacher approaching me telling me how good he had been and how his attention had improved. Needless to say I have now started doing the same with all my other children and would like to say how great it is all going. I approached a mum at school who pointed me in your direction after the success she has had with her adhd child so yes word of mouth really does work.

I help run a support group for Velocardiofacial Syndrome also known as Deletion 22q11. Our VCFS kids have a very high incidence of behavioral and inattention issues and I believe an introduction to your diet could greatly benefit many of our members. - Melinda, by email

Before starting the diet, our 6 yo ADHD son had the 40 foods blood test and it showed wheat to be a 4 which is the highest, so I put him on wheat-free bread. The dietitian I saw about the elimination diet said that the blood test is not a credible way of testing for food intolerances and is reportedly listed on a web list of dodgy allergy tests by the ASCIA (The Australasian Society of Clinical Immunology and Allergy). The blood test only shows up food that is currently in the child's system, which makes sense, and the level of severity as revealed by the blood test is also affected by how much of that food the child has been eating. Intolerance is very strongly related to dose, unlike allergy. So a child could have a major intolerance towards amines for example, but if he has not eaten any recently, it won't show up as a problem on the results. Correspondingly, my son's 4 rating for wheat could be indicative of the fact that he was eating a lot of it rather than his sensitivity towards it. I'm not a food scientist, but this does make sense to me.

According to our dietitian, the only way to conclude if a child is intolerant or not, is to do the elimination diet for a few weeks and then introduce challenges systematically. In short, she suggested our son do a bread challenge with Bakers Delight or Brumby's bread which does not use any vinegar or whey powder. HE PASSED!!! He is able to tolerate a sandwich or a bread roll for lunch, and is better on this than he was on the wheat free bread. He feels more normal , and it's a lot cheaper too. Our son is still free of additives and low in salicylates, amines and glutamates, and we continue to see astounding improvement, which is confirmed by his teachers, extended family and others who work with him. He is calmer, more thoughtful, and you can actually have a 2-way conversation with him now. - by email, SA

I just wanted to tell you how pleased I am to have found this diet. My nutritionist put me onto it recently. I had a bad bout of bacterial pneumonia 3 years ago and then developed Chronic Fatigue. I have tried soooo many things that haven't worked, until now. I am amazed at the change. I am now trying my children with it too. I just finished reading your "Fed Up" book and was amazed at the great results in so many situations. Thank you so much for sharing your experiences and knowledge with so many, and for all the help. - Jillian, by email

My husband was one of the first children to go on the Feingold diet in Australia in 1973. His parents still talk about the amazing improvements they saw although on that diet he was allowed pineapple, dates, cauliflower and mushrooms. I think some of the improvement was that they had a local butcher, they made their own bread, and they never ate out because there was no eating out then. They had a wonderful local chemist who made them toothpaste.

Because of that you would have thought we would twig much earlier to our son but we didn't. We avoided tomato and orange a lot because from when he first went on solids he broke out in a rash and did again a few times so we just didn't eat them. But he got worse over time. At 15 months he would run up our very steep street and then do 4 blocks of the neighbourhood, with us trying to keep up. I'm now pretty sure that was the kick he was getting from the salicylates. His absolute favourite was apricot teddies. We used to only let him have 1 or 2 every fortnight but that, along with all the other high foods kept him like a little tornado.

My husband's mum told us about salicylates when we went away on a holiday. His eczema got really bad and we thought it must be from the chlorine when we went swimming. She suggested fish oil tablets so we got some for kids but they also had high salicylates. He just went hyper in no time. He kept asking for more of them and that night he screamed and screamed all night and kept scratching worse than he ever had. He had welts all over him in the morning.

We tried cutting out just salicylates and saw some improvement but it just got bad again. Then I went hunting on the internet, found your book and we talked with our doctor about doing the RPA elimination diet. The change was noticeable, the biggest being less extreme mood swings and going to sleep at night. Bedtime used to be a 2 hour stint every night and then he would collapse in exhaustion.

We have seen head banging on two occasions, well after we started the diet. My sister gave him some yoghurt by mistake with Annatto 160b in it and he was a very loud very angry little boy. He didn't really have tantrums as such but did quite a bit of banging his head, wouldn't let us near him. He didn't want to be touched at all and kept threatening his little brother with all kinds of nasty things. A lot of yelling. He did not sleep at all well that night needless to say. It was the same the second time. – Susan, by email (Please report similar annatto 160b reactions to This email address is being protected from spambots. You need JavaScript enabled to view it.)

I wrote you 4 years back (story [524]), and I just thought I should write in with an update. If you'll recall I had suffered from additive-induced asthma from the age of 10 (I'm now 37). It took a couple of decades to finally realise that artificial food additives were THE cause of my condition.

As a heads-up for those still "lost" and wondering if there is a cure, I strongly urge you to give up what I call the "trifecta" (i.e. artificial colours, flavours and preservatives). This covers most of the main culprits which cause most peoples' asthmatic conditions (in my opinion).

After this, I also discovered I was highly sensitive to "vegetable gums" (that friendly sounding additive in many bread products: This includes Gum Arabic and the so-called 'safe' one, Xanthan Gum). The symptoms these two nasty additives create in sensitive people is a tight chest, light-headedness and a general feeling of not being able to breathe. (I literally almost died one night a while back, when I woke up gasping for air at 3am, after having consumed bread with Xanthan Gum in it over a period of four days straight...)

Well, there it is guys. Thanks mainly to your wonderful website I have gone from 20 puffs a day to not touching Ventolin or any medication for over a year now. Not a single time! I honestly never thought I would reach this stage. It's so sad to think that if we - as a society - just stuck to "whole" foods, leaving out ALL artificial additives, many, MANY health issues would be non-existent. Things are getting better, thanks to websites like yours, Sue, but it's still too slow. Thank you so much for all the valuable things you do and God Bless you all! - Mark, by email

The main problem that I have had to deal with for over 30 years is the use of sulfite preservatives. I have had at least 5 instances of anaphylaxis, with three events that landed me in the emergency room. I do not have asthma, nor am I particularly abnormally allergy-prone (other than seasonal hay fever, and the few foods and medications of which I am intolerant), but sulfites in wines give me excruciating 2-3 day migraines, and the amount used on non-fresh shrimp has given me several life-threatening encounters that required 6+ hours under the care of a number of very, VERY uneasy emergency room doctors. – Geoffrey by email, USA

I had already been failsafe for about ten years when my menopausal symptoms started - fluctuating breast tenderness followed by symptoms such as restless legs and then hot flushes. As a result of doing the elimination diet with challenges I already knew that I was sensitive to salicylates, amines, additives and A1 dairy foods, so tightening up on failsafe eating dealt with irritability and restless legs, just as it had previously with premenstrual symptoms. But for hot flushes, I found that wasn't enough. I had already noticed that low fat eating (VLF very Low Fat) dealt with period pain and it turned out the be the answer for hot flushes as well - they stopped within days of ditching the fat.

See how unsuspected food intolerances affected one family in Australia and what answers they found  http://youtu.be/D0c9ZG64UwQ

Links to story [1066]

We have an escalation of my daughter's behaviour since an increase in Maccas and Hungry Jacks (thanks to hubby which I am not happy about). She is pulling out her hair and eye lashes also but I am not convinced it is strictly OCD.

When my daughter was 12 months old she had a head banging reaction to annatto in yoghurt. The next week she had another episode of screaming, tantrums and banging her head repeatedly on the metal frame of her bed. The very next day my mum saw a story on ACA or similar program with yourself mentioned, and thought the 4 year old kids on the segment sounded like what we had with our 12 month old ... so we looked up your website. I looked back at food she ate and I had given her a kids Heinz apricot bar and sure enough it had annatto too. This was all I needed to prompt me to look at what she, and we, were actually eating!

My daughter is now 6 1/2 and we still have the occasional uncontrollable outburst and know she's had something. We actually had an incident last weekend with her and the wicked 160b. She was at a friend's place Saturday night and they thought they were doing the right thing when they gave her jelly snakes 'preservative free, no artificial colours'. I didn't know about the snakes but Sunday saw her at her worst. She woke in a rage and was lashing out, hitting, biting, screaming, indecisive about trivial little things and completely and utterly beside herself. When in this state (the worst lasts for about 4-6 hours) she cannot control any aspect of her being. She even goes as far as plucking all her eyelashes and eyebrows out with her fingers (trichotillomania) if left alone. I went to the friend's house and began quizzing them! A peek at the ingredients on the snakes proved me right yet again when I saw the number 160b. (fyi they were Aldi brand).

After an annatto reaction is somewhat over, she 'sleeps it off' and will often then sleep up to 15 hours (say 6pm til 9am!!). She had a horrific day and finally fell asleep at 11pm Sunday night. She slept it off and woke close to 10.30am Monday morning. She was fine Monday and Tuesday ... But Wednesday evening saw her showing (relatively mild this time) annatto signs again. I asked her about school (started back on Tuesday) and she was hesitant to tell me her little friend had bought a lemonade 'spider'. I went to the canteen today and sure enough... Annatto in the ice cream!!!!

I'd also be willing to bet my husband reacts to annatto... he gets very moody at times and also his sleep patterns are all over the place. Some nights he will be up all night on the computer and just not tired, then other days/nights he too will sleep for 15+ hours. - Skye, NSW

I have been on anti-depressants and a mood stabiliser in the past. However, if I stick to failsafe eating, there is no problem with any of that stuff - see story [963].

If I cheat, boy do I pay the price!! The first sign of reaction is hair pulling, followed very rapidly with other reactions. By the next day, I feel absolutely horrid. I don't want to live, I don't even want to see anyone, including family. I feel like I have the worst hangover ever. I actually feel sick enough to be in hospital. My husband and adult daughter know straight away if I've cheated.

It still blows my mind to think that food can have such an impact on sensitive individuals. It has happened every time I've cheated, so I definitely know it's a food reaction. It's also like an addiction. If I get a taste of prohibited foods, I can't stop myself. All I can think about is the wrong foods, even though I know how rotten I will feel. My system is so sensitive, I will know if a food smells strong and I feel sick from the aroma, I can't eat it. I have tried soda bi-carb in water as an antidote. It works sometimes and I will have bi-carb baths. The last resort is to water fast. By the next day I feel myself again. Liz, NSW

See more at the Fedup Roadshow 2011 report

‘I had severe migraines all my life. Then I came to a talk eight years ago – as a stall worker, not to learn anything. During the evening, I realised that my migraines were due to amines in my favourite foods - chocolate, cheese, avocado and cheesecake. Now I avoid those and I don’t have migraines any more’.

'The reason I came is that my neighbour has a Down syndrome kid and the diet has made a huge difference, he is much easier to manage'

The mother of a 6 year old who reacts to salicylates said, 'when he eats salicylates, he can't control his emotions and cries all the time'.

Audiences laugh when I tell them ADHD medication makes children better able to focus on being oppositional, but that’s what one family was there for: 'Ritalin makes him focus, he annoys the hell out of other people and doesn't give a s..t', they said, requesting a diet for oppositional defiance.

 'We're here about our 9 yo son with oppositional defiance, we've already realised tomato sauce is probably bad, he lives on it. Also wraps, he eats those all the time. We'll be checking the labels when we get home.'

'I failed Tresillian', said one mother, and we heard the same about other baby management centres. Typically, there were extreme sleeping patterns – e.g. sleeping for 30 minutes at a time - with reflux, breastfeeding difficulty or other problems. Yet none of the mothers who spoke to us were warned about salicylate intolerance. This breastfeeding mother was eating a diet exceptionally high in salicylates through foods and supplements.

‘We’ve been on the GFCF diet since October – it has helped a bit but over the last 2 weeks he has been really terrible again – angry and throwing his train set around the room’, said the mother of a 4 yo autistic.  We worked out that Soylife vanilla yoghurt was introduced 2 weeks ago. This yoghurt (but not Soygurt brand) contain annatto 160b. (A US study earlier this year showed that the GFCF diet alone does not work for autism and this is just one example why, you have to avoid a lot more than just gluten and casein).

‘I thought sultanas were okay as long as they are sulphite free’, said the ADHD mother of an ADHD son. Wrong! Sultanas are one of the worst foods for a child with behavioural issues, and diet won’t work if you make daily mistakes. I sometimes wonder if the best use of Ritalin could be for parents with ADHD so they are better able to be focus on doing the diet.

‘I’m too embarrassed to tell parents that their children have eaten instant mashed potato’ said one child care worker at another talk. ‘If they ask, I just say they’ve eaten potatoes.’ Yet 'instant mashed potatoes'  may contain sulphite preservatives and MSG type flavours – this is important information for parents trying to work out why their children have problems, for example, from story [395] about stuttering and speech difficulties.

‘My daughter reacted to annatto in fish fingers with head banging, rocking and making whoop whoop silly noises - this lasted for about three days, every time she tried to concentrate, the headbanging, rocking and noises would start up again' said  the mother of a 6 year old

‘We haven't switched toothpaste, but most of it goes in the sink, would it affect him?’ asked the mother of a 6 yo for whom ‘the diet is working but not fully’.  YES. Especially as they were using a children's toothpaste with artificial colour (it can be listed as a CI number or the American system, e.g. red 40). See alternatives http://fedup.com.au/information/shopping-list/personal-medications-and-supplements

‘My son has severe eczema’, said a mother, showing me a phone photo of her 3 year old’s terrible rash. What does he eat? High salicylate products such as honey flavoured cereal, strawberry jam and strawberry yoghurts … we hear over and over again that salicylates are a major contributor to eczema, yet many mothers do not know about this.

‘Salicylates and preservatives including sulphites - in dried apricots - turned out to be the major problems for our son’s severe eczema’, said one mother.

‘Even though tests showed my daughter had grown out of her egg allergy, her eczema improved when we took egg out of her diet again, as well as salicylates and additives,’ another said.


‘My son has been on the FODMAPs diet for 4 months without any improvement. The dietitian put him on it’, said the mother of a child with behaviour and irritable bowel symptoms. The FODMAPs diet is only intended for IB symptoms, not for behaviour or other symptoms of food intolerance and doesn’t work for everyone. For a dietitian who will supervise the RPA diet, ask for our list (This email address is being protected from spambots. You need JavaScript enabled to view it.)

‘I came to your talk a few years ago and switched to preservative free bread – we saw an enormous improvement in our son’s behaviour. Then we went ahead and removed more additives and natural food chemicals, and saw even more changes,’ said one mother.

 'My asthma has gone since we started the diet' said one mother. 'It started when I finished my nursing degree, moved out of home and started buying processed foods. That was 13 years ago, and I've spent the last five years on preventers. I was able to give up preventers one week into failsafe.'

'We've been following your books for 3 years and it saved our lives' said one couple. 'I know others say that, but it did'.

'We have been on our diet now for six weeks' said a mother in the front row. 'It took my 2.5 yo daughter a full 3 weeks to improve. (I was glad you said in your book that some parents get despondent in the second week). It had got to the stage where I loved her but I didn't like her and neither of us were enjoying our day. Now she is more compassionate, sympathetic, helpful, cooperative, listens to instructions and follows them, and stops when asked.'

'We read your website and only made 3 changes – took out Vegemite, margarine, and switched to A2 milk. And all our son's problems went away. We are going to pursue it further - but I still find it hard to believe food can have such a huge effect.' This father had been referred to our website by his young son's paediatrician for possible autistic symptoms, and told his story with utter amazement

'Thank you, I am blown away by your information. My son just loves his fruit' - mother of an 11 yo with encopresis who had been avoiding additives but didn't realise about salicylates.

'When we read Sue's book we thought she must have had a hidden camera in our house because she was describing our family so well' – comment from a mother.

‘My 6 yo son has dental enamel problems. The dentist said it was very rare’, one mother said. Dental enamel issues in a young child can be due to gluten intolerance. We have received 3 reports of this problem in children with coeliac relatives. Research shows that relatives of coeliacs often do better on a gluten free diet. http://www.everydayhealth.com/celiac-disease/understanding/dental-enamel-defects.aspx .  It is now thought that gluten intolerance may affect one person in 100.

‘I remember our son about 18mths to 2yrs thumping his head on the ground or wall to the extent that he would end up with bruising. At the time his favourite food was Shapes flavoured crackers. It wasn’t until the first time we saw your talk in which you showed us what had the head banging additive in it that we realised what was happening, and they have never been seen in our house again. – from a failsafe father

‘I’m a food nazi. My kids aren’t allowed any sugar but when I look at the screen, that’s what I feed them – flavoured Rice Wheels’, said one mother whose son has suspected ADHD. Many mothers think rice based snacks are healthy because they are in the health food aisle. We recommend plain, unflavoured rice cakes and rice based snacks.

‘When my son was 18 months old he did headbutting for 6 months – he would do it on any surface, walls, floor, glass – and it was obvious he was really hurting himself. A friend told me to cut out ice cream - yes, it was Streets Blue Ribbon ice cream with annatto in it - and the head banging stopped,’ said one mother whose son still has behaviour problems. No one reacts to only one additive. If you have ever seen a food reaction, even once, it means there are many others you haven’t noticed.

‘In the 1960s, all pharmacists were compounding pharmacists’ said a retired pharmacist, ‘then the pharmaceutical companies took over’.  Medication free of nasty additives can be made by compounding pharmacists.  Of over 7000 pharmacists listed in the yellow pages, only 177 are compounding – they will usually take orders by phone and mail.

‘Could pesticides sprayed on a farm cause asthma in a salicylate-sensitive asthmatic?’ asked another  mother. Yes - pesticides can be yet another of the inhaled salicylates or other inhalants that can affect food sensitive children and adults.

‘Before going dairy free, my son had 30 ear infections including 4 in the last two months.  This has dropped to NONE in the four months since going dairy free.’ – mother of a 3 yo. Throughout the roadshow, we met many parents who were extremely reluctant to give up dairy foods.

‘When we lived on a farm, we ate our own fresh meat, grew our own vegies and didn’t eat a lot of fruit. After we moved to town, we soon realised it was easier to drive down to the shops and buy something for dinner. A lot of junk (and behavioural problems) have crept in. I’m going to pretend we are back on the farm and start cooking like that again,’ said one mother.

‘Your seminar was great.  I have had my 5 year old ADHD son on the diet now for 2.5 weeks. His tantrums that had been occurring nearly every day at school - kicking the teacher and often spitting and having to be carried to the office - have stopped, and  I believe that 160b in yoghurt has largely been the issue. He is now sitting and reading his reader in one go which for us is a MAJOR change. We have eliminated all additives, colours, and only have low salicylate and no amines or nitrates, we still have dairy and wheat. We had positive results by the end of week one with continuing improvement so plan to stick with the diet. We are attending the group you recommended.’

 

[1073] Some feedback from the Fedup Roadshow 2011 (September 2011)

It was great to have the opportunity to meet you at the Brisbane roadshow. It felt like I was meeting my all time favourite rock star. I was quite awe struck. Listening to you speak motivated me to keep my son going on the food plan.
 
After the presentation, I made an appointment to see the dietitian you recommended. It was a lengthy trip but well worth it. For the next month we are transitioning my son to a gluten and dairy free diet, increasing his protein and calcium intake (protein has been difficult as we are vegetarians) and stopping the soy products as well. I agreed to allow him to try some chicken (your suggestion) and white fish. As our dietitian pointed out, it's a trial. Some children improve, some remain the same but at the moment it's a question mark regarding my son's behaviour. We started the transition last Thursday and the Vitasoy Rice milk, added with a teaspoon of icing sugar (dietitan’s suggestion) has been a huge hit. Calcium intake no longer a problem.
 
To be completely honest I was hoping she would tell me the Amine/Salicylate dilemma was all rubbish so I could go back to living on Easy Street and feed my son all his favourite behaviour changing foods. When I asked her opinion she merely looked at me and asked what were my results from the challenges we had done. Aggressive, out of control behaviour with Amines and restless, silly behaviour from Salicylates. Not just my observations but also that of his Kindergarten (he is there for his second year). No more said really.
 
Thank you once again for all the effort you have put in regarding food intolerances. – Liz, Qld

My daughter cried a lot as a baby and suffered with severe asthma from a few months old.  When I sought a doctor's advice there was not much support with the excessive crying but she was prescribed medication to treat the asthma. The medication did relieve the breathing but it hyped her up and caused agitation.  At about the age of two I took her to a different doctor, she was really sick and he even considered that she may have Cystic Fibrosis due to the severity of the condition.
 
I breastfed and I now believe that breastfeeding may not have been the best option because our diet often consisted of tomato based pasta dishes, and also fruit and vegetables that I now know have a high salicylate content, which of course would have filtered to the baby.
 
As the years passed we were dealing with agitation, temper outbursts and ADHD-type behaviours although I never considered that she suffered from this condition and as a mother I always felt compassion and concern, and was desperate to find out what was causing this behaviour and severe agitation in this beautiful little girl. On the rare occasions that I would address the problem with a doctor in many ways I was relieved that a diagnosis was not offered because I did not want her on medications that are usually prescribed.
 
When she was 10 years of age I decided I needed to address this once again. Here is what turned out to be the answer:
 
I had made a doctor’s appointment to have one last go at getting to the bottom of this. I once again hoped the doctor did not suggest medication because even though I wanted help I really did not feel comfortable going down this road.

I was finishing my preparation to leave for the appointment. I had the radio and SUE DENGATE came on at that moment to speak about food allergies and intolerances. I could not believe it, I hadn't heard of Sue before but I thought "I have to listen to this", so I quickly turned the volume. Sue mentioned various additives and preservatives which affect many people but I still did not totally think that was what it was for my daughter. Then Sue mentioned SALICYLATES, immediately I found a pen and wrote it down (I had never heard of it before). I listened to the remainder of the radio presentation and then walked out the door.
 
The doctor still really did not have much to offer. So I asked him "have you ever heard of Salicylates?" He said he had, so I further asked he had any lists of the foods that contain salicylates which fortunately he did and gave it to me.
 
Reading about salicylates and learning where they are helped me to eliminate the foods from her diet and this was the answer. Life soon improved for everyone especially our daughter, including no more asthma. This is my story and I wish to express my gratitude and thanks to Sue for her wonderful work. – Lisa, SA

I came to your talk last year for my 8 year old son who was a little rascal and full on at school. We started the diet as a family for him-  and his problem turned out to be artificial colours and some other additives.

But the real surprise was my 12 year old son who was suffering from severe depression and had just started with a psychologist. He started slowly getting better and at first we thought the psychologist was helping but it was because we had changed our diet. His severe depression turned out to be due to amines and is gone completely on the diet. He is now a beautiful, happy boy. It wasn’t until we ate the old foods again that I realised what life had been like, and saw the difference. I would tell others to stick with it and persist because improvements can be subtle and gradual. My boys are achieving so much more at school.  Your work has changed their future, their lives and ours forever and we are profoundly grateful.

  • Congratulations on the Aldi win. And thanks for all your good work.- Margaret
  • Well done and thank you for your hard work. It has been great to see the changes over the years! After over 5 years we still reap benefits in our family of being failsafe. Unfortunately Aldi is not preservative and additive free. We got caught out recently, presuming that they would automatically cut out preservatives as well! So we still need to read labels even at Aldi! - Joy
  • Thank you to you for all you have done Sue!!!!!.- Camille
  • As a heads-up for those still "lost" and wondering if there is a cure, I strongly urge you to give up what I call the "trifecta" (i.e. artificial colours, flavours and preservatives). This covers most of the main culprits which cause most peoples' asthmatic conditions (in my opinion). - Mark
  • We've all been hit by the dreaded flu and only our 8 yo son who is fully failsafe has escaped it's grasp, healthy and happy - Kate
  • We are finding quite a significant difference with the a2 milk (as well as failsafe) - even in my husband who is asthmatic, his 'wheeze' is almost gone (until he decides to get take away food for lunch - you can't help some!!!!) I stumbled onto your site one night while I was researching a2 milk, and I love it - Cindy

My daughter bought the Fed Up book to help her son, my one year old grandson who was cranky, unable to sleep, hyperactive and constantly cleared his throat. After reading the book, I saw myself in the symptoms of night terrors, anxiety, depression and brain fogginess. So I joined him on the diet (we all live together) and I haven't had one night terror since. (Prior to this I was having at least 5 night terrors a week and hated going to bed.) I have had the occasional bad dream when eating off the diet, but nothing like they were. My anxiety lifted, the depression went away and for the first semester since returning to university I understood what they were saying, I participated in class and starting talking and laughing like a 'normal' person.

Before that I was constantly anxious, paranoid, stressed and felt 'stupid.' I thought people didn't like me, I wasn't good enough, and I was unmotivated to reach my goals.

My husband didn't believe in food affecting people, and was critical of our changes, however has seen remarkable changes in the baby and in me. He said to me recently 'what's the matter with you?' as I was sullen and quiet. I admitted I ate something off the diet (but I used to be like that most of the time). Now he cooks me failsafe meals at night and reads labels before buying foods.

I stay away from additives, salicylates, amines, glutamates and dairy. It can be difficult to eat a limited diet, but the world is so much more fun, it's worth it!

Thank you for writing the books and creating the DVD. It's given me back the opportunity to experience the wonderful life I have. - Monica

We are currently doing the elimination diet and are about to reintroduce foods. My son is 2 and has been a handful being constantly irritable, huge tantrums that are inconsolable lasting 30 mins or more 4-5 times a day, speech delay, no concentration, runny poos. He has been an angel since starting the elimination diet however took a backwards step at about 2.5 weeks. We discovered we had been giving him soy yoghurt with 160b in it. We took him off it and his symptoms cleared again. It was mostly behavioural issues such as tantrums. His poos weren't noticeably worse. – by email

Sleepless nights... what an understatement! We were averaging 2/3 hrs sleep a night when the kids' problems hit a peak. This went on for months.

We were at a loss as to what had taken over our family and was slowly breaking us all down to a point of no return. As parents, feeling helpless, exhausted, and desperate was quickly becoming our normal. For our children it was far worse, they were struggling constantly with scratching, bleeding and screaming in pain, day and night. Finding our 4 month old son bleeding in his cot was a regular occurrence. Then there were the times holding our 6 year old daughter while she screamed, thrashed, and clawed at her flesh causing it to bleed. All too often they were in unison and my husband held our baby trying to comfort him as he suffered the same way while I held our daughter.

A vicious cycle of skin infections, constant discomfort, and numerous trips to doctors who assured us it was just eczema only added to our desperation.

We knew the kids had allergies and avoided all the allergens as directed by specialists but unknowingly we were contributing daily to their severe discomfort by what we were feeding them - and it wasn't even a bad diet ... or so we thought!

Our life line came the day we saw Sue on the local news, she mentioned itchy skin rashes and I took notice! Life changed that day. Slowly but surely we eliminated the foods and personal care products that were causing this chaos.

It is our anniversary this month ...12 months failsafe and our gift is 2 beautiful children with silky smooth skin (we regularly run our hands over it amazed at the difference), no more rashes, itching or screaming through the night & guess what?... they are both calmer & more engaged ... behaviour was not our original motivation to become failsafe but we have noticed the changes in them in this area as well and what an absolute bonus that is.

Thanks Sue and Howard for your many years of research and hard work and also for giving us a place to turn when there seemed no where else to go, we are forever grateful – Deb (Deb is organising the Fedup Roadshow talk in Taree 2011)

Feb 2011: I live in the UK. Since childhood I have suffered from sporadic, mild eczema, but for the past 8 months I have had a severe rash, starting on my arms and legs and then spreading to my scalp and stomach. It has been unbearably itchy. In this time I have been prescribed Betnovate ointment and anti-histamines and been treated twice for scabies! The rash has eased several times and then come back again.

After reading about "ribo rash" I realised that I had been using instant gravy granules regularly during the past year and that these contain E635. I am also allergic to (British) chocolate and have to be careful not to eat too much, too often. I can, for some reason, tolerate Belgian chocolate though.

Thank you for the information on your site, it could be a turning point for me.

May 2011: I've cut additives out of my diet altogether but wine seems to be the culprit. Since I stopped drinking it the rash is very slowly clearing. I'm also mainly dairy free at the moment. When I'm clear I'll start to introduce these things back slowly and see what happens. Now that I've narrowed it down I need to pinpoint exactly what the cause is. It has made me realise though that a lot of the time we really don't know what we're eating!

June 2011: I'm able to let you know that sulphites would seem to be the problem. I'm managing to cut them out of my diet, although it's difficult as they masquerade under different names and are in most manufactured foods.

Unfortunately they're in most wines too in fairly large amounts and so I've also had to give up my favourite tipple. My rash has virtually disappeared, with just a few stubborn patches remaining, and it has left red marks which I'm sure will fade in time. A year of hell, really.

I hope my story might encourage other sufferers to 'turn detective'. It certainly hasn't been easy because my symptoms don't show straight away but it pays to be persistent – Lynn, UK

(There's no need to give up your favourite drink, SO2GO removes sulphites from wine - Sue)

I just wanted to say thank you so much for the website and books! My son has been on failsafe for 8 weeks now and it's like a cloud has been lifted from our family. We have our little boy back!!

Riley's physical problems started at about 2. His face was constantly covered in a horrible red rash. This rash moved to his bottom and his nappy area was full of blisters and skin so raw it would bleed. Sometimes it got so bad he couldn't walk properly because he was in so much pain.

At 3 the behavior problems started. Riley had little energy. He didn't play with toys much and preferred to be in front of the TV. He had a lot of fears and anxiety and most of all he was angry. Most of his anger was directed at me and he would hit, pick and slap me often. I would spend days in tears not knowing how to help him. At preschool it was pretty much the same, Riley had a very short fuse and the kids were all scared of him because of his outbursts.

Eventually they asked me to get him assessed because they believed something was wrong with him. I was told they couldn't handle him anymore and said he couldn't come back unless I did something about his behaviour. I tried lots of different things but nothing worked until I was told about failsafe.

The change in these short 8 weeks had astounded everyone. His teachers at preschool asked me who was this boy? he now is friends with everyone, hardly had outburst and often says I love you to his teachers followed with lots of cuddles and kisses. He has energy now. He doesn't want to watch tv, he wants to dance and run in the backyard and play games with me. He no longer hits me and our relationships is closer than ever. No more rashes either or anxiety!

He is affected by salicylates and we are soon going to test amines but I suspect he won't pass that challenge as he seems really grumpy the day after I have given him a banana or cheese.

I have been telling everyone about this diet and I will continue to share my story. Thanks so much. I can't even imagine how you have changed so many families. –Jodie, by email

My son is eight and daughter six years old respectively. We have been failsafe for approximately 7 years of that time. I thought I had it pretty much down what they could and couldn't have.

Last week however I stopped buying soy milk as my son was using so much of it, it wasn't funny. I have always tried to steer them to rice milk, which my daughter loves! thank goodness. The soy milk was for others in the home but our son loves it and stopped having the rice milk when soy was around.

I cut this out last week. I seem to have a different boy. We have always just thought that removing what we did know was causing problems was as good as it got. That he would always be a LOUD ACTIVE HYPER BOY. It was much worse if he ate things he shouldn't. He reacts quite badly to amines, salicylates, colours are atrocious for him etc.

Can it really be the soy? Can it really be this simple? My son is now receptive, loving, easy to talk to, to explain things to, has stopped whinging, being aggressive, doing annoying things to his sister and to us. Even stopped all the repetitive things as well.

As I write this he is sitting watching some tv, his room is clean, he is dressed for school, his jobs are done ie take the dog for a walk, feed the chickens etc. He is not 'in my face', he is not running around annoying his sister (she doesn't know what to do with this as she is so used to it, she is even trying to get his attention to be how he always is with her).

Wow, wow, wow. If it is not the soy milk then I am at a loss as to what it could have been. I now have a son that is sooooo easy to love and cuddle AND it has been a quiet house too, not just from him, but I don't feel the urge to yell to get my point across for the 15th time. The lesson here is - never give up trying to find what may be happening with your child. It probably is not normal, and you may be missing something. - Cathryn (see more about soy intolerance in [702], [605] and [314])

We've been the through the elimination process quite some years ago now. Best thing we ever did for our daughter (previously a tantrum throwing, oppositional monster) and our family as a whole. We are lucky in that we can get away with a lot. We actively avoid artificial additives but do let our children indulge at other people's birthday parties. We allow all of the natural foods but keep an eye on just how much salicylates are going in so as not to hit the threshold. Many thanks to you and Sue for all the work that you do. Without your books, website and forums - well, it makes me teary just thinking about what life would've been like. I am constantly referring other people to the website and the books, and regularly loan my copies out. I think I've helped a few people in doing so. – Tammy by email

I moved to Australia from India ten years ago. With a change in diet following different food produce/products/ cleaning products/fragrances/toiletries - everything - I started showing all sorts of allergic type reactions. After three years I had to visit a GP who sent me to allergy specialist, who diagnosed the problem as salicylate intolerance. Since then I went on the elimination diet and reintroduced foods gradually from low to higher levels of salicylates/amines. Though a long painstaking process, it was definitely beneficial. I understand now the symptoms had started in India, but were not too frequent, and guess what, took aspirin in those days not realising it made me worse!

Bread was causing me major headaches. Now I always buy the white bap from Bakers delight, and avoid bread altogether on weekends. Am more a rice eater for dinner, so that's helped me in some ways. Itchiness and other minor things I can handle, (and believe me I think I have shown all symptoms from eye tics to not sleeping well and having nightmares). Migraines cause the most problems, and more so as I will definitely have nausea and vomit and will have to lie down in a quiet dark room till I feel better. I cannot take ibuprofen at all, makes it worse.

Eating out is a major problem, though we do tend to eat home most of the time. Family and friends have been most supportive, and cook what I can eat. At work I am always asked what I can have when we have the morning teas or lunches out, so feel quite special. - Mita, by email

I have two girls aged 4 and 2 years and recently my two-year-old daughter Isabella had very bad tummy pain, bleeding gums, bad breath, a fissure on her bottom and blood in her stools. The first sign was the bleeding gums. They just kept getting worse and worse as we brushed and it hurt her to eat anything.

Then there was her tummy pain which was also getting worse. She was not gaining any weight (actually losing weight the year before but thought she was a fussy eater!) and is still very little for her age. I saw various doctors about her fissure and tummy pain and also mentioned her gums and no-one would help me. One doctor did say it was a fissure but didn't address the other issues.

She also had bad breath and was very whingy and clingy most of the time.

Anyway I decided to take her to our local University dentist as it is free and they are fantastic with kids. They ended up referring us to the Dentistry section at Westmead Childrens' Hospital. To cut a long story short they kept bringing people into the room until they reached the highest person in the place and he said he thought it was either Crohn's Disease or Leukaemia. After months of testing including a gum biopsy and an endoscopy and colonoscopy the Gastroenterologist confirmed it was Crohn's. They then got us back and said they want to trial her on a preservative free/additive free/antioxidant free diet. So off we went on the challenge to stop all these nasty foods.

They gave me a list of foods I could give her and a list to avoid. They said she could have milk, all fruit, vegetables, pasta etc as long as there are no additives. Anyway while researching one day I stumbled across something on your website. I knew of your website and it was helping me greatly but this day I was reading about Salicylates and Amines. I had NO IDEA what they were before that moment.

It suddenly occurred to me that I had been giving Isabella her favourite juice every morning, sometimes two cups. It was V8 Tropical juice which says it has no preservatives etc but I didn't realise about the salicylates. I stopped it that day and told her I had run out and had to go to the shop to buy more! (Saying that helps to avoid an argument!!) To my amazement her bad tummy pain stopped that day! I haven't given her the juice since and it's been about 3 months. Her gums got better, her fissure got better and her bad breath went away. She has had tummy pain now and then but I am fine-tuning her diet and think she could be totally sensitive to salicylates. I make my own washing detergent and wash her with Alpha Keri fragrance free but haven't gone as far as stopping my perfumed products like hairspray etc.

The purpose of this email is to send you a HUUUUUUGGGGGGEEE thank you for putting out the website and your books! I haven't come across anything on your site (maybe I've missed it) about the diet helping people with Crohn's Disease so maybe Isabella 's experience will help someone else.

If we had not have found your article about Salicylates then Isabella would have been put onto steroids at two years of age. The diet itself has changed our family greatly as well. My 4 year-old daughter is concentrating better, doesn't argue with me like she used to and isn't as emotional. Her learning ability has increased as well. I don't have restless leg syndrome anymore and I feel much better in myself.

The months before Isabella was diagnosed with Crohn's were unbearable and it was just horrible seeing my little girl go through all of that pain and not be able to fix it. Now, thanks to you, she is bouncing out of her skin and is a happy little two-year-old (with the occasional tummy pain).

It still brings tears to my eyes thinking about the past 6 months and what we've all been through. Everyone I run into I tell about it as there's probably someone else out there suffering but thinking they are eating healthy with all that fruit.

Update: Isabella has been getting through the capsule challenges very slowly. She didn't react to 'A' (I have no idea what they are) and 'B' she had a MAJOR reaction to so I'm looking forward to finding out what that was! She had all the symptoms of Crohn's back (except bleeding gums (although I think if we had of kept giving her whatever it was for a period of time that her gums would soon start to bleed again). Her behaviour was also just terrible. Words can't explain how defiant, grumpy, emotional etc she was. She also started to wet the bed! I felt really sorry for her that I gave her that on purpose. With all the ones she has reacted to (every one of them except 'A') it has taken a good week or so for all symptoms to disappear. I have noticed with everything she has like additives she develops a sore on the outside corner of her mouth. It gets really bad and then when she is back on the plain diet it heals. Very strange but I'll be able to tell when she's lying when she's older if she's had something she shouldn't! - Shelley, NSW

I am new to failsafe and have discovered that we didn't have a lot to change but what we have has made an enormous difference!

The biggest shock to me was the fruit and vege as the girls ate quite a lot of these, mainly grapes, strawberries, blueberries, apples and bananas with oranges and mandarins more recently (they are 5, 4 and 2 years old), and carrots, broccoli and zucchini with pumpkin and potato. I will be switching the 'bad' ones to the ones you have listed (not sure how I am going to go with this as only one girl likes pears and I can hear the protest to the cabbage now!).

We have never eaten a lot of takeaway as I have horribly sensitive skin (eczema and acne) and tend to avoid bread as it wreaks havoc with my tummy. I always believed fast foods made me (and since the children, them) feel awful the next day, not to mention the appalling behavior. There are lots of reasons for us trying failsafe, those I mentioned, then my husband has recently been diagnosed with irritable bowel syndrome and is asthmatic (worse I have learnt on sulphites). Our 4 year old is our test in life I am sure and she is the one in particular that reacts to artificial colours and preservatives.

We have long been eating mountain flat rye wraps in place of bread, especially on weekends for lunches and now they are more frequent during the week in lunchboxes. I usually bake all our smoko stuff and am more convinced than ever to continue doing that (just this morning we made the shortbread and cupcakes from your cookbook). I am much more aware now of Lily's reaction in particular to preservatives and salicylates and am starting to notice some reactions in our 2 year old. Funnily, the reaction does not seem as bad in the 5 year old, but I can see some things that she is sensitive too, especially since she seems to get rather nasty to her sisters after she eats those things, mostly the high salicylates.

Terrible thing when you start to look - just what I have been feeding my children and why they have been the way they have in terms of behaviour. I thought I was doing well too as we never had cordial or potato crisps and VERY rarely had lollies or other 'junk food'. I bought the organic fruit and vege and cooked most of our food myself.

Just a little story for you, we went out to dinner on Friday night for a celebration. Of course the children's menu was awful (chicken, fish or sausages, all with chips) and I thought to myself 'this will be interesting' as I had had Lily 'safe' for almost 2 weeks. The girls chose chicken and chips (the chicken was crumbed strips) and after they had finished eating the waitress bought them a bowl of ice cream with strawberry topping each. Before we left the restaurant Lily started yelling and screaming, crying, being really rude, obnoxious and just horrible. I left with her while my husband finished up and paid for the meal because she was unbearable. The next day was quite a treat too! All this within 15-20 minutes of eating the meal. As they say, the proof is in the pudding (or in this case, the whole meal)! – Cindy, Qld

I have had Chronic fatigue symptoms for 6 years and seen heaps of Doctors. I have tried an elimination diet and a vega allergy test diet through a doctor and not found much relief but am willing to try failsafe if it is different ... one year later ... I started the diet as soon as I read your book last year and found it made me feel much better, but I still felt very lethargic and felt something was wrong. I had been on the merry-go-round of Doctors for almost 7 years and finally they found late last year that I had a severe case of endometriosis. Immediately after the surgery I felt so much better! It was like a miracle. I was very angry because my symptoms had actually started 18 years prior and no one had picked it up!

I think my body had been struggling with it for so long, it was just packing it in. I really believe the diet gave my immune system the break it needed and probably kept me alive and going last year. I at least had the energy to keep annoying the Doctors, who had told me it was all in my head for years. While sick, on the diet, I basically could only stay on the lowest food chemicals. After surgery I gradually tested amines, salicylates and MSG and found I suddenly had no reaction to them like before. I believe this indicates that a stressed immune system doesn't cope with food chemical and additive overload. I have still to test additives/colours, but have just found it easier and healthier to avoid them. – by email, Qld

In 1995 I gradually developed CFS and was invalided out of work a year later. In late 1999 I began the RPAH elimination diet. Ten days later my brain fog and fatigue were greatly diminished. Challenges confirmed intolerance to dairy and gluten – which I had eliminated years previously – and indicated intolerances to salicylates, amines and glutamates.

In the following years I had a few relapses, usually lasting for no longer than a couple of weeks. The exception was a six months relapse, which ceased five days after I decreased my intake of vegetable oil and changed from canola to sunflower. (Both oils had no additives listed on the label).

In January 2007 I was feeling quite well and had no significant CFS relapse for a couple of years. At the beginning of February my energy plummeted. I needed to spend at least twelve hours a day lying down, instead of eight hours. Physical fatigue and brain fog returned in force. Six weeks later I bounced back, and was quite well for a few weeks, then I plummeted again. These irregular fluctuations continued throughout the year, but the highs got lower and the lows got lower. I became much more sensitive to amines.

In early February 2008 I went to Woolworths for grocery shopping. I picked up a bottle of sunflower oil and glanced automatically at the contents. In a way, I was not really looking because I 'knew' that nobody put additives into sunflower oil in Australia. But there it was: 'Sunflower Oil, Antioxidants E319, E320'. I squeezed my eyes tight, reopened them, and read the same thing. Then I grinned and imagined myself leaping into the air and clicking my heels. Yes!


I phoned Woolworths and was told that their sunflower oil had E319 and E320 since the beginning of 2007. But sometimes my wife bought sunflower oil from Coles. No, Coles had never put antioxidants into their sunflower oil. We take about six weeks to consume a one litre bottle of sunflower oil. I looked back in my diary and found that the length of my ups and downs were in multiples of six weeks. We swapped to Coles sunflower oil. Eighteen days later I was fully well again. – Ian, by email

In my opinion the worst food additives are those in the range of antioxidants 310-312 and 319-321 "The Nasty Antioxidants". As antioxidants are not considered to be preservatives (by regulators), and the suppliers/manufactures are not required to list these on the label, they are the most frustrating additives by far. At least with colours, you can readily see them and hence avoid them. Same with most other additives, they are usually on the labels in some sort of description. But the good old nasty antioxidants are secret unless you go to extreme lengths to ask the supplier of the food and then the manufacturer of the contents eg. vegetable oil what exactly are in their oils.

There are alternatives to the nasty antioxidants which are failsafe and haven't been associated with cancer in rats and possible genetic changes and also nausea, vomiting, ringing in the ears, delirium and collapse, children's behaviour just to name a few.

Even 'safe' foods like 'natural' ice cream cones can't be trusted. They change their oils on a regular basis and also the use of antioxidants from friendly ones (300-309) to nasty ones (310-321). I only found this out after my son experienced an ADVERSE REACTION to these cones and I telephoned the supplier and was told that they had changed their oil and it included BHA (320) & tBHQ (319).

What hope have we got for our children and ourselves if such nasty things are HIDDEN in our foods? I would just love for my son to be able to tolerate eating the occasional fish 'n chips on a Friday night just like I used to when I was a child. Is that so much to ask for? – mother from Victoria.

The labelling issue for antioxidants in oil ... is one that ticks me right off I have to say. I know the labelling laws have improved things a lot but to have to call the company before you eat a product is crazy. – dietitian from Australia.

Six months ago our daughter developed severe behavioural problems, including depression, lack of motivation, poor sleeping habits, lethargy and loss of enthusiasm. These were very uncharacteristic of a hard-working fulltime student and a complete puzzle to her concerned teachers. As a consequence, her exam results declined, as did her study performance.

Her problems were eventually traced to her consumption of home-baked products containing Dairysoft, a butter-oil blend manufactured by one of Australia's largest companies, the Murray Goulburn Co-Operative Ltd.

Our daughter is known to be affected by antioxidants 310-312 and 319-321 and several other food additives. Before she started using Dairysoft, verbal advice was obtained from Murray Goulburn that there were no antioxidants in the oil which comprised 22% of the product.

After months of increasing problems, we contacted Murray Goulburn again and were now that informed that the canola oil in the product did in fact contain 320, Butylated Hydroxyanisole.

Our daughter removed Dairysoft from her diet and she has since made a complete recovery, although there can be no compensation for the six months of pain and uncertainty which she suffered. Following complaints, Murray Goulburn have now correctly labeled this product, although without any food recall, product safety or public apology notice. – parents from Darwin.

About a month after being home from the hospital [for severe salicylate-sensitive asthma], I was wanting something to snack on and thought that I could eat the rice krispies type cereal, dry, as a crunchy snack. Interestingly, the first salicylate list they gave me had BHT/BHA and tartrazine listed on it. But I never looked at the label on the cereal. I just assumed that cereals were ok. Within 30 minutes of eating the rice krispies, I was wheezing, had hives, was itching and eyes swelled. Wasn't a super bad reaction, but bad enough to have to use medicines for it. We thought, this certainly couldn't be the cereal but it was the only thing that I had consumed different that day. When we looked at the label on the box, it said that the packaging had BHT in it. I couldn't figure out why they would put it in the packaging when it was the cereal they were trying to preserve!! But I did react and being that it wasn't quite as bad as most of my reactions are, I figured that the BHT from the packaging was enough to get into the cereal and give me that reaction. But just to be certain that it wasn't the malt I was reacting to that was in the cereal, we went to the health food store and bought some plain, rice krispies with just the rice and sugar, no preservatives, no fruit juices, etc...and I didn't react. From that moment on, I tried to make sure that I didn't ingest BHT or BHA. – reader from USA.

When my daughter was about four, she required Ventolin whenever she ate bread and so she ended up wheat free. The only time she has had asthma since last year was during the antioxidant (BHA, 320) challenge. You were right about the wheat - it is no trouble whatsoever. We realise now that our daughter was wheat free unnecessarily for years. – reader from NZ

My 3 year old's behaviour improved on the elimination diet at first but then he started getting worse and went back to what he was like before the diet - screaming fits, teary, really temperamental, waking at night. He was eating frozen oven fries every night but when I phoned the manufacturer (ingredients: potatoes, canola oil, salt) they told me there were no antioxidants in the oil. Two weeks later the company admitted that their product did contain unlisted BHA under the 5% loophole. – reader from WA

A Food Intolerance Network member phoned Goodman Fielder about Gold n Canola oil when she noticed that previously listed tocopherols had disappeared from the label. The consumer hotline officer advised her firmly that tocopherols had been replaced by TBHQ. Another member separately received the same advice. When we pointed out that TBHQ was not listed on the label, the company changed its tune and explained equally firmly that there were no antioxidants in the oil, eventually explaining they had been confused by TBHQ in the New Zealand product. Can we believe them? The wellbeing of our kids depends on word of mouth from people like this. – by Sue Dengate and thanks to readers from NSW and VIC.

More Articles ...

  1. [1048] 320: Failure to improve on elimination diet due to unlisted BHA (from submission to FSANZ 2006)
  2. [1047] 320: Itchy and grumpy from BHA 320 in pappadums (from submission to FSANZ 2006)
  3. [1046] 319: Four weeks of hell from 319 (TBHQ) in gluten free bread (from submission to FSANZ 2006)
  4. [1045] 319: Very sick and severe constipation from TBHQ in soymilk
  5. [1044] 320: Stomach and behavioural reaction to unlisted antioxidants in ricemilk (from submission to FSANZ 2006)
  6. [1043] 320: Asthma from unlisted antioxidants in ricemilk (from submission to FSANZ 2006)
  7. [1042] 320: Night terrors and oppositional defiance from fries with 320 (from submission to FSANZ 2006)
  8. [1041] 319: Serious breathing difficulties due to 319 TBHQ (from submission to FSANZ 2006)
  9. [1040] 320: Asthma and antioxidants (from submission to FSANZ 2006)
  10. [1039] 320: Irritable bowel reactions to 321 BHT and 320 BHA (from submission to FSANZ 2006)
  11. [1038] 320: A Disastrous Christmas (from submission to FSANZ 2006)
  12. [1037] 320: Unlabelled antioxidants in vegetable oil (from submission to FSANZ 2006)
  13. [1036] 320: Protease inhibitor deficiency (from submission to FSANZ 2006)
  14. [1035] One-liners (May 2011)
  15. [1034] Brief reports from various school canteens (May 2011)
  16. [1033] Canteen changes came from parents requesting no nasty additives (May 2011)
  17. [1032] Canteen sold every food known to man that was loaded with additives (May 2011)
  18. [1031] “For the first time in my life (I am now 41), I don't have a sore on me” (May 2011)
  19. [1030] Jade’s story: no ventolin needed after 27 years of asthma (May 2011)
  20. [1029] Sneaky poos (May 2011)
  21. [1028] Trying to pinpoint what went wrong last time (May 2011)
  22. [1027] Fitting and blisters - damage to children or dogs (May 2011)
  23. [1026] Reacted to amines in supermarket meat - despite dietitian advice (May 2011)
  24. [1025] Chronic fatigue, endometriosis and diet (May 2011)
  25. [1024] 319, 320: Antioxidants and chronic fatigue (May 2011)