Q: Is it sensible for those with food intolerances to avoid certain career paths?

Some helpful answers, interestingly mostly perfume/fume sensitivities which go with food intolerance:

The hospitality industry isn’t good to work in especially if you are in the kitchen with all the foods and have to taste what you make. Also the cleaning agents aren't great either. And being a barista is bad too as your skin absorbs the coffee you work with.  The only good occupation I've found is being a stay at home mum but that won’t last forever - Laura

Cleaning was hard, but gloves and good quality paint mask helped immensely - Teresa

I am an artist and art teacher. I make sure we have good ventilation in the classroom and insist on students using the non-toxic /smell free versions of paint and solvents while in my classroom. But it can be hard - there are some days when I am overloaded with chemicals. I gave up oil painting but now work with sculpture, watercolour etc. Oil painting is actually doable with good ventilation and good quality smell-free chemicals. Just have to be careful to change clothes and shower properly after each painting session!- Yen

I work retail and it can be difficult at times. I have managed ok but there are certain things I can’t do at work like cleaning as the chemicals cause bad reactions on my skin, I can’t work in the fresh food departments because of chemicals again but also the use of gloves irritates my skin and constant hand washing with the hand soap at work causes severe dry skin and a rash. I also have difficulty with colleagues and customers who wear too much perfume/fragrances deodorants and deal with it as best I can. It’s hard some days especially if I’ve already had a reaction to a food work just makes it harder but I’m getting better on that front so can deal with the other reactions better as well – Joanna

I have quite a unique job. I am an accommodation worker and look after 31 units and rooms onsite so am in the office half the time and waking around the building at other times. I tackled my workplace and asked for reasonable adjustments to be made - basically asking that colleagues do not wear fragrances and changed my desk to more of a corner area to avoid passing people all the time as they still have to wear deodorants. I have to do weekly room inspections which can sometimes set me off if a resident has just cleaned that day or has any of those plug ins actively running or the new diffuser things. I wear a mini air purifier all the time at work and bought good quality rechargeable batteries and charger for my desk so that I have a constant supply of batteries. It is doable. If a person forgets and wears something strong I can use a computer in a meeting room away from the office or go to another branch where they sit me away from others. It took a few years for this to occur though but as soon as I mentioned MCS is basically recognised as a disability my boss and the organisation decided it wasn’t worth taking a risk from a health and safety perspective – Sarah

I am a chemist and I’m hoping to move into more measurement and calculations roles rather than synthetic chemistry (so many amines and some salicylates too). At the moment I’m just really careful with wearing gloves and working in fumehoods, and I bring my own soap! - Jen

I have been a nurse for 30 years & over the last couple years have started getting migraines from the hand washing chemicals-the basin washing is bad enough but now u r expected to use the hand gels 100s of times per day. Looking for alternate employment after a break being a carer for my Mum. Even research recruiting which I have done in the past is a no go due to the severity of my reactions to even small amounts of hand washing per day. I may go into working with the disabled as I can take my own soap - Jenny

Disability Support worker in a group home.... hand soap, spray deodorants used on clients , chemical spray deodorisers, aromatherapy diffusers, bug sprays....have asked for support from other workers, rarely get it! - Carol

Baking and cooking were my hobbies and now I can't event do new recipes for other people cause I can't taste it, couldn't imagine being a chef - Deb

I had to quit my art course at TAFE because the paint fumes were too much for me, but on the other hand I can use acrylic paints without too much issue. Art type stuff there’s a lot of fumes but if you wanted to pursue art yourself you can figure out what works for you. I did cake decorating for a while but gave it up as a career option...I love it and I’m good at it, but people kept ordering chocolate mud cake and I couldn’t stand having the house full of chocolate cake smells all the time! And having to melt and temper chocolate was torture. I would certainly never consider a career in hairdressing or candle making or perfume sales...if I’m going to be sick from salicylates I’d rather be eating fruit! But if it’s your passion then it’s a matter of seeing if you can find a balance that works for you. My friend has her own hairdresser studio in her backyard for example...that sort of setup would hugely reduce the amount of fumes, and you could get fresh air through as well - Ruth

I have quite severe food intolerances, I coped as a theatre nurse for 20yrs, now I can’t cope with the hand wash & diathermy smoke - Kate

I work in a small office and love it. We only have 9 staff and they understand my sensitivities but not always easy to find a job like that – Lea

I worked in pharmacy as a teenager. Couldn’t stand the soap aisle. Went farming and hay fever was awful issue! The supermarket aisle of soap powders is horrendously stinky. The pest control aisle of garden centre or hardware store ugh! Paint fumes, new cars another no go. Big malls or big corporations with automatic “air fresheners” or “ bug controls sprays” may not be avoidable either. So many traps out there. A job in fresh air at the seaside maybe? - Chris

I'm a nurse I was healthy when I started but it's a nightmare now...exposure to multiple strong perfumes, aerosols, cleaning products, smoke etc. I have migraines and asthma too and it's awful for that as well noisy, bright lights etc - Peta

Aircon in the office was nearly always a problem for me so that would be limiting if you couldn't manage it - Beth

I’m a primary teacher. It’s quite ok because I have a fair amount of control over my work environment. I can tell the students not to wear any spray on deodorants or perfumes. I’ve had one issue with super strong smelling laundry detergent or fabric softener on a child’s uniform. Also some colleagues I’ve had to sit in meetings with after school have strong perfume. I have asked them not to wear it but sometimes they forget. I can choose to open or close the doors and windows and whether to turn on aircon or not. I bring in my own Norwex cloths and have children clean desks with those instead of smelly chemical cleaners. I also use them on the whiteboard instead of the strong smelling whiteboard cleaner. My worst day was a whole day of professional development in a room that smelt very strongly of a chemical like whiteboard cleaner. I had a migraine by the end of the day - Mary

I am sensitive to fluorescent lights. They give me sever migraines and make me fall asleep or at the very least give me an extremely foggy head and make it impossible to concentrate. I have found that if there is enough natural light in the room it’s ok - Lee

Being in public is unsafe enough for me to experience negative effects e.g. reactions to fragrances; so I'd think being around a concentrated lot of triggering artificial chemicals, as in a nail salon, would be still more immediately problematic.  I work across my company's clinic and within the client's home, as an intensive therapist for a child with ASD. The triggers I can't control are synthetic fragrances used in the rooms and by other staff/clients, cleaning products, and tobacco smoke. Masks can help a bit, but my eyes are still exposed and I don't use the mask when with my child. I should see if I can request the client from refraining from smoking or wearing perfume around me, but I'm a bit nervous to do that still! The gym is the worst place for me, as most people decide to add strong, often synthetic, fragrances and it's just impossible to get through a workout with a mask on! – Mitha

 

Finding out about this diet on the internet literally saved my life – Sharyn

Thanks so much for adding me to the dietitian registry.  I have seen profound results with several of my clients.  It's quite eye-opening for sure!! -  a dietitian

We have been doing this diet about 12 weeks or so. It has worked wonders for my son. It has certainly been life changing. He has gone from being covered in a hive like rash every day of his life, to just having a bit of eczema – Charmaine

95eczemasmall

I just wanted to put it out there that I think this group is absolutely incredible. It is filled with such amazing and supportive people who are all genuinely trying to help each other. This group has helped me and my son so much. It's so insanely wonderful having expert advice at your fingertips 24/7 and people who truly understand what you are going through. I am finding it hard to even imagine how I was coping 3 months ago prior to joining this group. It's been totally life changing. I feel like I have this whole team of people who I have never met befriending me and helping me through this painfully difficult journey, when previously I felt basically totally alone with lots of friends, but nobody who actually understood anything we were dealing with – Sharl

Miss 2 and I have been failsafe for about 18 months now, and my 15 yo has chosen to go failsafe in the last month. We have all seen amazing changes, even after just a month for the 15 year old the changes are noticeable - Sara

My 3yo self harmed, hair pulling, biting her own fingers, kicking, screaming prior to a change in diet. Two weeks after changing her diet we had a different child and have never seen that again. She is now nearly 5 :) – Jan

About the DVD: six years ago this movie changed our life. My child is the calm, confident, wonderful child she is because the fog cleared and she was able to look at the world more calmly. We have had our setbacks, but it is easy to pin point now and we fix it up. A few weeks of “coming down” and she is back to herself. She is 10 now and can feel the changes in herself and makes much better choices when I am not around. Eternally grateful – Mel

My girl without a diagnosis reacts terribly to amines.  She’s angry, yells, can’t listen, so we keep those out and limit the other stuff.  We started failsafe journey for my boy who was on the cusp of diagnosis (did eventually get the diagnosis) of ASD and ADHD but put both children on it.  Unfortunately we did not see a difference with the child who had a diagnosis but the other one certainly improved even though I just assumed her sometimes ‘angry and irritable’ days was ‘normal’. 

We now avoid amines, limit the salicylates and the fake stuff and she is great.  She can actually feel when her body is ‘feeling not right’ from having stuff and because of this she actually chooses not to – Karyn

Diet change has had amazing results without formal diagnosis. I found Sue Dengate online when I put in symptoms and stumbled across a list of foods that contained salicylates and behaviours that can result from intolerance. It was a total match for my son. He changed within 48 hours once I removed certain foods.  He's still presents with some ASD behaviours etc. but those relating to salicylate intolerance are managed with diet change.

He was hearing voices. That's what made me very worried, as he was only primary school aged. He's in high school now. The change was dramatic at the time. I was so happy when I found a solution and an explanation. I'd never heard of salicylate intolerance before that – Sarah

Has anyone else experienced pulsatile tinnitus from salicylates? I’m doing my sals challenge at the moment (started last night- so not even 24 hours in) and today my right ear is experiencing pulsatile tinnitus intermittently for the last 5 hours after eating high sals foods. It’s really irritating. I constantly feel like I have a blocked ear (which I don’t think I do). There’s a lot of info about normal tinnitus on here, but curious about the pulsatile kind in particular.

Update one week later: After about 48 hours it went away- but slowly over the few days. Since cutting sals back out I’ve had no more of it at all! – Emma

(Pulsatile tinnitus (PT) is a symptom that affects nearly five million Americans. The sensation of hearing a rhythmic noise, such as a heartbeat, swooshing or whooshing, from no external source, is, at best, a little unsettling; for many, the near constant sound exceeds annoyance and becomes completely debilitating - https://radiology.ucsf.edu/pulsatile-tinnitus)

Headaches, blocked nose, runny nose, itchy all over but especially in throat/ears, foggy brain, and just feeling generally exhausted and unhappy – Renae

For me a naturopath suggested it when I was dealing with constant hay fever type symptoms and asthma about 6 years ago. Life got in the way and I never did it. Am now doing it because of my 3mo and have my 3yo doing it too for behaviour and gut issues. It's fixed up my geographic tongue and associated pain after eating - Penny

Night wakes, length of sleep and time to get to sleep, general irritability and crying while having steady weight gain and a healthy appetite and appearance for an infant - Celine

Migraines and brain fog are my main symptoms. Those two overwhelm anything else - Deb

Skin issues, gut issues, muscle aches, asthma - Ashlee

Daily migraines – Elise

I was originally sent to the immunologist because I wanted to find out what was making me always itchy. He then asked me a gazillion questions 'have you ever had....', and I kept going 'yes', 'yes', 'yes', 'yes'. I was causing me so many issues, that I had been going to the doctor about for years. I couldn't believe how much better I felt (after the horrid withdrawal symptoms) after about 6 weeks - Wendy

Bloating, gas, constipation or diarrhoea. Headaches - Kara

Angioedema, hives, joint pain, nosebleeds, mouth ulcers, rhinitis, asthma attacks, throat swelling, fevers, and night sweats. Was referred to anaphylaxis clinic and diagnosed as salicylate sensitivity. Decided to do this diet as recommended to me by other sufferers as most accurate - Petrie

I had migraines, dizziness, nausea, dry eyes, swollen glands, arthritis, asthma, clogged ears, foggy headed feeling and fatigue. These symptoms would come n go. I knew I was allergic to aspirin for years n my dr told me to avoid wine. That's it. When I discovered that salicylates were in food, 30 years later, I gave up all foods with moderate to very high sals. 2 days later my symptoms went away. And I surprisingly didn’t suffer withdrawal symptoms like a lot of other people - Joan

Chronic hives – Charmaine

My 11yo daughter was born super sensitive. I knew there was something not right from the 1st week of her being home.

After going from doctor to doctor, when my daughter was 6mths old we finally found Dr Velencia Soutter. Straight away she put us both on the elimination diet and gluten and dairy free. I was determined to continue breastfeeding. After a month on the diet with still no change, Velencia told me to stop solids for my baby and had me only eating chicken, rice, lettuce and potato. Like magic my baby stopped being sick. We spent the next 5 years working out exactly what my daughter was sensitive to. There was many a time I would be crying in Velencia’s office - I was restricted to 2 cook books, Sue Dengate’s Failsafe Cookbook and Velencia’s. I had to do private cooking lessons with a lady to help me learn how to cook. My daughter was anaphylactic to milk, eggs, nuts and allergic to so many other things. Velencia told me that my daughter would be too sensitive to go to school.

But after following everything that Velencia told me to do at age 3 there was a massive shift in my daughter’s allergies and she was no longer anaphylactic to eggs. We did an egg challenge in Velencia’s office and she passed. Then when she was 7, Velencia told us to move closer to the beach, she said “live right on it, send her to a school that is right next to the beach”. At this stage my daughter could only tolerate 2 days of school. We rented out our house and rented a house in Burleigh Heads. The change in our daughter was so much she could start eating carrot and apples and some moderate level foods. She went to school full time. At age 9 she outgrew her milk allergy and can eat so much more food I no longer had to make everything... we could buy  commercial food! Age 10 Velencia diagnosed her with autism and sent us off for a diagnosis of ASD level 2.

I now have an 11 year old daughter who goes to school full time and can eat and no longer has eczema, who now has a new quirky personality. Velencia changed our life. So many doctors didn’t know what to do with my daughter. Our GP phoned Velencia on her mobile every time he wanted to prescribe her medication or to get advice on how to treat her for some illness or another. I spent so much time in Velencia’s office not just for treatment of my daughter but for the amazing support she offered me - Kay

Dr Soutter told me of a young girl she met on one of her holidays who thanked her for saving her life. The girl (she said tween) told her about how she used to self harm and she tried to commit suicide a few times as well but she somehow found the RPA Hospital elimination diet and found that it was amines that were making her feel this way and now she is amine free she no longer wants to end her life. The doctor told me this because I was talking about the affect amines has on my little one. If she has amines she is depressed. She cries uncontrollably. My sister in law also has been battling depression and anxiety. She finally listened to me changed her diet and now she no longer wants to kill herself... amines can be a big issue for some people with depression - Kay

I ate rice crackers - I did not have my glasses on or I would have read the label. Yes! The crackers contained ribonucleotides - I have been aware of an allergy to MSG for about 40 years. That was seven months ago. After two doctors and two dermatologists I almost have the skin back on my legs. From my ankle to my knee I was covered in a rash that turned into keratoses (skin growths that some people develop as they age, can be benign or cancerous). In part my problem was exaggerated by my age - I am 85 in a few weeks.  My legs are much better but I have one lump that will have to be cut out - Molly, South Africa

(More about Ribo Rash caused by  ribonucleotide flavour enhancers E627, E631, E635)

1543small

Total of 10 months into eliminations including 3 months after terminating the childcare centre. Currently tolerating mod salicylates. I was so sceptical going into this diet because she is already has lactose intolerance (full dairy elimination 6 months), fructose intolerance and egg/nuts/alcohol allergy. Until I was at my wit’s end and had to stop relying on potent topical corticosteroid to ease symptoms - her rash returned whenever I stopped using it. I went cold turkey to do strict elimination from RPAH book. When I had confidence I started doing challenges beginning with amines as I had that gut feeling that she is alright with amine. Then I challenged mod sals 2 months ago. We moved interstate so it was hard to find a dietitian. It's so worth it seeing her sleep through the night and we get back our quality sleep. I was able to make the people who don't believe in me, believe that elimination helps – Emma

10 weeks later: she is almost eczema free since the last photo with minor itch here and there whenever I started introducing her to higher sals food. Settles soon after I revert back to mod sals - E.

Story to share... thought it may help some (especially those with young kids)...

I was put on the RPAH diet in about 1983, at 6 or 7 years old... after 4-5 years of the worst case of eczema (Started after antibiotics at age 2) the docs had seen.

NOTHING was working, so a “totally crazy” approach was taken - this diet.

Up until this point, people would ask my mum if I was dying. Despite having a very healthy appetite, with the head to toe eczema and extreme skinniness, I did actually look like I was dying.

My version of the diet was incredibly strict - for what felt like a lifetime. My diet consisted of lamb, pears, lettuce and rice. I reacted to water, which was specially treated as well. 

Within weeks, I looked like a different person and began putting on weight.

I stayed on the diet for a few years - pretty strictly, but with more and more things added over time. I seem to recall the eczema was mostly gone by the time I was 10.

By age 12, I was basically ‘normal’ (although I’d developed a distinctly un-childlike preference for hyper healthy food).

The hardest part was being teased at school for my weird lunches. In the mid 80s, no one in a Tasmanian school was eating rice cakes with Nuttelex and maple syrup...

This diet probably saved my life. I have no idea how my mum stuck to it for so long, but I’m so thankful she did.

Now...

I’m considering the diet again - at 43 - for some symptoms that have appeared. I’ve spent the past few decades eating well - but eating anything I want, and I’ve realized I’m just too food sensitive to do that. Also, my two kids seem to have the same tendency for eczema and intolerances that I did.

So - if you can stick with it, it’s worth it! - Amanda

Just wanted to post about our journey on this diet. Have had my 4yo boy on the strict elimination diet for nearly two weeks now. I cried tears of joy last night as in the last few days (since deciding to also cut out gluten) he is a different child.

Last Friday screening tests through a psychologist (done by both myself and his day care) showed ADHD tendencies. His behaviour was so exhausting and stressful. Lots of aggression, hitting, screaming for apparently no reason, could not sit still for more than a few mins, defiant and destructive, no parenting strategy seemed to work although every now and then we would see glimpses of an affectionate, sweet boy, but always just for a few hours before our demon child would rear his ugly head again. But now he is calm, listens, is kind, thoughtful, and so so happy.

If he has some upset we are able to use parenting strategies to get him back in a good place, whereas before everything was always escalating. I hope this lasts and I’m not getting over excited too quickly. But this feels like a serious game changer for my family, I feel like I have my boy back ❤ I am keen to also see how this goes over time and if we reduce dairy or make the switch to A2 if we will see further improvements.

Update 2 weeks later: We have just done the salicylate challenge and noticed behaviour changes, nightmares every night, waking up early and grumpy, lots of silly behaviour as well as defiance. Back to failsafe diet today and tonight he was so much easier and happier and co-operative. Looking forward to finding out what the other challenges hold! - Vivienne

Sorbates made me so horribly moody. I felt depressed - Maria

It affects my sleep pattern if I have it a few days in a row,  but it is very delayed - Teresa

I had an immediate reaction  to challenge (more oral allergy type reaction - it burns my throat and I swear the spots in my hands have come from sorbates. I've just felt a bit rotten and wondered if it impacted me more than I realised, or whether it was just coincidence – Linda

See Food Intolerance Network factsheet on sorbates 200-203

I got my first migraine at 12 years old. Dr told me it would be hormonal and “get used to having them every month along with my period”.

It went on (more then once a month and getting worse over time) until I was 29. I was having a migraine last 6 days of pain followed by that “hang over” feeling for another 5 days and straight back into another migraine. They were worse every time and to the point it felt like I was having a stroke. My whole right side went limp; I couldn’t open my right eye.

I had MRI and lots of tests all came back fine. During this time I met with a dietitian for PCOS and insulin resistance. Mentioned to her about my migraines and she said “90% of her clients that were told it was hormonal actually had a food intolerance”.

I did the RPAH elimination diet and wouldn’t you believe I reacted within 3 minutes of having amines – Cathy

I have had awful migraines since four years old. I am 54 now. Probably every Friday I was in the sick bay at school. I had medication meant for adults! As I got older they continued but interestingly less once I left home. In my early thirties after my second child was born I had a migraine start with vision disturbance and that migraine didn’t go for four years. Everyday for four years, multiple drugs, multiple doctors, chronic fatigue set in, muscle and joint pain, hospital trips. Then a friend who had been to RPAH allergy clinic said to me, “all your favourite foods are high chemical foods..”. So, I started the elimination diet, went to RPAH and lo and behold, I am pretty much migraine free. If I am not strict I might get a headache or joint pain, palpitations and other symptoms. I react to everything, some things more than others. I might also have some treats fairly regularly now but I won’t ever knowingly have nitrates, nitrites, sulphites, glutamates or benzoates – Liz

I had a migraine every day for four weeks in a row and had cut back to part time work and reduced my commitments. Once I discovered the strict elimination diet, after the first three days I had the first 24hrs headache free in as long as I could remember and it was AMAZING. Now I’m following the strict diet and am almost completely migraine free. I’m going to do challenges to hone in to what is causing them: I used to just get migraines from sulfites and PMS but I seem to have gotten more sensitive since starting menopause. The diet sure has made life work again. It seems to have evened out my moods too. I was recently diagnosed bipolar and everything was going haywire with the hormones but now the up moods have settled a lot. I still have low moods but I’m managing much better I think. Also I had horrible hot flushes all the time and they’ve completely gone which is super cool – Nanci

Migraines were the main symptom that led to me going failsafe. I had them monthly for years, up to 2 weeks straight at a time, and nothing the doctors tried helped even a little bit. I have been FS for 12months now and migraine free for 12months. I have gotten headachy a few times over the last 12months, each time as reaction to eating the wrong thing – Ashley

See Food Intolerance Network factsheet on headaches and migraines

Among all the heartfelt congratulations some other responses:

I’m not surprised by the weight loss...when u cut out the food that’s hurting u, u lose the weight ...simple – Beck

I went failsafe too from daily headaches that more often than not lead to migraines. I lost 15kg and most of mine was from inflammation. I deflated like a puffer fish. And for the first time in 20 years I no longer get daily headaches – Sue

I too had migraines for decades and even daily for three years. It amazes me that neurologists don’t consider food – Marian

I lost a lot of weight going failsafe too. Did not expect it. I think my body was in the habit of demanding more food to 'buffer' against the things that caused problems. Even now, when I feel tummy trouble coming on, I can still reduce symptoms by eating some plain bread/chips. Would never have guessed this was a thing until after I lost weight – Pauline

I am also migraine free thanks to failsafe. Amines and 160b are the culprits for me. Thanks for sharing your story - Jude

I've found I've lost the extra weight I've gained over the years, since being failsafe. The reason for me is that one of my symptoms is increased appetite, often with sugar cravings. Without these symptoms, it's easier for me to regulate my diet to a suitable level - Rosemary

That's so brilliant! The diet totally changed our lives too - Pat

Such a positive story! What a fantastic outcome for you. I hope your experience inspires others to give the diet a try if they suspect food intolerances. I also found the diet life-changing - Sarah

See Food Intolerance Factsheet on weight loss

1536

I usually share meal ideas, but wanted to share a little on how going failsafe has benefited my life. This time last year, as you can see in the pics I was severely overweight. I was sick all the time, migraines that doctors couldn't find the solution for (every month for probably 10 years, sometimes just a couple of days at a time but a lot of the time they would last 2 weeks straight), IBS symptoms, asthma so bad I was on the nebulizer every half hour to an hour, frequent stomach ulcer attacks, over the last 20 odd years I would be up 20+ times a night to constantly pee and always just feeling blah. I had accepted all these things as just who I was, and actually didn't even realise how sick and tired I was, until I wasn't sick and tired anymore.

The other pics are of me today, 60kgs weight loss (have literally halved my weight), no longer use the nebulizer in fact I haven't even needed a single puff of ventolin since going failsafe or the constant courses of steroids, off all medication for stomach ulcers and migraines. I sleep through the night most nights (Well as good as you can sleep through with a toddler in the bed), I no longer need to race to the toilet often and the greatest part of all migraine free 😜. I can actually count on 1 hand how many little headaches I have had in the last year and each one was as a result of eating the wrong thing. Now obviously the physical change is what everyone notices in me, and always asks how I lost the weight. Whilst I don't recommend failsafe as a weight loss solution, it has definitely played a big part in my overall journey. I didn't drop 60kgs just changing the food I was eating, I have worked very hard with daily exercise and learning portion control and getting into the habit of eating smaller portions but more frequently (I would usually only eat one meal a day but then eat a lot of munchies at night), I now eat 6 times a day, 3 meals plus 3 snacks. I wouldn't be able to exercise as I do if I wasn't feeling well or tired all the time. I wouldn't have stuck out the food changes if it hadn't changed my life in such a positive way.

A huge thanks you to Sue Dengate, who has literally changed my life. Thank you to each and everyone in the facebook group, the support, advice and ideas I get on here have been incredible, I don't know how many times I have been in the supermarket and been able to ask a question and get a response so quickly.

I hope my story can encourage others as others have encouraged me, and I will continue to share our meals to help others as I have been helped over the year seeing what others create – Sarah

I have multiple chemical and food intolerance, chronic fatigue syndrome and fibromyalgia. I've been on the low chemical diet for many, many years (I am 63) – it makes a huge difference to my fibromyalgia and also to CFS brain fog.
 
My diet is extremely limited but I can live with that - what is making my life ever more restricted is the fragrance/fumes problem. Even wearing a mask or scarf over my face I get ill on buses, in shops, at the movies etc. and I nearly always get ill when friends visit cos even if they’ve tried to be good, their clothes usually stink of fragrance from the detergents they use.
 
My oven died at xmas but there’s no way I’ll survive a new one, and the 2nd hand one I bought turned out to be faulty. When our sound system was stolen we bought a replacement which my husband kept turned on night and day in his office (as it needed to be warm for the components to outgas) and even after a year I couldn’t go near it.  I can no longer use any form of heating, but tolerate (with reduced function ie worsened fatigue, brain fog etc) a slow combustion stove which the manufacturer agreed not to paint, but which we need to burn each year for about 4 days with the house open and me locked away down the far end of the house before I can go anywhere near it. 
 
ONE YEAR LATER:

Last year you suggested I try a Wein air purifier, so I bought one and have been using it ever since. It makes a big difference, although if something smells very strong I have to hold the ioniser close to my nose or I still get sick. I don’t find it helpful when I’m outdoors among people or if a diesel car goes past, but my trusty scarf (making me look like a bandit) helps reduce my reaction in those situations.
 
I’m about to buy another air purifier so I can have one permanently in my bag. I’ll keep the other one in the house for when visitors come or if a neighbour starts up a chainsaw or leaf blower when all our windows are open. (Most of the time it’s fine only having one, but there’s been occasions when I’ve used it at home and forgotten to put it back in my bag, then gone out somewhere and needed it).
 
It’s really nice going to a play or travelling on a bus and not having to wear a scarf around my face – the purifier is so much less conspicuous!
 
Last year I was in the emergency department overnight for 8 hours, marooned on a bed while they investigated whether my temporary loss of vision was a mini stroke (it wasn’t) and there were smells coming at me thick and fast. The Wein helped me get through it – I do still get a bit sick when exposed continuously like that but it’s nowhere near as bad as it would be without the air purifier. Without it I would have had a bad headache, possibly a migraine, asthma, exhaustion, muscle weakness, pain throughout my body, gritty eyes, brain fog, and the following day would have been a write-off.
 
 The loss of vision turned out to be a different type of migraine to the ones I usually get. I’ve had regular migraines with aura for over 20 years – I usually get 3 or 4 a year. One of my triggers is chemical smells. I’ve only had one migraine since last November and I’m wondering if it could be because my body is less overloaded by scented triggers because I use the purifier so much.
 
Anyway, I just wanted to thank you. It’s been a brilliant addition to my life - Lesley

minimate02

Colours, flavours and preservatives make my son go nuts but his worst reaction ever was to some blue pain medication after he had his tonsils out - he grabbed a knife and started stabbing the sofa - Breanna

canstockphoto7395270small

Absolutely diet can help! My daughter had dreadful night terrors. I eliminated amines and bingo! No more horrifying nights 😊 - Sue

I regularly suffer from nightmares and night terrors when not eating failsafe. My screaming scares the pants off my partner. At least I don't snore, though...- Sarah

Night terrors are the reason we tried failsafe for my then 20mo. She went from 3-5/week (absolutely horrendous time for us we had been living like that since she was 8 mo) to none unless she eats non failsafe. Sals and amines cause it for her - Josie

My story is in the blog...stopped within a week after being dreadful and frequent. But... biggest trigger was antioxidants, and as she got older the reaction became sleepwalking instead – Tracy

Above in response to blog on Night Terrors

I have been through the RPA 10 years ago & a dietitian helped me through the diet (for eczema). This was very successful. I have salicylate, glutamate, nitrate & sulphite intolerances & have done pretty well for a long time. I don't try to deviate too much from my moderate salicylates. It's not worth it! 

I only wish I knew what I know now when I was much younger -  it would have saved years of suffering.

You guys are amazing & I only wish more people would listen when I tell them about the diet. Unfortunately, most people would rather pop pills than find out the real problem - Kerry

See Food Intolerance Network factsheet on Eczema

My male partner  (47) has suffered from medically diagnosed gout for three years and has tried many things; prescribed medication, a low lectin diet (as per the Plant Paradox book by Stephen Grundy), the prescribed medical low purine diet to no avail. His gout was in his foot/ankle and when it flared he could not even stand the bedsheet touching his foot.

I had done the failsafe diet for my daughter 20 years ago with success and I encouraged him to try failsafe. He undertook the failsafe diet as per the RPAH regime (no dietician). We only challenged salicylates, amines and glutamates as we do not eat artificial additives. He is gluten free and only has A2 milk (prior to failsafe as these foods suit him better). When we undertook the challenges he passed the salicylate challenge and failed miserably with amines and glutamates; both bringing on gout. He avoids all amines and glutamates and he is now gout free. – Susan

Mango (high in salicylates) gives me gout in 1 foot  … Really sux cos I have two huge mango trees on my property! Lol – Tanya from facebook group

Dad's not on failsafe diet, gout is what he gets. All joints crystallised including his toes. Coconut and beer are the worst triggers for him – Emma from facebook group

My husband’s gout has improved since our family went failsafe. He’s not really on the diet but eats a lot of our failsafe food – Michelle

I started getting gout attacks a few years ago - eventually I realised it was the day after we ate in our favourite restaurant (Thai). We still eat there but I avoid the oyster sauce and we don’t take a bottle of wine.
 
Sue’s comment:  What’s in oyster sauce?  In Maggi brand, one of the main ingredients is flavour enhancers (621,635) and oyster extract forms only 0.4% of the product. Flavour enhancer 635 is strongly linked to gout. See Gout factsheet

1530oyster  INGREDIENTS: Water, Sugar, Salt, Thickener (1422), Flavour Enhancers (621, 635), Yeast Extract, Flavours (Crustacean, Fish, Soy), Food Acid (Citric), Colour (150c), Oyster Extract (0.4%), Preservative (202).

We did diet for explosive ADHD symptoms. It made a massive difference. The thing that helped us the most during elimination was focusing on what we COULD eat. I wrote the list on my fridge so it was visible. And I found adapting recipes wasn't that difficult once you got into the swing of it. I highly recommend going the whole hog and doing full elimination. We tried just doing low and moderate and it didn't give us a clear enough picture of what the trigger/s were. I promise it's not as hard as it looks. Just be prepared for lots of white food. But it doesn't have to be boring! – Kat

Pre-failsafe, my daughter was annoyingly hyperactive and inattentive. I was looking for one trigger. What I learned was...

•    Salicylates make her vague
•    Amines make her antagonistic
•    Glutamates make her highs extra high and her lows extra low
•    Colours make her silly but only last a few hours
•    Antioxidants make her completely ridiculous, an absolute pain in the neck, you can’t reason with her, you can’t discipline her, there’s no comprehension of consequences and it lasts for a week
•    Nitrites stop her sleeping

Combine that and you’ve got a stupidly hyperactive kid who runs around like a total fruit loop with not one single care about discipline, boundaries or consequences, who loves to annoy the living crap out of her parents but who melts down when corrected and whose ears don’t work - ever.

But because the worst one - the antioxidants - lasted a week, I never connected the small Maccas fries she had on Sunday to the crappy behaviour on Thursday, and because amines took WEEKS to build up and was always there, there was no way I could have linked it to aged meat and bananas.

But if I keep antioxidants out, and keep glutamates to a minimum I have a kid who gets vague when she eats too much fruit or spices and whose eyes light up with pleasure at annoying the crap out of me after eating too many bananas. She lives with her reactions. She understands what does what. She doesn’t live on strict diet (or at baseline) she just keeps it “ok”.

I know rpah (failsafe) elimination diet is huge and daunting and really inconvenient but it really is the best (the only?!) way of clearly connecting trigger foods with symptoms – Rhonda

What’s your opinion on bed wetting that may be triggered by diet? My son said he’d rather continue to wet the bed than give up fruits 😁, he LOVES fruit. I’m just guessing there is a link to fruit - Helen

Salicylates were certainly a trigger for my son in night wetting - Kelly

One sign of intolerance is often that we crave our problem, kind of like an addiction (withdrawals and all) - Tracy

My 5yr old daughter is the same 😂 - Deb

Sals here 😒 - Rebecca

Amines cause my daughters oppositional defiance and part of that is holding onto her wee until she wets herself - Tess

4 weeks on the full elimination diet and my son (almost 6) has only had 3 wet nights when it used to be pretty much 5/7 days. Yet to find out our trigger, but it’s been amazing for him. He’s so proud of himself - Marie

Sals was definitely the trigger for my almost 7yo. We changed to moderate and low sals last yr and within a month she was dry at night or waking to pee. Was extremely hard as she loves fruit and didn't want to give it up either but we were also having other issues which also got much better when we cut the really high stuff - Peta

Sals triggered bedwetting in my DD but DS doesn't seem to be any food trigger – Lee

Sals cause bedwetting here for two of mine, one is also additives. Having progressed with tolerance to moderate level, now only happens if consuming over threshold so definitively related here – Emma

(Lightly edited from May 2018 to focus on possible dietary causes. Thanks for the other supportive ideas. See also factsheet on bedwetting)

We are towards the end of Elimination Diet for Master 4 with ASD & ADHD. We have had significant improvements in behaviour - defiance, hyperactivity, stimming, concentration. He failed Dairy, Wheat. He can tolerate Moderate Salicylates and Amines. I make up big batches of allowed foods and freeze . I make G/F cupcakes from Ethan’s failsafe Recipes and we are under guidance of a dietician – Sharon

ADHD and diet factsheet

Blog on ADHD label

Q: Anyone get (blurry) vision issues as a symptom of amine/sal intolerance? – Rachel (facebook group)

A:  I have noticed I don't see as well when I'm reacting to foods – Ann

I can confirm that when food was making me so I'll that I ended up on steroids (there was a waiting list for the rpah Dr and I didn't know what was going on yet) I got so inflamed from all the histamines released in my body from eating non fs foods that my vision blurred – Jen

They interrupt my motor skills so everything is on slow motion, including the messages to the brain, hence the "blurred' or distorted vision - Amanda

Yes me too! I thought it was just me until I joined this group. Mostly for me it’s like the beginning of an aura migraine where I get a spot in the middle of my vision and just can’t quite see ‘clearly’ all day. It’s so frustrating. This diet has been life changing - Kath

I used to. I had so much constant, thick congestion for 9.5 years. Always a sinus headache/vision and eyes achy at times. For me, going Dairy Free and eating low sals has totally changed my life. Life is so much better now. Remember, what works for one, might or might not work for you – Karen

After eating 2 tamari and some corn chips, woke up the morning had blur vision! Haven't had corn for a while and try to reintroduce back but didn't work & at least know the cause! - Fiona

I finally had some success with following the diet based on burning mouth syndrome diminishing (see also story [1466])  ... I have new hope for losing weight. I've had food cravings go away entirely for the first time as an adult, which has let me endure some hunger without tears, and I have my peak mental clarity, which I prize - Laura

I have been failsafe for 8 years and have just completed another round of the elimination diet for some new minor health issues. I'm currently being fleeced by my 2 gorgeous grandchildren (8 years and 6 years) because I promised $1 each per day for their piggy banks for every day they stick to the elimination diet. It's working so far.... for them anyway - Nicola"

About five years ago in Kathmandu, Nepal, we met an American guy sitting in our hotel restaurant with his foot on a chair.  Aged maybe 35, he was barely able to hobble. He said sadly: “I came here to do a trek. But now I have gout – it’s so painful I can’t even walk. My whole trip is wasted”.  Both he and his doctor were mystified about the cause. Gout is usually associated with too much meat and alcohol in older age men - not the case here.

According to a local journalist, gout is common in Nepal, and attacks "seem to start at a younger age group (less than 40 years) in Nepal than what is usually noted in Western medical textbooks (over 60 years)", for unknown reasons. https://www.spotlightnepal.com/2011/08/09/gout-in-nepal/ - Sue Dengate

story1522

A ribonucleotide-containing noodle soup advertising blimp being towed through minor towns in Nepal

Sue's comment: I guess the culprit in both cases would be ribonucleotide flavour enhancer additives. These additives are heavily used in Nepalese food such as instant noodles, soups, sauces, fast food and snacks. These high purine additives are as strongly associated with increased uric acid and risk of gout attacks as high purine foods although, oddly, they are never mentioned in any medical gout diets or lists of high purine foods.

These additives can be called inosinates, guanylates and ribonucleotides (E627, E631 and E635) or  in America flavor enhancers Disodium Inosinate (DSI or IMP), Disodium Guanylate (DSG or GMP), and the combination of IMP and GMP (I&G).

"Ingestion of large amounts of these compounds by man can increase the serum uric acid level and urinary uric acid excretion and this needs to be considered in relation to people with gouty diathesis and those taking uric-acid retaining diuretics. Hence, specific mention of the addition of these substances on the label may be indicated (but this didn't happen - ed). The changes in dietary purine intake from the use of flavour enhancers are no greater than those likely to be occasioned by changes in consumption of those dietary items which are the main contributors of purine." - JECFA (the Joint FAO/WHO Expert Committee on Food Additives who assessed these additives in 1974) http://www.inchem.org/documents/jecfa/jecmono/v06je01.htm

I have osteoarthritis … lots of nerve pain & damage - and was put on Lyrica to which I reacted and hated being on. After coming off it, I developed skin rashes … diagnosed as very late onset (I’m now 68) eczema which I have never had before. I have heard of (via FB) several others who have also had major skin problems coming off Lyrica - Barb

My son has ASD and I was lucky enough to stumble across the horrible effects it had on him over a year ago. His symptoms are irritability and total sleeplessness ... he stays awake all night after having some! I truly believe this is a harmful substance and should be banned. It's confusing because it's a 'natural colour'. I could see a lot of people not knowing that this additive could cause such a huge side effect! – Jenny

See annatto 160b factsheet

I always avoid foods that gave me migraines, such as bananas etc but then I started getting severe migraines and realised it was 160b in ice cream. It was because I decided to have a little every evening when a container was brought for the grandkids and they decided they did not feel like it. By the end of the week I was literally banging my head on the wall. So I researched what I had been eating all week and found it had to be 160b. Now I try to avoid it, but whenever I get a migraine I look back at the package and always find that it was in it, when in the past it never was! – Kathy

See also headbanging factsheet

1518

Just needing to vent... my husband spent months sabotaging the diet to prove his belief that food has no impact on behaviour. He was secretly feeding our son bananas and lollies. At one point I laughed because our son threw up in the car after eating one. The last few days have shown very high salicylates to be an issue and still hubby thinks there’s no connection. How the heck do you get your partners and family on board? I’m so frustrated because my son is being quietly tormented for longer than necessary all in the name of proving a point.

Update... hubby is now on board and has made amends... with flowers!! ????- Anna

See full moving and funny transcript of the facebook thread, with permission, because it is too long to summarise https://www.facebook.com/groups/128458328536/permalink/10156908872873537/

Some edited highlights (names changed):

I told him he’s wasting my time because I’m the sucker filling out food diaries for myself and our son... then he complains I don’t have time for him... well genius, why do you think that is???!!!????♀️???? - Anna

For ages I tried to tell my family that there were certain foods that triggered behaviours in my son. Finally with eliminating the foods I could pinpoint my son is a completely different child... finally I have a happy child and family - Mel.

The challenges were showing DH that it wasn’t just growing up and learning, when all the old stuff suddenly came back on cue ... then disappeared again. Although still wasn’t really convinced until about 3 reactions later, following clear baseline in between, where I accurately predicted each day ahead of time - Tracy

This is it!! I can predict the days that are gonna go pear shaped and he keeps saying it’s just a coincidence ???? - Anna

My daughter is sensitive to dairy and when I first noticed I told my husband. He didn’t believe me and gave her a whole cup of milk then experienced her full aggressive meltdown. It took seeing it for himself to realise... after that I had his support and understanding - Tanya

I wish my hubby would acknowledge what he sees... he just keeps denying it... it’s so frustrating! - Anna

Are we married to the same man? - Mary

I would simply say there’s not a person on the planet that would choose this diet if it didn’t have a benefit to outweighs the sacrifices that come with the diet. The quicker you can reach baseline, the quicker you can rule it out or set a course for a new way of eating for you and your daughter. One stuff up just prolongs the process and isn’t helpful - Danielle

I did point out that he has delayed us getting true results and our son is being tormented longer than he should be by this diet – Anna

I know what I’d be giving up for him!!! - Meg

I suspect he has food issues too lol he’s a sceptic by nature so it’s difficult to get him onboard with anything – Anna

I would respectfully point out that your child is the one suffering here - not him. Request he shelve his ego temporarily for the sake of the health of your child. Good luck - Jacqui

I actually had a grandparent say "this is all bullshit” (meaning that food doesn't affect behaviour) while pointing a finger at my 6 year old son who was in meltdown after a reaction. I respectfully lost my shit. This journey is hard enough without that rubbish. I said “you don't have to like it. You don't have to agree. But keep it to yourself and stay out of it.” End of discussion. Harder obviously with a husband - Jacqui

My response is..."When you've read some literature on the subject and your opinion is based on more than just your upbringing and hunches then we can talk. Until then stand back and let me get on with it because what we've done up to this point clearly hasn't worked for him" - Jacqui

Have you tried taking him to a dietician appointment so he hears the symptoms and reactions from a professional? Maybe having a third party involved might help convince him - Laura

Yes actually! I thought the same thing... he was politely insolent to her ???? - Anna

Have you tried getting a new hubby  - Paul

My husband is similar, doesn’t believe it’s a thing and resists and complains, although doesn’t deliberately sabotage. Something we were advised, which I think is sensible, is to have one parent do the food diary and the other monitor symptoms... – Jen

You can definitely win this battle together! Let’s get creative. Lock the pantry. Hahahahaha – Jan

Could I please hear from anyone trialling the fs diet with a baby? How did you work out the severity and presence of symptoms? We have an appointment with a dietician to (hopefully!!) work out the cause of our 9.5 month old being awake and uncomfortable after dinner for up to 8 hours sometimes. The allergist suggested amines and salicylates since the problem foods are all listed as high or very high – Cath

My little one was confirmed with a salicylate intolerance at 10 months after a strict 6 week elimination diet. My suggestion would be to have a food dairy to track all food and fluid intake and reactions. I specifically tracked sleeping and stool as well as these were big ticket items for us. I would also recommend from my experience starting at the beginning with the elimination diet then introducing new foods in a timeframe agreed with dietician and your baby’s symptoms. Be flexible though as it can change. I still track 14 months on! – Laura

We started when my daughter was 3 months old. She was solely breastfed so meant I needed to do it. We tested me, and she was tested through my milk at 9 months. We did more testing when she was about 3. Early tests gave us back salicylates – Anne

We started dabbling with the diet at that age but didn’t commit fully until just after 1yr. After 6 weeks on failsafe our boy finally started to relax, play independently and sleep through. Good luck with your bub! – Carol

I went through this when my son was 6 months old. He wouldn't settle to sleep, had eczema issues, was constipated despite being breastfed and seemed almost hyperactive. The elimination diet was probably harder for me as I was breastfeeding so had to do it as well, at six months he hadn't eaten a lot of solids. But by day 3 we went through a bad withdrawal phase and by day ten my son slept 5+hrs for the first time in 4 months. He is now a much happier healthier child (and he sleeps!), and is slowly building his tolerance levels so we are introducing new foods. He is now 16 months and is starting to tolerate moderate salicylates and amines. The elimination showed sensitivities to amines, glutamate s and salicylate so we are on a long journey but his recent improvements have given me hope. The downsides of this diet were really for me. I was very stressed and sleep deprived when I started it. It contributed to my milk supply drying up and also impacted on my mental health which to be fair was not in good shape when I started. I lost 5kg unintentionally and was so bored with the food I lost interest in eating. I wish I had stopped breastfeeding to be honest earlier so I didn't put myself through it. No one warned me that my milk supply could be threatened but I also know it was likely a combination of things. I was however grateful to have such a good medical team behind me even if it did mean travelling 3 hrs initially. Best wishes to you and your child! - Cassie

We started elimination levels on my LO when he was 1. I was still BFing, so did it too. Amazing improvement in a few days. We trialed foods in my diet (ie through my milk) before trialing the same foods on him directly. I strongly suggest you keep a detailed food diary that includes anything that goes into your mouth or his as well as his symptoms (stool consistency/mucous/blood, temperature (if unwell), vomiting, diorhhea etc) & anything important that may have happened that day (eg went to day care, birthday party). This includes drinks/liquids as well as medications & brands of food. I discovered when we changed brands on one item we saw a reaction. Also, it meant if my LO needed pain relief, the kiddy Panadol syrups were not ok, so we need to buy the tablet form (without preservatives) & crush the tablet & give a portion of the tablet based on his weight (I recommend talking to your pharmacist about suitable dose). We found similar with Amoxil & other meds. Good luck, mumma - Sarah

My daughter was the same, tummy aches didn't sleep and it was eggs. She was breast fed so even if I ate eggs she was affected – Jen

We started FS when bub was about 12 weeks old ???? He was breastfed and suffered extreme gas and silent reflux and was either being fed or screaming, very rarely sleeping. It was difficult to work through and I made many mistakes unfortunately. We kept a strict food diary which helped me go back and analyse things as needed.

We saw improvement after a few months when I started to get the elimination stuff right.... his main trigger is salicylates so he’s still relatively low sals at nearly 3. I must admit it was a relief when we weaned at 2.5 and I was able to eat “normal” foods again.

We found challenges very difficult because with young children there is always something else going on - it took us until he was 18 months to get through them. Since challenging we’ve been able to reintroduce amines, soy and dairy (gluten was never an issue for us).

I love the RPA handbook for a quick easy reference guide for what he can and cannot eat. I’ve also used it to explain to family what we’re doing with diet because they didn’t understand and we’re quite critical.

My other tip as they get older is to continue to look out for behavioural manifestation of reactions. Our sons tummy symptoms have lessened but the behavioural symptoms have significantly increased - Karen

(Sue comment: make sure your dietitian is familiar with RPAH elimination diet.  See supportive dietitians)

Since about 18 months of age, our son has had asthma on and off and it took us a while to work out what was going on. One of the things that was happening was that every time he ate dried fruit, three or four days later he'd be sensitive to things. So if he had a chest infection, he'd have an asthma attack where normally he wouldn't. Or if we had a cold snap in the middle of the night - like around springtime - he'd had an asthma attack, starting out coughing, just as a cough and then it would develop into a full blown asthma attack. Eventually, we realised if we could keep the dried fruits and sulphites out of his diet, a lot of his problems would go away - Darryl (from DVD 2006)

See how few dried apricots can affect your asthmatic child

Asthma and food factsheet

1515crohns

Update after 8 years: We are all doing well. My daughter with Crohn's is doing well although she flares up sometimes with too much dairy and now knows how much is enough. The funny thing is her Crohn's symptoms aren't really there anymore, it's just her top lip that swells with too much dairy (see photo - the paediatrician called it an angular stomatitis).  Her mood is also affected. We haven't been following failsafe to the letter either so pretty good considering. I often recommend failsafe to people and know that if they just tried it, that it would work for them as all the nasties in food are just terrible - Shelley

See more [1060]

I am a 60 plus year old woman who has suffered from Atrial Fibrillation for a number of years. I noticed after some time that it was triggering about 40 minutes after partaking in food and have spent many years trying to pinpoint the triggers. Sorbate preservatives 200 and 202, plus 282 are most definitely my triggers also alcohol which I have stopped drinking. I get triggered mainly by sauces and dressings or anything with those preservatives in.  I do wonder how many people are unaware that their Atrial Fibrillation is triggered by certain additives or food groups. It took me many years to pinpoint my triggers, and I now have to be very careful especially when dining out – Sandie

I would like to thank you for what is most certainly the best website on the planet. After 44 years of health problems which severely escalated 9 years ago, I was about as near death as I would ever care to be. Doctors were treating me for autoimmune neuroimmunological syndrome… with huge amounts of medication and big scary treatments of intravenous immunoglobulin. They told me I would likely die if it didn't work... Two months after the treatment, I started to get even more ill and I picked out my funeral dress. And that's when the doctors pretty much gave up. I was severely disabled and in huge amounts of pain. I had become so toxic I was going into anaphylaxis with nothing but light needed to trigger it. Every time I ate, I would end up on the floor or seizing. When we worked out it was something environmental, we started with a low histamine diet. But I was eating blueberries, broccoli and olive oil, and I really thought it was all over, until I worked out the Salicylate connection.  Finding a truly reliable resource of information was hard, your website is just that, and continues to be an invaluable asset to my survival. By connecting the preservatives and amines, your website has been life-saving. The reversal of my multitude of horrific symptoms is nothing short of miraculous. I lost 25kg of inflammation fluid in just weeks, I had been trying to use my poor body carrying that for 9 years, whilst trying to eat ‘healthy’ vegetables to lose the ‘fat’, ironically getting bigger and more ill. Thank you for all the time and energy you put into what you do, I will be forever grateful - Sara Altman, Ibiza

LATER: Awareness about PST Enzyme deficiency is something the medical profession globally could stand to improve on, and fast, before they pointlessly over-medicate and nearly kill the next poor sufferer. I have also never felt better than I do today, or understood the human body as much as I do now. You guys, along with the work of Rosemary Waring and Anne Swain back in the 70s, are the reason I am alive - S

A well respected paed recommended fruit to fatten up our bub who was not gaining weight and had terrible rashes and screamed half the night. So glad we got onto RPAH not long after. He was unwilling to consider food as being an issue – Clare

Same here with our boy! Diet has been a godsend for my sanity! – Kay

RPAH has proven helpful with all 5 of mine. Some doctors might not 'agree' with it but they don't see my children & their reactions..if I can manage mine best by following RPAH then I'm happy to do so, even if not everyone agrees with that choice – Lyn

The proof is in the pudding (the failsafe one????????) my son stopped waking every sleep cycle screaming in pain when we commenced RPAH – Danielle

Thank you for all the amazing hard work that you both do for all of the food chemical intolerant people – Bernadette

Our boy had aggressive behaviours come out when he did the glutamates challenge when he was 2. He scratched me, but me, growled like a tiger and threw a kids chair at me. Parmesan cheese, soy sauce, salt and vinegar chips were the worst. Then the bread in Australia always has vinegar in it ????????♀️. We make our own bread. He has got better over last 5 years but we still make bread products and avoid salt and vinegar chips like the plague.

We did systematic challenges under supervision for salicylates, glutamates, benzoates (with sunscreen too), amines and ribonucleotides. He reacted to all of them. Had a massive ribo rash. We initially found out because he was hospitalized twice with breathing issues when he was a year old. He was on strict Failsafe for 5 years. Is diagnosed with sensory processing disorder and executive functioning disorder and born with a low immune system. I always say God gave him to me to learn all about these things so I can help students in my classroom (Year one). We’re just finishing a year travelling the USA in an RV and have kept him on his diet as much as we can. He did Distance Education this year for school and continues to get high grades - Tina

My DD12 doesn’t have ASD, although when reacting some traits would make you question. She has a high tolerance for glutamates, being able to freely eat things like Vegemite (challenged that one separately for a week to confirm) but a single meal with actual MSG or the flavour enhancers is too high and needs to be strictly avoided.

It’s hard to spot without the elimination and challenge as her reaction is delayed, remaining completely calm for 18-20 hours after ingestion, but then Bang! Full on emotional meltdown with unstoppable angry crying and ranting even when removed from the situation, such as continuing to yell from the other side of the road at a friend about something minor. This then continues for a full 5 days, from a single ingestion, worse each day when triggered with all emotions ramped up (happy, sad, angry, whatever ... they’re all maxed out) to the point where my normally calm and adored by her teacher girl in Prep worked her way through all levels of disciplinary procedure to the Head of Junior School in the space of 3 days as nobody could handle her. She then woke up on day 6 calm as, back to normal, full emotional regulation back on track.

No idea what glutamates do to DD14. She’s my most sensitive one. After elimination when little, having never had it, she refused to eat it. We could never do the challenge. Still can’t. All we know is she’s not as sensitive as her sister as she had no notable reaction to one dose, but refused a second, and while she’ll still have a few salt and vinegar chips she says even the smell of most other MSG foods makes her sick – Tracy

I work as a teachers’ aide in special schools and we mainly look after children with autism as well as children with challenging behaviours and high needs. I can tell you from my experience assisting children with autism during snack and lunchtime that most of the kids come with processed food, usually chips and crackers.  Some eat up to 4 small packets a day, as they like the crunchy texture. I can see a child go from calm to extreme change in behaviour after eating foods like BBQ Shapes and some types of Harvest Snaps, both containing glutamates , on top of having sweet snack foods containing 160b (the colour does terrible things to these children but that's another story). Parents feel guilty and giving kids these foods which become their favourites and could never take them away as it's become part of their routine. Eating changes their behaviours significantly, hand flapping increases, closing ears, pacing etc compared to the odd child that has a strict diet of only protein and limited veg and fruit. It doesn't take away the autism but the child is a great deal calmer and easier for us to manage - Sheree

My ASD son, now 18, is definitely sensitive to glutamates, both artificially added and naturally occurring. His tolerance has improved over the years - he can have small amounts without too much effect, eg some peas in food. Artificial glutamates are another story - definite behavioural changes with these. I have even noticed changes after eating certain rice crackers that have soy sauce in the ingredients list.

It has been harder to control his diet now that he is 18 - he often sneaks food that he is not supposed to eat, and is in denial about the effects on his mood and behaviour. We get nasty mood swings and extreme anger that is easily triggered. He is not a small 18 year old, and it means that sometimes we are all walking on eggshells around him to try not to trigger the anger. He is never violent to people, but often throws things, smashes things, slams doors etc. As you can imagine, this is very stressful to deal with and live with. He is already on medication to help with his behaviour. We have done the failsafe diet since shortly after my son was diagnosed, so about 14 years – Leanne

We’ve been following a largely failsafe diet for my kids for over 10 years and it’s been a life-saver.

A well-meaning friend bought the kids the brown tub Bulla Classics Real Ice Cream Vanilla ice cream which has annatto B in it. An hour later my 13 year old had hives come up all over her face, as well as feeling generally rubbish (her words) and being very cranky (my observation). The kids call annatto "yellow hell" because they all react to it in some form, and it is showing up in more and more food - Hannah

canstockphoto8476359small

My daughter reacts highly to chocolate. She has amine intolerance but I’m wondering what else could be there as her chocolate reactions (behaviour) seem more extreme than any other? - Ruth

There are different types of amines. My daughter seems to react to some types of amines more strongly than others - Tenille

I'm generally fine with amines in standard doses - I can eat aged meat, cheeses, etc. If I really splurge I'll react but it takes quite a lot, or I'm under stress or have my period (my threshold is lower all round then). However cocoa / chocolate and I do not mix. It causes anxiety in me at a minimum, and at a max full blown screaming raging melt downs. I cry screamed at my son once while reacting to a block of dark choc for getting water on the floor. It was the bathroom floor. He'd just got out of the bath. Totally irrational and really scary actually. I had no control. My son’s worst reaction is amines as well and the big sign is rage like he's possessed – Ali

Yes for me. Rage, aggression, anxiety, disturbed sleep – Ruth again

In a child it is one thing but as a 28yo adult it frightens me. It really made me have empathy for our kids rather than be mad at them. I went my entire life thinking I had no food issues, and just half assed this not wanting to cook multiple meals so ate what my son ate and wow I learned a lot about myself – Ali again

Omg! You are my kindred spirit! I’m exactly like that! Complete unnecessary rage... so awful! - Alison

Since having our food stuff more controlled, we are a happy, pretty calm family...Ali again

I’ll have to show this to my daughter. So she knows she is not the only one – Ruth finally

It can really help to make sense of it and feel like it's a legitimate thing, not some crazy madness all in your head! – Ali finally

Watch for added flavours. They are my girl’s chocolate trigger - she’s fine with pure chocolate- Tracy

I agree with others - the flavours can be the culprit too. Cadbury was the worst, my daughter passed the amines challenge with chocolate but she reacted very badly with Cadbury - Teresa

See more Amines factsheet

I have had asthma for nearly all of my life and in more recent years have also suffered with insomnia, an inflammatory-state throughout my body manifesting as fibromyalgia-type pain, loss of energy, rhinitis and head-pressure at times, to mention my main ailments.

I have tried reducing SAGs (salicylates, amines & glutamates) as well as food additives, having first come upon the book, 'Friendly Food', earlier this year and then coming across this website.

Potassium sorbate, propionate, annatto, soy lecithin, soy products like soy sauce, yeast extract products have all been excluded from my diet through eating only salted butter rather than margarine, having no ice cream, not even being able to use Easio starter yoghurt culture because it contains soy lecithin therefore requiring me to use my own yoghurt starter. I don't eat vegemite or any other yeast extract products and am lessening my fruit and some vegetable intake. Unfortunately, for quite some time I have had to eliminate honey, not to mention jams.

I have also excluded products like corned silverside and all hams, bacon etc. No cream cheeses. Now, I always make my own bread and several other food items. I have minimised coffee consumption from 1 cup a day to 1 cup a week and I may eliminate it altogether. I have gotten used to natural-flavoured cooking and like it. I now almost find food with soy and worcestershire sauce overbearing. Of course, stock cubes are never used now either.

I use plain water to clean my hair rather than using shampoo, which I will use very occasionally, not every day which has been my habit up until now. This is to alleviate the rash on my forehead.

After starting my low SAG, additive-free diet, the first miracle was being able to sleep again. I hardly need to take Ventolin anymore. My pain has left and I have far more energy. I wouldn't even consider trading my newfound better health for these high-chemical foods. I still have plenty of foods to choose from, especially if they are natural and not out of a package. Packaged foods include things like tea (I know, this is very high in salicylates-usually 1 per day), flour and rice.

Thanks so much to you and Howard for your very generous website with all its research, reader stories and information. You have helped me so much, along with Dr Anne Swain's books, '˜Friendly Food' and the '˜RPAH Elimination Diet Handbook' along with your own 'The Failsafe Cookbook'  - anonymous by email

Thought I would let you know I am a lot better. Seeing RPAH Allergy Clinic directly made the difference and now I am having symptom free days. The key was the chart they gave me that showed how to add foods back in. That has made the difference. Every time my symptoms increased I had been going back to elimination and I was becoming more and more reactive. I started with 1/2 serve of amines (salmon or banana) every second day. Then introduced half a serve of sals once a week ... then I stuffed up and had to go back BUT NOT to the beginning (one step back) so you build up the base no matter how small it seems to be. I am now on 1/2 serve of moderate sals or amines each second day ... and I am so much better  The problem is with rushing ... you can't help it ... you end up further back but not at the beginning - Sheridan

Has anyone done the elimination diet for a child with ADHD, if so, did it work? Would love some advice/tips/help! - Tash

We are not ADHD but anxiety that presents as explosive rage. We have just finished week 2 of elimination and have 2 weeks to go but he definitely seems calmer and a little more controlled. He is himself sticking to it rigidly as he has noticed it is helping him feel like "his brain is racing less" - Kat

We have. We have found amines to be a huge trigger for poor emotional control. Food colouring exacerbates his hyperactivity. My 8 yr old also has autism - Renee

Yes, had huge results after first 2 weeks of going baseline. Concentration, focus, calmness. The boys dad thought I had sedated him. Strict elimination.MSG was huge problem - Tracy

Incredible results. Definitely recommend it - Verity

Same here - school was talking getting my son assessed. All concerns went within about 2 weeks (we hit baseline pretty quickly as I’d done some precursor removal of some foods before going to full elimination) – Kerryn

We are a few years in now. After doing the full elimination time we found that MSG it was big problem for our boy. It was definitely only part of the solution with lots of professional help from a dietician and psychologist - Annie

Yes and saved us all. 100% worth it here - Emma

Absolutely! We are now 20 years into this journey, and I thank God for Sue and Howard every day! - Sharon

Same here. I started with my family about 25 years ago. It made a huge difference to all my children but particularly my youngest son. And I found out that I reacted to everything that they did, just not as strongly. I was also told that boys grow out of it, which seems to be the case with my boys. Or maybe they’re just too stubborn to recognise the signs now they are adults. ???? - Jane

Yes. It has 50% treated the symptoms but we still need medication to assist. Given the intolerances though we are struggling to find a medication that doesn’t make him worse! – Nicky

Yes it was amazing. But the biggest tip I can give you is to make sure you put 100% effort into doing it perfectly with no slipups. Otherwise you might think it doesn’t work and I’m so confident that it does work but you have to put your heart and soul into for 2 weeks straight at least – Karli

We did this 13 years ago with our eldest. He is about to turn 17 and has never needed medication, we 100% diet control. That being said it doesn't work for everybody but it certainly can't hurt to try ???? - Tania

Yes, we did. She is now 20 and doing well. Preservatives and colours were her biggest problems – Mara

Yes and yes. It helped immensely. We started 3 years ago. Most of his sensory issues resolved and moodiness, lifted the brain fog a bit. But we also medicate now as well. It was the best choice for him. We did it as a family and it was well worth it for everyone. I discovered my own intolerances that were majorly effecting my own health - Kylie

Two years of strict dieting; master six reacts strongly to glutamates, moderate amines, flavours, colour and flavour enhances. Diagnosed two and half weeks ago with adhd and now on meds.... after hubby just feeding him ‘anything’ (thinking meds would solve it all) we found he still reacts to food he shouldn’t eat... so for us a combination of good diet (his foods) and meds we are on the right path... - Jo

Sue Dengate saved my life and my children’s. Best tip: have a supportive partner. Mine wasn’t. Took 9 months to do a 3 months test ????. I was shocked at the Behaviour and health improvement. Not easy but for me definitely worth it- Cathy

It's not easy but definitely worth a try. Like others have said here - you've got to be organised and committed. You definitely get results & you'll feel so proud of yourself & your children once you start to see those results. It's a big learning curve but so worth it. Good luck. Xxx  - Clare

We started FAILSAFE because of concerns around ADHD. It worked really well and we now know all our son’s triggers. In the beginning (pre-school to year 3) diet was enough. From year 3 though, it just wasn’t. He is grade 7 now and we use a combination of medication and diet as ADHD management – Bron

IMHO ADHD is a problem with neurotransmitters in the front lobe of the brain. Food and environment can reduce the symptoms but not completely remove them. If they are removed then it wasn’t ADHD to begin with, it was a food intolerance. In our family food does help so much but other assistance is still required - Elise

My daughter had severe autism as an infant... as a toddler we made her dietary changes based on recommendations from her specialist... her improvement was nothing short of a miracle... she is now considered to be in the high functioning/anxiety range... the diet is 100% worth doing... reducing toxicity is EVERYTHING!!! – Ali

If I didn’t eliminate flavourings, colours, and preservatives my child would undoubtedly have an adhd diagnosis - Caroline

I have issues with hyperactivity and attention. Removing my triggers i.e. salicylates and preservatives has helped immensely! I also find magnesium supplementation to be helpful. Besides that, I utilise time management techniques to focus my attention better – Mara

I have ADHD and when I was following this diet I was so much better I was even allowed to lower my meds dose, it was easy to think and concentrate, I had less sensory overloads, it works definitely do it – Ash

I did with my daughter and myself. I am bipolar and she was diagnosed with ADHD & SPD the elimination diet worked so well 6 years later we still follow it and we are a anti-salicylate family.  I had everything done through this amazing pediatrician. My kid was getting suspended twice a year and on behaviour programs, we started and now she's honour roll going on to a scholarship. All it was, gluten and salicylates – Nina

I use to watch my boy eat something and not long after was off at 100 miles per hour. Did allergy tests to rule anything out before going down the food intolerance way - which worked big time! – Tracy

Yes, we did the elimination diet 4 years ago and it fixed my son’s ODD symptoms completely. He was always very touchy/feely to the point of annoying with his friends and brother which we were told was just a marker of ADHD. This eased considerably after elimination. We found our main adversary was preservatives, within 2 weeks we noticed a massive difference just changing the bread - Katherine

ADHD factsheet

ADHD “a meaningless label” - or not? blog

For those who are eating without certain food chemicals - do you crave foods with those food chemicals that you are avoiding? I seem to crave intensely things that are high in amines and glutamates – Mel

In the beginning I had intense cravings. They went away – Gail

My child with behavioural/emotional symptoms craves his poisons. My child who only gets pain and physical symptoms does not crave his poison at all - Paula

Paula that makes total sense to me. I do not cheat on the foods that cause me painful reactions. But for emotional and behavioural  neither myself nor my son remember nor do we "feel" them as they "look" - the outward reaction does not feel like the reaction we are having – Gail again

Yes. I was theorising with my husband that I'm addicted to the immune response I get from these chemicals. Oddly enough all my favourite foods are reactive for me, so I wonder if this is something that happens to other people – Sarah

Yes, me too. My favourite foods are my poison and yes, I give in to cravings and wake up with what I call my food hangover which can last a few hours to days. I don’t however give in to sulphites and glutamates that give me week long migraines – Maxine

Mainly in the beginning or when I have broken the diet - Nat

Not cravings but I miss certain foods – Kat

Yes. And if I cheat a little bit my cravings intensify! The stricter I am the less I crave ????????♀️ - Mel again

I know it seems like an addiction for my little man. He is ok if he avoids amines altogether, but he can’t handle just one taste of banana or cheese, etc, and gets angry or demanding wanting more -Mandy

For me salicylates increase appetite & create cravings - Chris

One of my amine side-effects is amine cravings. I have a few foods that I still miss, but as long as I am not seeing, smelling or tasting them I don't normally crave them. I've had to remove all amine foods from my house a few times. My husband isn't on the diet and usually I am ok as long as he is discreet, but when I am having withdrawals from amines all bets are off. Also amines affect my mood so that is probably part of it too. They can make me feel a bit high when I first eat them and then really low as they wear off. Glutamates are something I miss a lot too. I just really miss tasty food, but my reactions are so unpleasant that the temptation is usually not so much of a problem. If you can stick to the diet for long enough to do your challenges so you know what your symptoms are, you may find the temptation becomes less. – Shirley

I really struggled in the first year. I continually tried to add some (very) high foods back in for flavour till I finally realised that I felt much better without them. Now I can leave them no problem, knowing that I feel much better without them – Anne

More Articles ...

  1. [1501] Reactions of the fragrance-sensitive – facebook thread (September 2018)
  2. [1500] More on dealing with hubbies and inlaws – facebook thread (September 2018)
  3. [1499] Dealing with the grandparents, inlaws, hubbies – facebook thread (September 2018)
  4. [1498] ”That could have been my son ... food aversions, ADHD symptoms, climbing, SPD...” (August 2018)
  5. [1497] “My first son was like a eczema-covered cyclone” (August 2018)
  6. [1496] 202: Reaction to potassium sorbate preservative in Panamax (August 2018)
  7. [1495] Massive improvement in sons' behaviours (July 2018)
  8. [1494] One-liners (July 2018)
  9. [1493] Middle age lady finds out more about diet (July 2018)
  10. [1492] Amines: depression and suicidal (June 2018)
  11. [1491] Coping with being failsafe (June 2018)
  12. [1490] Starting failsafe, benefits and photos (June 2018)
  13. [1489] Annatto 160b: "adverse reaction to orange food coloring for more than 20 years" (June 2018)
  14. [1488] 220: "Wondering if I would wake up dead" - heart palpitations (arrythmia) from sulfites in drinks (June 2018)
  15. [1487] Intolerance to SLS in shampoo (itchy scalp) and toothpaste (mouth ulcers) (June 2018)
  16. [1486] Ritalin and diet (June 2018)
  17. [1485] Stuttering and food – facebook thread (June 2018)
  18. [1484] Has anyone just stopped failsafe? How long did it take before it affected you? – facebook thread (March 2018)
  19. [1483] Problems with gluten intolerance and mood? – facebook thread (March 2018)
  20. [1482] "little help from the medical profession" (March 2018)
  21. [1481] "The strongest that I have been in all my life". Thank you Strict RPAH Elimination Diet (February 2018)
  22. [1480] Our favourite short testimonials (February 2018)
  23. [1479] Four brief reports on joint pain and arthritis (February 2018)
  24. [1478] Changed sense of smell with failsafe (February 2018)
  25. [1477] Tinnitus responses from Facebook page (February 2018)